Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Book At B & N


tallfran

Recommended Posts

tallfran Apprentice

I saw this book at B & N this evening, picked it up, and read as much as possible in the slightly less than 3 hours I was there.

I know there is a lot of bitterness on this board about failures in diagnosis, being told "it's all in your head, etc.

The introduction chapter features a woman with Celiac Disease, who was misdiagnosed for many years. There are many other examples in the chapters I managed to read while I was there (not of Celiac Disease, but of other misdiagnoses, and how they happen. It is an excellent and interesting read; I recommend it highly, though I don't plan on buying it. Maybe your local library will have a copy soon. I'll finish it the next time I'm at B&N (one of my favorite places!) :D

Fran


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TestyTommy Rookie
I saw this book at B & N this evening, picked it up, and read as much as possible in the slightly less than 3 hours I was there.

I know there is a lot of bitterness on this board about failures in diagnosis, being told "it's all in your head, etc.

The introduction chapter features a woman with Celiac Disease, who was misdiagnosed for many years. There are many other examples in the chapters I managed to read while I was there (not of Celiac Disease, but of other misdiagnoses, and how they happen. It is an excellent and interesting read; I recommend it highly, though I don't plan on buying it. Maybe your local library will have a copy soon. I'll finish it the next time I'm at B&N (one of my favorite places!) :D

Fran

So what's the name of the book????

tallfran Apprentice

Sorry, it's "How Doctors Think" by Jerome Groopman, MD . I put it in as a subtitle, but maybe it didn't show up on your computer.

Fran

jkmunchkin Rising Star

I actually was supposed to go to a discussion being held with Mr. Groopman last month about this book, but unfortunately I didn't make it. I've heard it's very interesting.

debbiewil Rookie

I have the book and I've read it. Actually, I don't think it told me anything I didn't know, it just confirmed things that I've thought for years. Like doctors don't believe patients tell the truth, if it doesn't seem to match with the diagnosis or idea that the doctor already has. So if you say, have liver disease, and the doctor thinks it's because you are an alcoholic, he's already made up his mind and isn't going to test for anything else. And if you tell him you're a life-long teetotaler, he's still not going to test for anything else, because he thinks you're lying. Some other things like that - doctors don't think of testing for so-called 'rare' diseases even if you have all the symptoms. They're told in medical school that they'll never see a patient with this, so they don't test for it. Well, honestly, no matter how rare it is, if it exists at all, some doctor eventually has to see it, right? So if you have the symptoms for it, the doctor should test for it, but they don't. Anyway, the book did describe typical 'doctor think' and had a couple of suggestions for dealing with it. It wasn't a bad book, but I'm more tempted to bring it to my doctor next time I go in, and point out the things my doc does, and why that's not good medical practice. If I did that though, I probably wouldn't have the doc any longer. LOL

Debbie

  • 2 weeks later...
angelbender Newbie

Jerome Groopman writes articles for The New Yorker Magazine. He posted an article approx 7 years ago regarding Fibromyalgia. Based on his lack of research and closedmindedness, in addition to his response to people who wrote regarding his article (did you get that? lol), I found him to be NOT very openminded thus I quickly looked thru his book and put it down. He had a very nasty attitude. I still read his articles in The New Yorker, but I don't put much merit in them. Just my opinion..........

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,812
    • Most Online (within 30 mins)
      7,748

    doodlebubbles
    Newest Member
    doodlebubbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.