Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Problems After 1.5 Years


BRUMI1968

Recommended Posts

BRUMI1968 Collaborator

I was always the constipated celiac sufferer. Two and a half years ago, I quit wheat and dairy; One and a half years ago, I quit gluten. I've been better since then - not perfect, but lots better. The problems that have come up have mostly been bloating.

Starting a few months ago, though, I've started having different celiac-related problems. Mostly, instead of being constipated, I'm the opposite, though not totally watery, certainly not desirable. Okay, if WHEN I move my bowels it's not great, that's one thing-not a good thing at all. But it's the rush to bathroom thing that is really getting on me. I've become afraid to go do things I used to do, like rock climbing or hiking, because I don't want to be too far from the bathroom. I will feel perfectly 100% fine and normal, probably even have a normal stool, then within an hour of that, not so great, running to the bathroom, and very unpleasant times when I get there. Sometimes terrible smell, sometimes not. Almost always, though, undigested food, lots of yellow color (bile), and either totally sunk, or fluffly and floating. (It's the fluffy floating ones that don't smell so good.)

I'm frustrated because I am VERY cautious about gluten. Our household is gluten free. I never eat out. I only eat trusted company's food (i.e., not amy's).

A couple details: about when this really came to a head was when I went on a fishing trip where our campground had no potable water. We drank water from the American campground about 10 minutes walk away (I'm American, but was fishing on the Skagit River which is just north of Ross Lake in Northern Washington/Southern British Columbia). It was not marked to be boiled - but the water was only that far away from this water.

So, it's possible I've gotten giardia or something of that nature. I plan to go to the doctor tomorrow to rule out parasites/bacteria/viruses that could be causing my problems.

Any other ideas, though?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

It does sound like you picked osmething up. I might go with a course o ftreatment from a cleansing program, like Dr colonix or something, because a doctor only has drugs that kill one thing. Like if you have giardia, he has drugs that will kill that, but nothing else, and you may also have another kind of parasite. One of those cleansing deals gets rid of all of them. Usually takes a while though. Oh, if you're not having abdominal pain, then you probably don't have giardia specifically, I think you get a lot of pain with that one.

BRUMI1968 Collaborator

Thanks for the tip. I know I don't want to take the drugs they suggest for giardia, so I'll be glad if it's not that.

I'm not having independent abdominal pain, but I'm not happy while using the bathroom. It is more of a real sense of my own paristalsis - a sort of almost cramped state.

Also, does anyone know about bacterial dysbiosis? Maybe I've got that going on?

Glutenfreefamily Enthusiast

I after over a year of being gluten free had to go vegetarian. I cannot digest fats, dairy or meats at all anymore. It has the exact same effect on my body. If I stay away from those I do fine.

Could it be gall bladder issues? My symptoms came out a little while after gall bladder removal but I had the same symptoms before having it removed.

BRUMI1968 Collaborator

If nothing shows up in the poop samples, we're moving on to possible hpylori or gall bladder or something. I'm getting some testing done at Enterolab too. Problem is right now my stomach is so sensitive,I can't really eat anything...so how I'm supposed to come up with four different pooping samples is beyond me.

I used to be a vegetarian, but went back to meat after quitting gluten...so about a year and a half or so. I have noticed bacon seems to set me off. Not always, just sometimes...unless I'm getting glutened everytime I eat bacon, which I doubt. Anyway, I've been veggie again for a week to figure out if it's fats, giardia, bacterial or yeast dysbosis, or what. ARG!

nmw Newbie

Bacon often has yeast in it - go figure.

Glutenfreefamily Enthusiast

bully4you- How are you feeling?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    2. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    3. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    4. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    5. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.