Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Vent?

missnbagels

Recommended Posts

missnbagels Explorer
missnbagels
Posted

I 'm having one of those weeks. But seriously, i don't know anyone who has celiac. My friends try to understand but yet they still forget and eat donuts in front of me and offer me some. Im not mad at them or anything. I know i have to deal with those kinds of situations but idk .

Also my parents always make cookies and pizzas, and i get so sick to my stomach but i don't want to complain. They have to eat too.

Sorry for venting. like i said don't know anyone who'd understand

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confusedks Enthusiast
confusedks
Posted

Missnbagels,

I totally understand what you are going through. The other day my brother made chocolate chip cookies (with wheat flour) and I almost died...they smelled so good! But he ended up burning them, so I wasn't too jealous!

As far as friends go, it is really difficult. Last night I went to a party and they kept offering me cake and sandwiches!! They all know of my gluten issue, but they choose to ignore it. I am not saying that they need to make me gluten-free food, but don't offer me gluten food 100 times in a night.

If you ever want to talk, you can feel free to PM me.

Kassandra

Guest j_mommy
Guest j_mommy
Posted

It's a bummer. Vent all you want to.

Do you still live at home???? I would have some gluten free goodies just incase so you don't feel left out when they're eating reg ones! That has saved me sometimes!

Good Luck!

missnbagels Explorer
missnbagels
Posted
  • Author

Yeah i do live at home

I have food for me but it doesn't bother me that they have those foods, like pizzas and cookies, because i have those also. But i have problems smelling strong smelling foods like cookies browies, pizzas, etc. So when they have those foods, i can't go anywhere to get away from the smell. then i get sick to my stomach

so it's frusterating.

jnessa055 Newbie
jnessa055
Posted

i know how you feel girl. i dont live at home but i do live with 4 guys that are HUNGRY and they dont have celiac so they are ALWAYS eating yummy foods, cake, cookies, biscuts and gravy, breakfast burritos, etc.. it kills me! its hard bc they dont understand.. i basically drool over their food while they eat lol. i just go and grab something else that i know i can eat and pretend it tastes the same.. haha doesnt work. thats why im glad i found this forum because no one i know has celiac disease. but its ok. im just waitin for the day that every restuarant has a gluten free menu ha. one day! :rolleyes:

Fairy-Princess Newbie
Fairy-Princess
Posted

Hey, I am Allie. I am new. I just want to say I know how you feel. I don't know anyone with celiac either. In the begining I stuck to the diet for several years, wouldn't even touch breads and stuff. Everyone always offers(d) me things and it was just annoying. The past 2-3 years I havent really watched what I have been eating. Which I don't reccomend. It got to me after a while, especially after seeing everyone eat whatever they want. But all in all I know how you feel. Though My friends were good with it. My one friend always made new cookies of her own for me =) my other friend would try my Gluten-free snacks with me. The Gluten-free snacks are pricey i admit, but I have things you can make from your kitchen. If anyone ever wants to talk, let me know. I'm 17, going on 18 on feb 5. Thanks for reading all that! Bye.

taylor- Rookie
taylor-
Posted

hey! so growing up i never knew anyone who had celiac disease, or even a food allergy. back in the day they didn't have any kid support group events so I would go to the regular meetings with my mom. in this particular group, all the people in the group were over the age of 60 and had several other problems as a result of a late diagnosis. as i got older ROCK started to form and so i would go to some of those events when we could.

I defintely suggest looking into finding some sort of group in your area and checking it out. even if they are older than you it still helps to be able to have a meal and not worry about anything and know that there are others out there.

When I moved to tallahassee this year it was so nice, because while I do answer the same stupid questions from people and have to reject food and trips to subway, so many more people have heard of it before, and a large majority of people i have met know something about celiac, and i've met a few that have it.

but everyone on here is here for you. they are soo willing to answer any questions and listen and complain with you, so feel free to complain haha..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

WHY AREN'T THERE ANY KID SUPPORT MEETINGS IN FLORIDA!!!! Sorry, needed to get that out. There are none within a three-hour drive, and even the reg ones are far... <_< Kinda frusterating. Only a couple of my friends understand. (A couple meaning two.) I don't hardly know any adults with celiac, let alone kids! Unless you count here on the forum... Then I know a few... But none personally. I wish I did. It'd be great to know another girl or boy in Fl my age...

missnbagels Explorer
missnbagels
Posted
  • Author

I sure know what you mean. I don't know anyone with celiac. A girl i talk to says her aunt and aunt's friend has it but i don't know them. It is definately frusterating. I went to a ROCK funderaser thing and all i saw were little kids and elderly. There were absolutely no teens. I'm like come on i can't be the only teen in MN with Celiac!!!!

taylor- Rookie
taylor-
Posted
WHY AREN'T THERE ANY KID SUPPORT MEETINGS IN FLORIDA!!!! Sorry, needed to get that out. There are none within a three-hour drive, and even the reg ones are far... <_< Kinda frusterating. Only a couple of my friends understand. (A couple meaning two.) I don't hardly know any adults with celiac, let alone kids! Unless you count here on the forum... Then I know a few... But none personally. I wish I did. It'd be great to know another girl or boy in South Fl my age...

