Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Vent?

missnbagels

Recommended Posts

missnbagels Explorer
missnbagels
Posted

I 'm having one of those weeks. But seriously, i don't know anyone who has celiac. My friends try to understand but yet they still forget and eat donuts in front of me and offer me some. Im not mad at them or anything. I know i have to deal with those kinds of situations but idk .

Also my parents always make cookies and pizzas, and i get so sick to my stomach but i don't want to complain. They have to eat too.

Sorry for venting. like i said don't know anyone who'd understand

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confusedks Enthusiast
confusedks
Posted

Missnbagels,

I totally understand what you are going through. The other day my brother made chocolate chip cookies (with wheat flour) and I almost died...they smelled so good! But he ended up burning them, so I wasn't too jealous!

As far as friends go, it is really difficult. Last night I went to a party and they kept offering me cake and sandwiches!! They all know of my gluten issue, but they choose to ignore it. I am not saying that they need to make me gluten-free food, but don't offer me gluten food 100 times in a night.

If you ever want to talk, you can feel free to PM me.

Kassandra

Guest j_mommy
Guest j_mommy
Posted

It's a bummer. Vent all you want to.

Do you still live at home???? I would have some gluten free goodies just incase so you don't feel left out when they're eating reg ones! That has saved me sometimes!

Good Luck!

missnbagels Explorer
missnbagels
Posted
  • Author

Yeah i do live at home

I have food for me but it doesn't bother me that they have those foods, like pizzas and cookies, because i have those also. But i have problems smelling strong smelling foods like cookies browies, pizzas, etc. So when they have those foods, i can't go anywhere to get away from the smell. then i get sick to my stomach

so it's frusterating.

jnessa055 Newbie
jnessa055
Posted

i know how you feel girl. i dont live at home but i do live with 4 guys that are HUNGRY and they dont have celiac so they are ALWAYS eating yummy foods, cake, cookies, biscuts and gravy, breakfast burritos, etc.. it kills me! its hard bc they dont understand.. i basically drool over their food while they eat lol. i just go and grab something else that i know i can eat and pretend it tastes the same.. haha doesnt work. thats why im glad i found this forum because no one i know has celiac disease. but its ok. im just waitin for the day that every restuarant has a gluten free menu ha. one day! :rolleyes:

Fairy-Princess Newbie
Fairy-Princess
Posted

Hey, I am Allie. I am new. I just want to say I know how you feel. I don't know anyone with celiac either. In the begining I stuck to the diet for several years, wouldn't even touch breads and stuff. Everyone always offers(d) me things and it was just annoying. The past 2-3 years I havent really watched what I have been eating. Which I don't reccomend. It got to me after a while, especially after seeing everyone eat whatever they want. But all in all I know how you feel. Though My friends were good with it. My one friend always made new cookies of her own for me =) my other friend would try my Gluten-free snacks with me. The Gluten-free snacks are pricey i admit, but I have things you can make from your kitchen. If anyone ever wants to talk, let me know. I'm 17, going on 18 on feb 5. Thanks for reading all that! Bye.

taylor- Rookie
taylor-
Posted

hey! so growing up i never knew anyone who had celiac disease, or even a food allergy. back in the day they didn't have any kid support group events so I would go to the regular meetings with my mom. in this particular group, all the people in the group were over the age of 60 and had several other problems as a result of a late diagnosis. as i got older ROCK started to form and so i would go to some of those events when we could.

I defintely suggest looking into finding some sort of group in your area and checking it out. even if they are older than you it still helps to be able to have a meal and not worry about anything and know that there are others out there.

When I moved to tallahassee this year it was so nice, because while I do answer the same stupid questions from people and have to reject food and trips to subway, so many more people have heard of it before, and a large majority of people i have met know something about celiac, and i've met a few that have it.

but everyone on here is here for you. they are soo willing to answer any questions and listen and complain with you, so feel free to complain haha..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

WHY AREN'T THERE ANY KID SUPPORT MEETINGS IN FLORIDA!!!! Sorry, needed to get that out. There are none within a three-hour drive, and even the reg ones are far... <_< Kinda frusterating. Only a couple of my friends understand. (A couple meaning two.) I don't hardly know any adults with celiac, let alone kids! Unless you count here on the forum... Then I know a few... But none personally. I wish I did. It'd be great to know another girl or boy in Fl my age...

missnbagels Explorer
missnbagels
Posted
  • Author

I sure know what you mean. I don't know anyone with celiac. A girl i talk to says her aunt and aunt's friend has it but i don't know them. It is definately frusterating. I went to a ROCK funderaser thing and all i saw were little kids and elderly. There were absolutely no teens. I'm like come on i can't be the only teen in MN with Celiac!!!!

taylor- Rookie
taylor-
Posted
WHY AREN'T THERE ANY KID SUPPORT MEETINGS IN FLORIDA!!!! Sorry, needed to get that out. There are none within a three-hour drive, and even the reg ones are far... <_< Kinda frusterating. Only a couple of my friends understand. (A couple meaning two.) I don't hardly know any adults with celiac, let alone kids! Unless you count here on the forum... Then I know a few... But none personally. I wish I did. It'd be great to know another girl or boy in South Fl my age...

Hey! i know i went to a kids meeting or two a while ago..it was when i was in middle school..so im not sure what the age group is or if they even meet anymore, i can call my mom back home and ask her if she has heard anything about a kids group meeting. we usually had to drive around 45 minutes to get to a meeting.

Virgie Apprentice
Virgie
Posted

Hi!! My daughter is 13 with Celiac and lives in Minnesota. But yeah she feels like she is the only one around here that has it too.

Virgie

I sure know what you mean. I don't know anyone with celiac. A girl i talk to says her aunt and aunt's friend has it but i don't know them. It is definately frusterating. I went to a ROCK funderaser thing and all i saw were little kids and elderly. There were absolutely no teens. I'm like come on i can't be the only teen in MN with Celiac!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748
    Kundrey
    Newest Member
    Kundrey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.