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BRUMI1968

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BRUMI1968 Collaborator
BRUMI1968
Posted

Anyone diagnosed with this? If so, what were your symptoms. I'm considering this as possibly my problem right now, so have done web research...but some real life reports would be great if anyone has any.

Thanks. :)

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holdthegluten Rising Star
holdthegluten
Posted
Anyone diagnosed with this? If so, what were your symptoms. I'm considering this as possibly my problem right now, so have done web research...but some real life reports would be great if anyone has any.

Thanks. :)

I am seeing an ND on friday about this same possibility. Ill let you know!

Tranquillity Rookie
Tranquillity
Posted

Huh, interesting. I've looked into this a bit as well. I actually found this thread via Google.

Looking forward to hear your results.

jerseyangel Proficient
jerseyangel
Posted

I spoke to my gastro about this being a possibility for me last spring. He said it could be, and had me take a breath test which turned out to negative.

Interestingly, about a month or two after that, I had to go on an antibiotic for an upper resp. infection. On the second day of treatment, my loose stools vanished. Just like that. (this was all the more odd to me, as antibiotics had always upset my stomach--and I can only take one kind)

Prior to this, I would get D and lower ab. cramping and general uneasiness quite often. I have several other food intolerances, so I was sure that I wasn't eating anything that was causing it. It was more chronic in nature--not like a reaction to anything.

I did a lot of reading about this, and saw that in some cases, the problems return within weeks or months after the antibiotics. In my case, it has not--although I've been taking calcium carbonate (Caltrate) twice a day to avoid D. This is the very best I've felt in a very long time--even my anxiety is much better.

My advice--if you suspect this for yourself, try a course of the antibiotic. ;) I'm not one to take a lot of medications, but in this case I'm really glad I did.

~alex~ Explorer
~alex~
Posted

I was diagnosed with this by a direct sample of fluid from my small intestine taken during a follow up endoscopy. I was on antibiotics for a month and felt significantly better afterward. The doctor said that celiac is a risk factor for bacterial overgrowth because all of that undigested, unabsorbed food makes a good environment for bacteria.

If your doctor thinks you have this, hopefully he will give you antibiotics. It certainly helped me.

BRUMI1968 Collaborator
BRUMI1968
Posted
  • Author

Interesting that two folks said antibiotics made them feel better. I'd read that antibiotics are pretty effective for large bowel bacterial dysbiosis, but not small bowel - that it tends to exacerbate it.

Anyway, all my tests for giardia and the like came back negative, so now I'm thinking that SBBO might be the case, plus liver impairment and gall bladder impairment. What I know, is that my digestive processes are messed up, and those are the big players, right? Maybe I don't have SBBO at all...who knows. My insurance is terrible, so I can't get many tests to figure it out.

I'm taking probiotics, digestive enzymes, and Betaine HCI (increases stomach acid?) with every meal now (probiotics 1/2 hour before) and my bowel movements are starting to look relatively normal again - well, the food is somewhat digested anyhow.

My lab tests from Enterolab are pending. So I guess I'll just keep to my zero sugar/zero fruit diet, and the pills; then do a liver cleanse, a gall bladder cleanse, a colon cleanse, and see what's going on after that.

Thanks all for your responses.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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