Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Pain

newceliac

By newceliac
in Coping with Celiac Disease

Recommended Posts

newceliac Enthusiast
newceliac
Posted

Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FootballFanatic Contributor
FootballFanatic
Posted
Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.

Me too! I use zofran for nausea and take some pepto if the pain is really bad. You will have to talk with your doctor about getting zofran, but I would use pepto until you do, it should help with the pain, nausea, and indigestion. I also just try to drink a lot of water. I have the problem with constipation too. I drink smoothies with I feel bad. Bolthouse farms makes one called Blue Goodness that I like or you could buy some blueberries, bananas, apple juice, and blackberries if you like them. It's a bland mixture and the fruit should help with moving things along.

Hope you feel better, our symptoms are almost exactly alike so message me anytime. I'm only a month ahead of you, at 3 months gluten free.

ALSO, have you checked all the manufacturers of any medicines you take?

miles2go Contributor
miles2go
Posted

Hi newceliac,

Sorry you're having such a hard time with no support. It can take up to a few years to get back to feeling better. You've found a safe place here...welcome! Everyone will give you the support and info that you need, but it's going to take some time and a kind of ridiculously steep learning curve, but after a while, it'll be like second nature. I still need to remind myself to take my reading glasses to the grocery store after two years worth. :D

Margaret

LilyCeliac Rookie
LilyCeliac
Posted

You are not alone in feeling this way. Everything you have said has been the exact same for me as well.

I was diagnosed 5 months ago and I am still not feeling better. Some days I notice a change and that I am feeling an improvement but then there are days where for no reason I feel awful again, even when I know I haven't been glutened.

I have had two set backs in the 5 months where I accidentally consumed gluten and the week after that I felt horrible!!

I think that the internal damage from those accidents are what has contributed to me still not feeling better.

Our stomachs have been damaged and I think it takes a long time to heal which means we wont be cured right away even if we are 100% gluten free.

All we can really do is stick to the diet the best we can and hope that in time our bodies will heal and our hard work in being gluten free will finally feel like it's paying off. I definitly know how frustrating this all can be. And it is even more frustrating that people can't see our pain! It's hidden. Our symtoms are something only we can feel which makes it hard for anyone to fully understand what we are going through.

My Doctor said it could take a good 6 months (more or less depending on the person) for a Celiac to start feeling better.

I hope this helps!

Joss Rookie
Joss
Posted
You are not alone in feeling this way. Everything you have said has been the exact same for me as well.

I was diagnosed 5 months ago and I am still not feeling better. Some days I notice a change and that I am feeling an improvement but then there are days where for no reason I feel awful again, even when I know I haven't been glutened.

The first thing I noticed is that I can now breath through my nose ( I am asthmatic) and no longer have to breath through my mouth. When I wake up in the morning I don't have a dry throat and no longer need to drink during the night.

The other thing is that my ears unblocked. Well that is until I did a gluten challenge and they blocked up again. :angry: Now I know that I can never, ever go back to just playing with eliminating gluten. I am getting very serious indeed.

blueshift Apprentice
blueshift
Posted
Did anyone have a problem with nausea and stomach pain after diagnosed with Celiac and going gluten free?

I have been gluten free for almost 2 months. I accidentally glutened myself about 1 1/2 weeks ago and it was miserable.....cramping, constipation (i get constipation), extreme anxiety and angry feeling, etc. It took about 1 week to feel better.

I felt better for a couple of days and WHAM, this morning I woke up feeling bad. I find it hard to believe I have been glutened again because I have been extra careful and have been watching everything I eat. I am very nauseous, a pain right across the middle of my stomach, and indigestion. I am also constipated.

Does anyone had to deal with the nausea and stomach pain after diagnosis?

I am getting extremely frustrated. I am trying so hard to eat right and do everything I am supposed to. It seems I have had a lot more bad days in the past couple of months that good days.

I also feel like that my husband gets tired of me talking about the pain during the bad days. At work, I have no support up there. Most people think because I look OK, then I must feel fine. They think I just need to cut out certain foods and I will be fine. The boss has had cancer and underwent chemo so she has the attitude that Celiac is not serious. If you don't have cancer, whatever illness anyone else has is trivial. I am not downplaying cancer because I have dealt firsthand with cancer as my mother and mother in law both had cancer.

It is depressing to be going to all this trouble to "eat right" and still not feel good!!!!! I just constantly worry that I may eat something that may make me feel bad.......and I am scared that I should be feeling better by now.

You will keep making mistakes from time to time so get used to it.

There are stretches that I use to relieve symptoms. I get down on my back and put my legs into a semi-yoga position. In other words, one leg is bent so that the heel is near the butt like a usual yoga position while the other leg actually crosses over with the knee bent pointing skyward with the foot placed in front of the Yoga leg's shin. I stretch the same side arm as the yoga leg up and over my head with the elbow on top of the head. Tension should be felt along the one side and the back while the gut up front slowly relaxes. I do this without a pillow and my head is tilted backward. I hold this position for 20 minutes and will lean on my right side when I yoga the right leg. Then I switch to the left leg and left arm overhead. Sorry if that was too many words...

Also, try investing in a medicine ball that is about the size of a basketball. Wedge the medicine ball between one side right under the rib cage and the floor. Do this while lying down and rolling over onto the ball slightly.

Study plyometrics and learn to develope your core muscles and the flexors.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.