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When To Get Another Endoscopy?

jkmunchkin

By jkmunchkin
in Coping with Celiac Disease

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jkmunchkin Rising Star
jkmunchkin
Posted

I have been diagnosed for about 2 1/2 years now and had follow up blood tests after 6 months and a follow up endoscopy last December (so a 1 1/2 after being diagnosed). My question is, when should I have another endoscopy?

I need to find another GI, because the doctor I was going to went on maternity leave and never came back, so I don't really have a doctor to ask.

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miles2go Contributor
miles2go
Posted

Hi Jillian,

I'm a little confused, so forgive me, but is refractory sprue a concern? If so, I'd think that if you're still feeling bad, maybe give it a few more months before an endoscopy, but if you're feeling better, maybe you don't need another endoscopy? I've never been conclusively dx'd except by my own body and had an endoscopy just recently that was completely covered by my insurance, because I'd already exceeded the out-of-pocket cap. After 2 years of being gluten-free and over 8 being gluten-light, it came back negative, which was a great relief to me. I'm still staying gluten-free, but if insurance coverage is a concern, perhaps now would be the time...?

Margaret

cruelshoes Enthusiast
cruelshoes
Posted

The University of Chicago celiac disease program does not recommend a repeat endoscopy: Open Original Shared Link

jkmunchkin Rising Star
jkmunchkin
Posted
  • Author

Thanks guys.

I do have both blood and biopsy confirmed celiac. And I feel 100% better. I just wasn't sure if I should get a follow up endoscopy because when I was diagnosed I had severe damage to my intestine. I went to one of GI's at Columbia who practices with Dr. Green and she said it was one of the worst she had seen.

When I had my endoscopy last year she said that the villi were definately growing back and it looked better, but because I started off so bad I still had villi that were flat and my intestine wasn't all better yet. So I didn't know if I should make an appointment for an endoscopy soon, which would be a year from my last one.

Oh, and fortunately (knock on wood) I have really good insurance so that is not a concern.

miles2go Contributor
miles2go
Posted

Ah, I can see why you'd want another one - I know I would if I were in your shoes.

Maybe after the holidays when the busy schedules settle down a bit?

Best of luck, hope it's good results and let us know!

Margaret

babygirl1234 Rookie
babygirl1234
Posted

my gi doctor wants to do another endoscopy on me, i guess to make sure that the poyl i have didnt grow or mit and just to see how my stomach is doing, what happends if she finds out that my stomach isnt healing like it should? im just wondering because sooner or later she wants to go back in there for the pyolp and i am just wondering if she finds more plopys or sees that my stomach isnt healing at all,

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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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