Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Support Group Starting In Federal Way, Wa


lonewolf

Recommended Posts

lonewolf Collaborator

I know that there are a few others in the South Puget Sound area that are interested in a support group. Marlene's Market in Federal Way is having kind of a planning meeting to see if there's enough interest to start a support group. The meeting is scheduled for Nov. 20th at 7:00 upstairs in the store. As frustrated as I am with Marlene's, I'm planning to go. Maybe the store will start to "get it" as far as gluten free goes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

I'll be there with bells on! Maybe I can meet other people with young kids. Hopefully that will get me off my butt about starting the ROCK group I keep thinking about.

Was this in the Marlene's newsletter that just came out last week? I suppose I could check their website to see......

lonewolf Collaborator
I'll be there with bells on! Maybe I can meet other people with young kids. Hopefully that will get me off my butt about starting the ROCK group I keep thinking about.

Was this in the Marlene's newsletter that just came out last week? I suppose I could check their website to see......

It was in the calendar section of the newsletter (last page). I also read it somewhere else a week or so ago - that's how I know that it's a planning meeting.

I don't have really young kids, but I'll be there too. I'll be the one who looks like she just came from 2 hours of basketball practice. :lol:

  • 3 weeks later...
lonewolf Collaborator

Hey Cruelshoes and anyone else living in the Federal Way, Tacoma, Puyallup area - remember the kick-off support group meeting tonight! I'll be there at the last minute, hopefully not too sweaty. (I'll be coming straight from high school basketball practice.)

cruelshoes Enthusiast

I will be there. Might have my kids in tow because my husband had a conflict. I am really looking forward to it!

  • 1 month later...
cruelshoes Enthusiast

I got my Marlene's newsletter for January and the next support group meeting will be Monday January 21 at 7:00 pm at Open Original Shared Link. Anybody in South King or North Pierce county - mark your calendar and hope to see you there!

  • 4 weeks later...
Jodi Mills Apprentice
I got my Marlene's newsletter for January and the next support group meeting will be Monday January 21 at 7:00 pm at Open Original Shared Link. Anybody in South King or North Pierce county - mark your calendar and hope to see you there!

I must say I am a bit jealous...It seems like everytime I move away from somewhere, something starts that I would love to be involved with. I deffinately miss home(Tacoma/puyallup). but hopefully You all are doing great with the support group and hopefully I can find on that is close to home eventually!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 9 years later...
JonDee Newbie

I know this has been a while but I am looking for a support group for my daughter and I as we have been diagnosed and working on living with celiac disease for almost a year now. But since relocating here we have had to re-vamp everything we are doing it is still the first year so we are learning. I live in the Renton Washington area. 

Jmg Mentor

Maybe this is of help? Open Original Shared Link

 

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.