Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Interpreting Blood Work


borst

Recommended Posts

borst Newbie

Update after a little over 3 weeks on a gluten-free diet...

I've been as strict as possible and careful with CC.. but haven't really felt a positive change. I think i'm still continuing to lose weight as well which is disconcerting.

I have my GI appointment on monday, hoping to get somewhere with that.

I'm also starting to suspect candida as a possibility as well (my bowel symptoms began during a round of antibiotics)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Borst,

I don't remember......did you go dairy free as well.

Candida is often a problem if there is something else going on......with my family metals. The body allows the candida to overgrow to absorb the metals. Candida is bad too, but not as bad as if the metals were circulating.

Something we've been talking about alot on the OMG thread is humaworm. Seems to be helping a lot of people who've just started it. It's for parasites. Most of us have them to some extent, so that may be something you want to look into. Just google humaworm. I think the site is www.humaworm.com but I'm not sure.

Another thing to consider is a holistic doctor/naturopath or LLMD to do a lot of different testing to get a view of what's going on. Mainline tests don't usually show much.

borst Newbie
Borst,

I don't remember......did you go dairy free as well.

Candida is often a problem if there is something else going on......with my family metals. The body allows the candida to overgrow to absorb the metals. Candida is bad too, but not as bad as if the metals were circulating.

Something we've been talking about alot on the OMG thread is humaworm. Seems to be helping a lot of people who've just started it. It's for parasites. Most of us have them to some extent, so that may be something you want to look into. Just google humaworm. I think the site is www.humaworm.com but I'm not sure.

Another thing to consider is a holistic doctor/naturopath or LLMD to do a lot of different testing to get a view of what's going on. Mainline tests don't usually show much.

Thanks for the reply!

I am going to try and get my GP to refer me to a naturopath (insurance only covers naturopaths if referred to by doctor)..

Yes i went dairy free as well (only the last two weeks though) ..

If my GI wants to do an endoscopy, should i go back on gluten, and for how long before a biopsy would show celiac?

AndreaB Contributor
If my GI wants to do an endoscopy, should i go back on gluten, and for how long before a biopsy would show celiac?

For a biopsy you need to consume gluten. Probably depends on how long you are off of it before the biopsy would be. I think they say it needs to be equivalent to 4 slices of bread a day for six months......

Remember biopsies are hit and miss and just because a biopsy may be negative doesn't mean you don't have a problem with gluten. Something in the gluten and candida is similar (Rachel--24 posted something about this) so if you think you have candida you'll want to remain gluten free until the cause is found for the candida and you've healed.

With a worsening of symptoms after abx I'm wondering about the possibility of lyme. Seems to be a common thing. Don't dismiss it as an impossibility. There have been quite a few diagnosed who've never seen a tick or live in supposedly "safe" areas. It is more widespread (just like celiac) than people think.

I'd like to invite you over to the OMG....I Might Be On To Something thread. Many on there have experience from different angles and would probably be able to give you more things to look for/test for.

aprilh Apprentice
Hi, new member here.

I've been trying to tackle my health issues for about 4 years now with no definitive answer. This is my history that i typed up for my new physician that i'm seeing (trying to seek a second opinion). I tried to make it as concise as possible but i have a complicated history.

Anyway, the first thing my new physician wanted to do was run some general bloodwork as well as a celiac panel. I got the results back today:

So my Glidin IgA is positive, my Gliadin IgG borderline, and my Transglutaminase IgA looks negative.

My doctor said I may have a gluten sensitivity but not "full blown Celiac". What do you guys think?

The rest of my bloodwork showed some spikes as well..

The bloodwork also included a random glucose test, calcium, vitamin b12, Ferriton, sTSH, T4 Free, Free T3, GGT, AST, Alkaline Phosphatase, all came back within normal range.

I'm getting a referral back to the same gastroenterologist that i had before, hopefully will get some more answers this time

Any advice/suggestions/insight would be appreciated.

Thanks

Hey Borst!

I just wanted to suggest a GI panel by Diagnos Techs. This testing can detect all kinds of bacterial, yeast, and other infections that could be troubling you. If you are interested I can dig up the link and post it for you.

I am not sure if this new gastro will use this specialty lab but you could request that it be done through them. Insurance may not pay for it, but sometimes I feel its best to go out of "insurance" because they do not always use the best labs or the best forms of testing available. That is, if you can afford it.

A good ND might be able to help with this if your gastro dr dismisses your concerns or if you find you are unhappy with the results of your consult.

Good luck and I hope you find results!!!

April

ksb43 Apprentice

For t-Transglutaminase, the test I got had this on the results:

Units - U/mL

Negative: 0-3

Weak Positive: 4-10

Positive: >10

And my doctor said most people without celiac would below below 1. Mine was 14 and I was diagnosed with it (all the other antibody ones were negative and my biopsy didn't really show any damage). So what's the deal? Why are the ranges different?

dadoffiveboys Rookie
For t-Transglutaminase, the test I got had this on the results:

Units - U/mL

Negative: 0-3

Weak Positive: 4-10

Positive: >10

And my doctor said most people without celiac would below below 1. Mine was 14 and I was diagnosed with it (all the other antibody ones were negative and my biopsy didn't really show any damage). So what's the deal? Why are the ranges different?

There are different ranges based on the lab. For my test, a TTG <=20 was normal. My TTG was 20. For IgA a score of <20 was normal, 20-50 equivocal and >50 positive. I was 46 on the IGA Anti-gliadin and went for a biopsy - actually several biopsies. They were all negative and showed only mild signs of Gastritis and GERD. I went gluten-free and it made a HUGE difference.

My wife had the SAME IgA tests and her value was 1.0. So I clearly know what someone w/o a problem should score and I would consider 46 pretty high in that case!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.