Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Pain

newceliac

By newceliac
in Coping with Celiac Disease

Recommended Posts

newceliac Enthusiast
newceliac
Posted

Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FootballFanatic Contributor
FootballFanatic
Posted
Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.

Me too! I use zofran for nausea and take some pepto if the pain is really bad. You will have to talk with your doctor about getting zofran, but I would use pepto until you do, it should help with the pain, nausea, and indigestion. I also just try to drink a lot of water. I have the problem with constipation too. I drink smoothies with I feel bad. Bolthouse farms makes one called Blue Goodness that I like or you could buy some blueberries, bananas, apple juice, and blackberries if you like them. It's a bland mixture and the fruit should help with moving things along.

Hope you feel better, our symptoms are almost exactly alike so message me anytime. I'm only a month ahead of you, at 3 months gluten free.

ALSO, have you checked all the manufacturers of any medicines you take?

miles2go Contributor
miles2go
Posted

Hi newceliac,

Sorry you're having such a hard time with no support. It can take up to a few years to get back to feeling better. You've found a safe place here...welcome! Everyone will give you the support and info that you need, but it's going to take some time and a kind of ridiculously steep learning curve, but after a while, it'll be like second nature. I still need to remind myself to take my reading glasses to the grocery store after two years worth. :D

Margaret

LilyCeliac Rookie
LilyCeliac
Posted

You are not alone in feeling this way. Everything you have said has been the exact same for me as well.

I was diagnosed 5 months ago and I am still not feeling better. Some days I notice a change and that I am feeling an improvement but then there are days where for no reason I feel awful again, even when I know I haven't been glutened.

I have had two set backs in the 5 months where I accidentally consumed gluten and the week after that I felt horrible!!

I think that the internal damage from those accidents are what has contributed to me still not feeling better.

Our stomachs have been damaged and I think it takes a long time to heal which means we wont be cured right away even if we are 100% gluten free.

All we can really do is stick to the diet the best we can and hope that in time our bodies will heal and our hard work in being gluten free will finally feel like it's paying off. I definitly know how frustrating this all can be. And it is even more frustrating that people can't see our pain! It's hidden. Our symtoms are something only we can feel which makes it hard for anyone to fully understand what we are going through.

My Doctor said it could take a good 6 months (more or less depending on the person) for a Celiac to start feeling better.

I hope this helps!

Joss Rookie
Joss
Posted
You are not alone in feeling this way. Everything you have said has been the exact same for me as well.

I was diagnosed 5 months ago and I am still not feeling better. Some days I notice a change and that I am feeling an improvement but then there are days where for no reason I feel awful again, even when I know I haven't been glutened.

The first thing I noticed is that I can now breath through my nose ( I am asthmatic) and no longer have to breath through my mouth. When I wake up in the morning I don't have a dry throat and no longer need to drink during the night.

The other thing is that my ears unblocked. Well that is until I did a gluten challenge and they blocked up again. :angry: Now I know that I can never, ever go back to just playing with eliminating gluten. I am getting very serious indeed.

blueshift Apprentice
blueshift
Posted
Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.

You will keep making mistakes from time to time so get used to it.

There are stretches that I use to relieve symptoms. I get down on my back and put my legs into a semi-yoga position. In other words, one leg is bent so that the heel is near the butt like a usual yoga position while the other leg actually crosses over with the knee bent pointing skyward with the foot placed in front of the Yoga leg's shin. I stretch the same side arm as the yoga leg up and over my head with the elbow on top of the head. Tension should be felt along the one side and the back while the gut up front slowly relaxes. I do this without a pillow and my head is tilted backward. I hold this position for 20 minutes and will lean on my right side when I yoga the right leg. Then I switch to the left leg and left arm overhead. Sorry if that was too many words...

Also, try investing in a medicine ball that is about the size of a basketball. Wedge the medicine ball between one side right under the rib cage and the floor. Do this while lying down and rolling over onto the ball slightly.

Study plyometrics and learn to develope your core muscles and the flexors.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,075
    • Most Online (within 30 mins)
      7,748
    Annevt
    Newest Member
    Annevt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Wheatwacked · Posted

      Just switching to gluten free diet will answer your question without involving anyone else.  Your sister was diagnosed, that puts you at 40% risk of having it also as a first degree relative.  If you improve on a trial gluten free diet, you either have Celiac Disease (autoimmune) or Non Celiac Gluten Sensitivity (not autoimmune).  In any case it is important to address nutritional deficiencies like vitamin D.  Gluten free processed foods are not required to fortify.  The reason gluten foods are fortified is our western diet is deficient in them to the point where the government had to step in and require fortification.   Once you start GFD you'll realize it was the gluten you were afraid of all along, but nobody told you.
    • trents
      Blood results

      By trents · Posted

      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Oral thrush question

      By knitty kitty · Posted

      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Nutrient deficiencies despite normal MARSH and strict gluten-free diet

      By Scott Adams · Posted

      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
×
×
  • Create New...