Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

4 Weeks And I Am Worse Than Ever Today.


1965kid

Recommended Posts

1965kid Apprentice

Hi, I am so glad to have found this board.

I was diagnosed a month or so ago and came here for advise. I got the best advise and am very grateful.

One of the tidbits I got was to avoid dairy for 2 months.

Well, I must say that it took a good 3 weeks of OCD type persistence to "get" the gluten free thing, so I just started the dairy free thing last week. And I must say, I did great. My poop was almost normal. At least it was as normal as I ever remember it being.

Then, last night I had a bowl of ice cream!

This morning, boom! Full blown Big D, and a horrible belly ache! Its the worst I could imagine! Its bad.

And mind you, I have had so called (IBS, big D) all my life (42 years old).

So I have figured out I have a Lactose intolerance too?

But I ate Doritos (Spicy Nacho, deemed safe) for the last 4 days with no problems. Actually its the best I have felt so far.

The Doritos say the have Whey in them. But they didnt seem to bother me.

My question:

Could I eat small amounts of Whey, as would be found in Frozen dinners, soups, and flavored chips, without a problem, and just stay away from the obvious?

I mean, I know cheese, milk, and the like are out, but should I worry about a little Whey in an item or two?

Could I have New England Clam Chowder for instance? (Progresso, Gluten Free)

Im am positive the Ice Cream caused this gut problem I am experiencing. But should I stay from Dairy forever too?

Sorry, must cut this short, as I am headed back to the bathroom for the 6th time today! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast
Hi, I am so glad to have found this board.

I was diagnosed a month or so ago and came here for advise. I got the best advise and am very grateful.

One of the tidbits I got was to avoid dairy for 2 months.

Well, I must say that it took a good 3 weeks of OCD type persistence to "get" the gluten free thing, so I just started the dairy free thing last week. And I must say, I did great. My poop was almost normal. At least it was as normal as I ever remember it being.

Then, last night I had a bowl of ice cream!

This morning, boom! Full blown Big D, and a horrible belly ache! Its the worst I could imagine! Its bad.

And mind you, I have had so called (IBS, big D) all my life (42 years old).

So I have figured out I have a Lactose intolerance too?

But I ate Doritos (Spicy Nacho, deemed safe) for the last 4 days with no problems. Actually its the best I have felt so far.

The Doritos say the have Whey in them. But they didnt seem to bother me.

My question:

Could I eat small amounts of Whey, as would be found in Frozen dinners, soups, and flavored chips, without a problem, and just stay away from the obvious?

I mean, I know cheese, milk, and the like are out, but should I worry about a little Whey in an item or two?

Could I have New England Clam Chowder for instance? (Progresso, Gluten Free)

Im am positive the Ice Cream caused this gut problem I am experiencing. But should I stay from Dairy forever too?

Sorry, must cut this short, as I am headed back to the bathroom for the 6th time today! :rolleyes:

Hi Kid,

If you're sure that the ice cream was gluten free (and nothing else had gluten) then yes, it was probably the ice cream. Sometimes I can eat it, sometimes I can't. I would think the whey might be the same thing. If it's just a little bit (that's different from a little bit of gluten) it might be ok for some people.

I would advise against trying the chowder.

I kept dairy free (except some hard cheese and some milk in my morning tea) for about 7-8 months. Now I'm ok except with ice cream and some soft cheeses, though I'm ok with milk in baked goods and such. I have not yet tried a glass of milk.

Glad you're ok otherwise and that the OCD has been helpful! ;)

~Laura

aikiducky Apprentice

It does sound like you might be (possibly temporarily) lactose intolerant right now. That's not uncommon in recently diagnosed celiacs.

There is a lot of lactose in milk and ice cream, but less in for instance yoghurt, and very little in hard cheese. The chips were probably ok because whey is a different component of milk than lactose.

You might be ok with butter and hard cheese, and you could try yoghurt in a month or two, and save ice cream and milk for later when you've healed more.

Pauliina

Offthegrid Explorer

Just a note that it's possible to be casein intolerant. Casein is a protein in milk. You could try Lactaid products, and see if you get sick? I personally cannot use Lactaid products, which is a bummer because Lactaid makes a delicious chocolate milk and cottage cheese.

JNBunnie1 Community Regular

It does sound like you have lactose issues right now, you just described how I felt after my last glutening when I was lactose intolerant for a week. If that's the case, then the whey wouldn't bother you. It's probably best to lay off anything with lactose, but if you MUST, take a lactase pill.

mftnchn Explorer

Could be lactose intolerant, in which case you might find some forms of milk you can tolerate. Or could be casein intolerant, in which case you'll have to avoid all milk. If lactose intolerant, this may resolve eventually.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,052
    • Most Online (within 30 mins)
      7,748

    Robert Daquelente
    Newest Member
    Robert Daquelente
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.