Hey! i know i went to a kids meeting or two a while ago..it was when i was in middle school..so im not sure what the age group is or if they even meet anymore, i can call my mom back home and ask her if she has heard anything about a kids group meeting. we usually had to drive around 45 minutes to get to a meeting.

Virgie Apprentice
Virgie
Posted

Hi!! My daughter is 13 with Celiac and lives in Minnesota. But yeah she feels like she is the only one around here that has it too.

Virgie

I sure know what you mean. I don't know anyone with celiac. A girl i talk to says her aunt and aunt's friend has it but i don't know them. It is definately frusterating. I went to a ROCK funderaser thing and all i saw were little kids and elderly. There were absolutely no teens. I'm like come on i can't be the only teen in MN with Celiac!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. hjayne19
      - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

      Hi @cristiana Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to ...
    2. cristiana
      - cristiana replied to hjayne19's topic in Traveling with Celiac Disease
      1

      Mallorca Guide

      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about. I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type. There seems...
    3. trents
      - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess.
    4. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety. I had awful anxiety at diagnosis, and that feeling of doom that you describe. My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me. I then got a phobia...
    5. hjayne19
      - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Insomnia help

      Hi @trents thanks so much for the insights this helps alot. These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,938
    • Most Online (within 30 mins)
      7,748
    K2coffee
    Newest Member
    K2coffee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @cristiana   Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to hold throughout the night. I just haven’t been able to help the sudden increase in more days where I can’t fall asleep for hours - it’s those racing thoughts like you describe. I feel like a machine that’s running and can’t shut down.    I will try the epsom salt bath that’s a great suggestion. I think I’m probably working through some other food triggers that may be contributing as well with brain fog.    Anyways sorry to go off. It feels so reassuring finding this community and being able to chat with others. I was definitely feeling a bit crazy until I realized there are many others going through the same thing. 
    • cristiana
      Mallorca Guide

      By cristiana · Posted

      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about.   I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type.  There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it!  However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour!  There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check.  Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?"  Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil!  A sort of variation on ratatouille.   Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads.  Flan is made with eggs, sugar and caramel, and should be gluten-free.  Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana    
    • trents
      Insomnia help

      By trents · Posted

      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
    • cristiana
      Insomnia help

      By cristiana · Posted

      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety.  I had awful anxiety at diagnosis, and that feeling of doom that you describe.   My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me.  I then got a phobia to make things worse, linked to the fact that I had was suffering hypnopompic hallucinations (brief hallucinations on waking).  That was weird but I later learned they aren't all that uncommon, especially with people who suffer from aura migraines.   In fact I felt so unwell that I didn't even recognise it as 'anxiety'.  I remember googling my various symptoms and it was only that that  made me realise I was suffering from anxiety, which was nothing like 'feeling a bit nervous before taking an exam' or , say, making a speech.  This was a whole new ball game. As I came off gluten and healed, the anxiety started to get less and less.  It is not uncommon for coeliacs to have anxiety on diagnosis, so I hope that is reassuring to you.   And deficiencies can make it worse, or cause it, so are definitely worth investigating in further depth if you can.   There is certainly a big difference between 'normal' levels and 'optimum', as @trents says, and this excerpt from a British website and explains how with B12,, for example,  a normal level in one person can represent a deficiency in another: In the UK, normal B12 levels vary slightly by lab but generally, above 200 ng/L is considered sufficient, 100-145 ng/L indicates possible deficiency, and below 100 ng/L suggests likely deficiency, though levels between 146-200 ng/L may still warrant treatment if symptoms are present, as per North Bristol NHS Trust and NICE guidelines In fact, I understand levels are set much higher in other countries, such as Japan.  When I started to supplement B12 with high dose sublinguals I began to feel better, even though at diagnosis my levels were considered 'low normal'.    I too had a lot of muscle twitching which was likely due to deficiencies, but of course if someone has a lot of adrenaline in their system it will only make twitching worse.  I remember reading on this forum one should take magnesium tablets, and it did really help.  As a sportsperson you might like to try throwing a good handful of Epsom salts into a lukewarm bath, and have a soak for 20 mins, as it can be absorbed through the skin.  But be careful as you leave the bath, it can make you woozy! Lastly, to address the anxiety,  I found Dr Steve Llardi's book, albeit on Depression, incredibly helpful.  The Depression Cure: The Six Step Programme to Beat Depression Without Drugs.    Dr Llardi outlines a step-by-step plan for recovery from depression, which focuses on six key lifestyle elements that have largely disappeared in healthy doses from modern life:  physical exercise,  omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness, and meaningful, engaging activity.    The other book (and there is a website) which helped me understand anxiety and recover is Paul David's, At Last a Life, written by a one-time sufferer.  I live in the UK and if I could award a knighthood to anyone in this country, it would be to Paul.  I am so grateful that these books crossed my path.   Anyway, sorry for the length of this post.  I hope something might be of help. Cristiana  
    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @trents thanks so much for the insights this helps alot.    These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep with insomnia is if I eat a banana or a snack. I have a follow up appointment soon so will look into those other B vitamin levels. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.