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Think My Daughter Might Have Celiac-starting The Whole Process

mommy2almost3

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mommy2almost3 Newbie
mommy2almost3
Posted

My 3 yr old has been complaining for weeks now (probably 3 months) that her stomach hurts, 1-4 times a day, at random times. It goes away though after a minute and then she's fine. I brought it up at her 3 yr check up and her ped. told me to monitor it and call back if it keeps up, which it has-last night she woke up crying because her stomach hurt and then she had massive diah.-the first time she's had it after complaining of her stomach. It had a really bad odor too-not normal. My husband's cousin's 2 children have celiac and the episode last night got me thinking about it-she really doesn't have any other symptoms, except she's very thin for her age and doesn't eat a lot at all-she's 3 and weighs 27lbs (10th percentile). I have another appt. with her ped. next week and I'd like to bring up celiac but don't even know where to start, if I'm reading correctly, it sounds like blood work at this age is not accurate? sara

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dandelionmom Enthusiast
dandelionmom
Posted

My 3 year old's blood work was accurate. She had the Celiac Panel and had it come back highly positive. I hope you find answers soon!

Kibbie Contributor
Kibbie
Posted
My 3 yr old has been complaining for weeks now (probably 3 months) that her stomach hurts, 1-4 times a day, at random times. It goes away though after a minute and then she's fine. I brought it up at her 3 yr check up and her ped. told me to monitor it and call back if it keeps up, which it has-last night she woke up crying because her stomach hurt and then she had massive diah.-the first time she's had it after complaining of her stomach. It had a really bad odor too-not normal. My husband's cousin's 2 children have celiac and the episode last night got me thinking about it-she really doesn't have any other symptoms, except she's very thin for her age and doesn't eat a lot at all-she's 3 and weighs 27lbs (10th percentile). I have another appt. with her ped. next week and I'd like to bring up celiac but don't even know where to start, if I'm reading correctly, it sounds like blood work at this age is not accurate? sara

My daughters blood work was positive at 18 months old.... if you get a positive there is no question so I believe its worth a shot.

mommy2almost3 Newbie
mommy2almost3
Posted
  • Author

I'll bring up the blood test at her appt. since there's a chance it might pick it up-my husband's sister has a lot of celiac symptoms and had blood work done-she said some came back 'gray' zone?? The gi specialist suggested the biopsy but she won't have it done-she's 22 and she just doesn't want to deal with it right now. But if she has it, then the heredity thing is a lot closer to my kids. sara

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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