Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Palm Pilot

Guest Annie74

By Guest Annie74
in Coping with Celiac Disease

Recommended Posts

Guest Annie74
Guest Annie74
Posted

Does anyone use a palm or similar device to keep track of forbidden ingredients or other info? My 3 year old son was just diagnosed and the amount of information is overwhelming to me now. I am trying to manage all the lists, etc but my huge black binder isn't the most convenient way to do this!

Any suggestions are welcome! Thanks!

Annie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Thomas Apprentice
Thomas
Posted

I think using a palm pilot/sony clie is a great idea!

Guest talsop
Guest talsop
Posted

Hi,

I use a palm and it has pocket excel in it, I have several list > safe, forbidden, questionable. I also have downloaded resturants that are in my area that are gluten-free. Also I have a great shopoing list that I downloaded which I use everytime I go to the grocery store. I'm finding I can't live without it lol. I was taking a big note book with me everywhere and then I realized how many stares I was getting. Also its was so inconviente to wag around.

Be sure you back up your palm onto your home computer so you dont lose any thing you have stored on your palm. I accidently deleted what I had and lost it and had to start over because I didn't back it up :(

celiac3270 Collaborator
celiac3270
Posted

I think you can download a food list...Clan Thompson or something like that...you buy it to download to your palm--they specifically mention the list as being for your palm on the site, last time I checked.

Of course, you're probably better off getting all your lists for free (ingredients, etc.) or typing up your own and then downloading--just if you're interested, there's another option.

dreamhouses Newbie
dreamhouses
Posted

HI, I've been fantasizing about this palm pilot thing - so I was glad to see some posts. I don't have one, but would spend actual money on it if it would help. Is there a way to download lists onto them from Word? , or do you have to type all your stuff on their tiny keypad? (I know this is a dorky - computer idiot question!)...just help me out here...Could I actually transfer some of my lists onto the thing? By the way couldn't all of our list problems be solved if some COMPUTER GENIUSES would just have a site that we could plug into that would keep updated information on products and restuarant chains? Retailers could supply updated info, and sell more stuff... and we could actually use the power of technology to save us from all the time we have to use trying to keep up with all this. I've only been at this for a few months but I can't believe the amount of e-mail and phone calls I've made to get product info. This makes all my regular "Mom" list making pale in comparison! Any thoughts? Valerie

Seosamh Newbie
Seosamh
Posted

Hi Dreamhouses--

I've got a PDA (palm pilot) with the downloadeded food and drug lists from Clan Thompson ($38). I love it and have benefitted from it--for instance, the drug list let me know that Maalox anti-gas tablets and Tums have gluten--something for a celiac to be aware of! Yes, maintaining your own list is a good idea also.

And I believe you can use MS Word on many PDAs nowadays--or you can cut and paste text onto the program (you can type on your computer) and download it onto a palm pilot. It is great--I really rely on mine.

best

Seosamh

dreamhouses Newbie
dreamhouses
Posted

Thanks for that extra info, I am defininitely going to get a palm pilot, I think we all deserve one! Valerie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiacfreeman Contributor
celiacfreeman
Posted

Yes I use the palm solely for my gluten-free list.

I made about 15 files

a-b

ingedient

fast food

sauces

snack

v-z

etc

place into a word or notepad file and hot sync

it's prettiy great for travel

Zire palm is about $ 79 buck

YankeeDB Contributor
YankeeDB
Posted

I use the Clan Thompson list on my Pocket PC. It is worth paying for. It's a lot of work keeping these lists and ingredients in processed food are constantly changing.

tom Contributor
tom
Posted

I recently got a palm zire72 model and just love it. I'd been keeping lists and web bkmrks on a sidekick device (awesome mobile web) but it was missing one crucial function - Find w/in a pdf.

Anyway, i think some older palms may not be able to view and do Find in a pdf, but it seems all recent devices will.

The reason for the pdf req is that there is a very complete "safe" list in pdf format.

Open Original Shared Link

It seems to be updated 4x/yr, tho as it's just done by volunteers I don't know that they are adhering to a strict update schedule.

I LOVE this list, as it can become tiresome to pore over the other type of lists containing what i CAN'T eat.

I did try the pc version of the clan thompson program, but didn't think it suited me all that well. But it is free to try so i'd suggest at least a look.

I also have numerous small txt files by category, both created w/ copy/paste and those i wrote out myself w/ comments.

So Annie, I'd STRONGLY suggest getting just about any of the current devices. Many have features unrelated to our gluten-free lists and can get costly, but i think the palm zire31 is easily found for ~$150 and would do the job wonderfully. (my zire72 was $250 after $50 reb)

Or to spend less, i've seen older models that i believe can do the job on sale for as low as $30.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748
    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.