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4 Weeks And I Am Worse Than Ever Today.


1965kid

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1965kid Apprentice

Hi, I am so glad to have found this board.

I was diagnosed a month or so ago and came here for advise. I got the best advise and am very grateful.

One of the tidbits I got was to avoid dairy for 2 months.

Well, I must say that it took a good 3 weeks of OCD type persistence to "get" the gluten free thing, so I just started the dairy free thing last week. And I must say, I did great. My poop was almost normal. At least it was as normal as I ever remember it being.

Then, last night I had a bowl of ice cream!

This morning, boom! Full blown Big D, and a horrible belly ache! Its the worst I could imagine! Its bad.

And mind you, I have had so called (IBS, big D) all my life (42 years old).

So I have figured out I have a Lactose intolerance too?

But I ate Doritos (Spicy Nacho, deemed safe) for the last 4 days with no problems. Actually its the best I have felt so far.

The Doritos say the have Whey in them. But they didnt seem to bother me.

My question:

Could I eat small amounts of Whey, as would be found in Frozen dinners, soups, and flavored chips, without a problem, and just stay away from the obvious?

I mean, I know cheese, milk, and the like are out, but should I worry about a little Whey in an item or two?

Could I have New England Clam Chowder for instance? (Progresso, Gluten Free)

Im am positive the Ice Cream caused this gut problem I am experiencing. But should I stay from Dairy forever too?

Sorry, must cut this short, as I am headed back to the bathroom for the 6th time today! :rolleyes:


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cyberprof Enthusiast
Hi, I am so glad to have found this board.

I was diagnosed a month or so ago and came here for advise. I got the best advise and am very grateful.

One of the tidbits I got was to avoid dairy for 2 months.

Well, I must say that it took a good 3 weeks of OCD type persistence to "get" the gluten free thing, so I just started the dairy free thing last week. And I must say, I did great. My poop was almost normal. At least it was as normal as I ever remember it being.

Then, last night I had a bowl of ice cream!

This morning, boom! Full blown Big D, and a horrible belly ache! Its the worst I could imagine! Its bad.

And mind you, I have had so called (IBS, big D) all my life (42 years old).

So I have figured out I have a Lactose intolerance too?

But I ate Doritos (Spicy Nacho, deemed safe) for the last 4 days with no problems. Actually its the best I have felt so far.

The Doritos say the have Whey in them. But they didnt seem to bother me.

My question:

Could I eat small amounts of Whey, as would be found in Frozen dinners, soups, and flavored chips, without a problem, and just stay away from the obvious?

I mean, I know cheese, milk, and the like are out, but should I worry about a little Whey in an item or two?

Could I have New England Clam Chowder for instance? (Progresso, Gluten Free)

Im am positive the Ice Cream caused this gut problem I am experiencing. But should I stay from Dairy forever too?

Sorry, must cut this short, as I am headed back to the bathroom for the 6th time today! :rolleyes:

Hi Kid,

If you're sure that the ice cream was gluten free (and nothing else had gluten) then yes, it was probably the ice cream. Sometimes I can eat it, sometimes I can't. I would think the whey might be the same thing. If it's just a little bit (that's different from a little bit of gluten) it might be ok for some people.

I would advise against trying the chowder.

I kept dairy free (except some hard cheese and some milk in my morning tea) for about 7-8 months. Now I'm ok except with ice cream and some soft cheeses, though I'm ok with milk in baked goods and such. I have not yet tried a glass of milk.

Glad you're ok otherwise and that the OCD has been helpful! ;)

~Laura

aikiducky Apprentice

It does sound like you might be (possibly temporarily) lactose intolerant right now. That's not uncommon in recently diagnosed celiacs.

There is a lot of lactose in milk and ice cream, but less in for instance yoghurt, and very little in hard cheese. The chips were probably ok because whey is a different component of milk than lactose.

You might be ok with butter and hard cheese, and you could try yoghurt in a month or two, and save ice cream and milk for later when you've healed more.

Pauliina

Offthegrid Explorer

Just a note that it's possible to be casein intolerant. Casein is a protein in milk. You could try Lactaid products, and see if you get sick? I personally cannot use Lactaid products, which is a bummer because Lactaid makes a delicious chocolate milk and cottage cheese.

JNBunnie1 Community Regular

It does sound like you have lactose issues right now, you just described how I felt after my last glutening when I was lactose intolerant for a week. If that's the case, then the whey wouldn't bother you. It's probably best to lay off anything with lactose, but if you MUST, take a lactase pill.

mftnchn Explorer

Could be lactose intolerant, in which case you might find some forms of milk you can tolerate. Or could be casein intolerant, in which case you'll have to avoid all milk. If lactose intolerant, this may resolve eventually.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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