Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Vent?

missnbagels

Recommended Posts

missnbagels Explorer
missnbagels
Posted

I 'm having one of those weeks. But seriously, i don't know anyone who has celiac. My friends try to understand but yet they still forget and eat donuts in front of me and offer me some. Im not mad at them or anything. I know i have to deal with those kinds of situations but idk .

Also my parents always make cookies and pizzas, and i get so sick to my stomach but i don't want to complain. They have to eat too.

Sorry for venting. like i said don't know anyone who'd understand

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confusedks Enthusiast
confusedks
Posted

Missnbagels,

I totally understand what you are going through. The other day my brother made chocolate chip cookies (with wheat flour) and I almost died...they smelled so good! But he ended up burning them, so I wasn't too jealous!

As far as friends go, it is really difficult. Last night I went to a party and they kept offering me cake and sandwiches!! They all know of my gluten issue, but they choose to ignore it. I am not saying that they need to make me gluten-free food, but don't offer me gluten food 100 times in a night.

If you ever want to talk, you can feel free to PM me.

Kassandra

Guest j_mommy
Guest j_mommy
Posted

It's a bummer. Vent all you want to.

Do you still live at home???? I would have some gluten free goodies just incase so you don't feel left out when they're eating reg ones! That has saved me sometimes!

Good Luck!

missnbagels Explorer
missnbagels
Posted
  • Author

Yeah i do live at home

I have food for me but it doesn't bother me that they have those foods, like pizzas and cookies, because i have those also. But i have problems smelling strong smelling foods like cookies browies, pizzas, etc. So when they have those foods, i can't go anywhere to get away from the smell. then i get sick to my stomach

so it's frusterating.

jnessa055 Newbie
jnessa055
Posted

i know how you feel girl. i dont live at home but i do live with 4 guys that are HUNGRY and they dont have celiac so they are ALWAYS eating yummy foods, cake, cookies, biscuts and gravy, breakfast burritos, etc.. it kills me! its hard bc they dont understand.. i basically drool over their food while they eat lol. i just go and grab something else that i know i can eat and pretend it tastes the same.. haha doesnt work. thats why im glad i found this forum because no one i know has celiac disease. but its ok. im just waitin for the day that every restuarant has a gluten free menu ha. one day! :rolleyes:

Fairy-Princess Newbie
Fairy-Princess
Posted

Hey, I am Allie. I am new. I just want to say I know how you feel. I don't know anyone with celiac either. In the begining I stuck to the diet for several years, wouldn't even touch breads and stuff. Everyone always offers(d) me things and it was just annoying. The past 2-3 years I havent really watched what I have been eating. Which I don't reccomend. It got to me after a while, especially after seeing everyone eat whatever they want. But all in all I know how you feel. Though My friends were good with it. My one friend always made new cookies of her own for me =) my other friend would try my Gluten-free snacks with me. The Gluten-free snacks are pricey i admit, but I have things you can make from your kitchen. If anyone ever wants to talk, let me know. I'm 17, going on 18 on feb 5. Thanks for reading all that! Bye.

taylor- Rookie
taylor-
Posted

hey! so growing up i never knew anyone who had celiac disease, or even a food allergy. back in the day they didn't have any kid support group events so I would go to the regular meetings with my mom. in this particular group, all the people in the group were over the age of 60 and had several other problems as a result of a late diagnosis. as i got older ROCK started to form and so i would go to some of those events when we could.

I defintely suggest looking into finding some sort of group in your area and checking it out. even if they are older than you it still helps to be able to have a meal and not worry about anything and know that there are others out there.

When I moved to tallahassee this year it was so nice, because while I do answer the same stupid questions from people and have to reject food and trips to subway, so many more people have heard of it before, and a large majority of people i have met know something about celiac, and i've met a few that have it.

but everyone on here is here for you. they are soo willing to answer any questions and listen and complain with you, so feel free to complain haha..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

WHY AREN'T THERE ANY KID SUPPORT MEETINGS IN FLORIDA!!!! Sorry, needed to get that out. There are none within a three-hour drive, and even the reg ones are far... <_< Kinda frusterating. Only a couple of my friends understand. (A couple meaning two.) I don't hardly know any adults with celiac, let alone kids! Unless you count here on the forum... Then I know a few... But none personally. I wish I did. It'd be great to know another girl or boy in Fl my age...

missnbagels Explorer
missnbagels
Posted
  • Author

I sure know what you mean. I don't know anyone with celiac. A girl i talk to says her aunt and aunt's friend has it but i don't know them. It is definately frusterating. I went to a ROCK funderaser thing and all i saw were little kids and elderly. There were absolutely no teens. I'm like come on i can't be the only teen in MN with Celiac!!!!

taylor- Rookie
taylor-
Posted
WHY AREN'T THERE ANY KID SUPPORT MEETINGS IN FLORIDA!!!! Sorry, needed to get that out. There are none within a three-hour drive, and even the reg ones are far... <_< Kinda frusterating. Only a couple of my friends understand. (A couple meaning two.) I don't hardly know any adults with celiac, let alone kids! Unless you count here on the forum... Then I know a few... But none personally. I wish I did. It'd be great to know another girl or boy in South Fl my age...

Hey! i know i went to a kids meeting or two a while ago..it was when i was in middle school..so im not sure what the age group is or if they even meet anymore, i can call my mom back home and ask her if she has heard anything about a kids group meeting. we usually had to drive around 45 minutes to get to a meeting.

Virgie Apprentice
Virgie
Posted

Hi!! My daughter is 13 with Celiac and lives in Minnesota. But yeah she feels like she is the only one around here that has it too.

Virgie

I sure know what you mean. I don't know anyone with celiac. A girl i talk to says her aunt and aunt's friend has it but i don't know them. It is definately frusterating. I went to a ROCK funderaser thing and all i saw were little kids and elderly. There were absolutely no teens. I'm like come on i can't be the only teen in MN with Celiac!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748
    Stephanie94
    Newest Member
    Stephanie94
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.