Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Handle This . . .

LynnR

By LynnR
in Coping with Celiac Disease

Recommended Posts

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Thank you all my Celiac cyberspace friends!

I printed out your posting and dad and I read though them. Thanx! You have all made it easier for us to understand and cope...

And perhaps someday when I meet a nice guy and can travel again to europe or some far off fun spot like I use to do, I can use all this helpful information all of you have given me, and I can have FUN again.

My rock star brother has let [stardumb, fame and b*tch bridezilla] get to his head. They have NO compassion for my illness and could careless about the me traveling to a third-world country. After speaking with him I understand the REAL reason, I no longer have a brother...

I will do exactly what - ajlauer and Maggie1956 suggested. plantime I found comfort in knowing you have a SIL and brother that would do the same thing. I don't feel so alone.

I will plan something else that weekend. After all ~ it's my birthday that weekend too! ;-D

Thanx again!

PS - ajlauer - The band is in the top single didgets on the record charts.

  • 3 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


westiepaws Apprentice
westiepaws
Posted

Hi Ms. Sillyak how did your brother manage to escape the celiac gene? Or is he just ignoring reality and not getting tested (like my brother)?

(Side note, I will be way grumpy if my brother gets celiac-related problems in his later years and expects moi to be his caregiver.....and he will be way grumpy when I refuse! And now back to our regularly scheduled celiac.com programming.....)

If I were you, I would either fly down just for the day and go to the wedding only, then fly back, or skip the whole freaking thing. It's bizarro that they chose your birthday, and way too risky.

If I knew your brother's band, I'd be sure to never buy any of their records so bridezilla has less money to spend. :lol:

Hugs,

westiepaws

Guest ajlauer
Guest ajlauer
Posted
If I knew your brother's band, I'd be sure to never buy any of their records so bridezilla has less money to spend. :lol:

:lol: I guess that would be why she won't tell us! I checked the charts (when sillyak posted that last post) and found one rock band in the single digits. Assuming that's the one... but with no FORMAL confirmation, I can't be sure!! The day after I did that, my son was watching (and rewatching) one of that band's music videos. It was driving me NUTS wondering if that was "THE band"!! I'm too curious. Far... far too curious!

Oh, and then I look at the band members and wonder which one is "the brother"!

ianm Apprentice
ianm
Posted

If your brother is a famous rock star, what in the world is he doing getting married to someone like that?

KaitiUSA Enthusiast
KaitiUSA
Posted
:lol: I guess that would be why she won't tell us! I checked the charts (when sillyak posted that last post) and found one rock band in the single digits. Assuming that's the one... but with no FORMAL confirmation, I can't be sure!! The day after I did that, my son was watching (and rewatching) one of that band's music videos. It was driving me NUTS wondering if that was "THE band"!! I'm too curious. Far... far too curious!

Oh, and then I look at the band members and wonder which one is "the brother"!

If you think u know what band it is research it and see if any of them are getting married soon...that may shed some light.

  • 3 months later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

HI all my CELIAC cyberspace friends.

My rock star brother has let [stardumb, fame and b*tch bridezilla] get to his head, but fame won over.

The PIXIIEDUST FAIRY came along out of nowhereland, just down the street from rock star never-never-land, and sprinkled pixiedust over him.

It seems the week long Mexican CanCun beach side wedding all expenses paid for her entire family, has been called off. Yes, you read right CALLED OFF! [giggle] oops that wasn't me. [giggle]

The band just left for another USA tour, they'll be back home for Xmas, and off again to Europe just after New Years. If you remeber the wedding is the first weekend in December.

Oops I can't contain myself but b*tch bridezilla's nose is out of joint, and has posponed it for a while.

Thank you, God is good!

-------

ianm - you got that part right. he's in a rock'n'roll band in an altered state of mind... [giggle]

-------

westiepaws - I wondered about the family and where it all came from too. I do know he has serious digestive problems.

Guest nini
Guest nini
Posted

That's almost funny about the wedding in Cancun being postponed/cancelled! But I agree with everyone else that said to just send a card and enjoy your week... The stress of it all would be too much for me!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    2. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    5. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,878
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.