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Interesting Article I Found


Cath4k

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Cath4k Apprentice

I am pretty new here, so this may have already been linked at some point. I found this article during a search for other information.

Unexpected Mortality Increase Found in Celiac Disease:

Open Original Shared Link

Cathy

ETA: The article is on page 10.


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ENF Enthusiast

That is an excellent article - they bring up many important points that have not been known, or properly addressed. Besides the higher mortality rates in people who are diagnosed with celiac as children, it explains a great deal about how gluten affects the brain, and subsequently behavior. I could relate to much of it and I'm sure that many other people with Celiac or gluten sensitivity can as well.

Maybe it should be listed in Publications and Publicity section, or wherever it will get more readership and responses.

  • 1 year later...
teemaree Apprentice

I am trying to find this story... but can't find it on the link you have given?

  • 2 weeks later...
FranDaMan Apprentice

The original link is quite old but I poked around and did indeed find thearticle on page 10 here:

Open Original Shared Link

sbj Rookie

This is really interesting. This bit jumped out at me:

Just as poor adherence is linked with psychiatric pathology, so too is good adherence
Roda Rising Star
This is really interesting. This bit jumped out at me:

Just as poor adherence is linked with psychiatric pathology, so too is good adherence
sbj Rookie
I think that the issue of children having problems coping with the diet is a very individual thing. While some may be bothered some may not. . . . I have always told him that differences can be a good thing.

I totally agree with you.


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Roda Rising Star
I totally agree with you.

Now if I were talking about my four year old I don't think it would be as easy. He is the pasta/bread boy and very bull headed. :lol:

Fiddle-Faddle Community Regular
This is really interesting. This bit jumped out at me:

Just as poor adherence is linked with psychiatric pathology, so too is good adherence
sbj Rookie
This article was obviously written either by someone who has never had to live gluten-free, or by someone who didn't know how to do it well.

Remember what you said about making assumptions? :lol:

To the matter, I think the authors point out that no conclusions can be made - they are just throwing theories around. But it does seem to me that it can be hard for kiddies in some instances, and I can understand that the teen years might be particularly difficult.

I think this is best looked at as food for thought. Not every one is a great cook!

Mother of Jibril Enthusiast

I thought the main point of the article... about kids with celiac (or any chronic disorder) being more prone to risk-taking behavior as teenagers... was also very interesting. To me, that makes sense. Kids who are really sheltered can get restless and rebellious. But... I think there are ways to give them other options and freedoms.

For example, my dad would take me to the library and literally let me check out anything I wanted. He would glance over the books when I brought them home (sometimes even read them), but he made a point of not questioning my choices. In 8th grade I went to a sleep-away science camp for three weeks (with very little adult supervision!). The summer before I graduated from high school I went to Germany for five weeks as an exchange student. A lot of people asked my parents if they were nervous that something bad could happen while I was so far away. Their response was, "Not really... Europe is pretty safe and our daughter has a good head on her shoulders."

In little ways, my parents inspired me with a lot of confidence. I know you really have to keep a close eye on small children with celiac disease (especially when they're still at the stage of putting everything in their mouth)... but I think it's good to be conscious about letting kids take responsibility as they get older. Let them make a few mistakes when you can still help them recover from the negative consequences! I know I'm going to keep this in mind with my son, who has multiple problems with food intolerance.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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