Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Think My Daughter Might Have Celiac-starting The Whole Process

mommy2almost3

Recommended Posts

mommy2almost3 Newbie
mommy2almost3
Posted

My 3 yr old has been complaining for weeks now (probably 3 months) that her stomach hurts, 1-4 times a day, at random times. It goes away though after a minute and then she's fine. I brought it up at her 3 yr check up and her ped. told me to monitor it and call back if it keeps up, which it has-last night she woke up crying because her stomach hurt and then she had massive diah.-the first time she's had it after complaining of her stomach. It had a really bad odor too-not normal. My husband's cousin's 2 children have celiac and the episode last night got me thinking about it-she really doesn't have any other symptoms, except she's very thin for her age and doesn't eat a lot at all-she's 3 and weighs 27lbs (10th percentile). I have another appt. with her ped. next week and I'd like to bring up celiac but don't even know where to start, if I'm reading correctly, it sounds like blood work at this age is not accurate? sara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dandelionmom Enthusiast
dandelionmom
Posted

My 3 year old's blood work was accurate. She had the Celiac Panel and had it come back highly positive. I hope you find answers soon!

Kibbie Contributor
Kibbie
Posted
My 3 yr old has been complaining for weeks now (probably 3 months) that her stomach hurts, 1-4 times a day, at random times. It goes away though after a minute and then she's fine. I brought it up at her 3 yr check up and her ped. told me to monitor it and call back if it keeps up, which it has-last night she woke up crying because her stomach hurt and then she had massive diah.-the first time she's had it after complaining of her stomach. It had a really bad odor too-not normal. My husband's cousin's 2 children have celiac and the episode last night got me thinking about it-she really doesn't have any other symptoms, except she's very thin for her age and doesn't eat a lot at all-she's 3 and weighs 27lbs (10th percentile). I have another appt. with her ped. next week and I'd like to bring up celiac but don't even know where to start, if I'm reading correctly, it sounds like blood work at this age is not accurate? sara

My daughters blood work was positive at 18 months old.... if you get a positive there is no question so I believe its worth a shot.

mommy2almost3 Newbie
mommy2almost3
Posted
  • Author

I'll bring up the blood test at her appt. since there's a chance it might pick it up-my husband's sister has a lot of celiac symptoms and had blood work done-she said some came back 'gray' zone?? The gi specialist suggested the biopsy but she won't have it done-she's 22 and she just doesn't want to deal with it right now. But if she has it, then the heredity thing is a lot closer to my kids. sara

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to lehum's topic in Super Sensitive People
      11

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      Welcome to celiac.com, @Heavenly Flower! You're off to a good start but you can certainly branch out some. White rice is fairly devoid of nutrition. Baked potatoes with the skin (washed) would be a better choice for the starch unless, that is, you don't do well with members of the nightshade family. Yams or sweet potatoes would be even better because...
    2. Heavenly Flower
      - Heavenly Flower replied to lehum's topic in Super Sensitive People
      11

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      I was just diagnosed with celiac disease after Thanksgiving. I can't imagine what all you had to do to get all the information you have, it just seems so overwhelming. I am still trying to figure it all out and don't know if the information I'm getting is correct. I have been eating only white rice and chicken breast, pork, or steak and fresh vegetables....
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      I just read this article here on Celiac.com. For anyone interested in or following this thread, they may also want to read this article for additional insight:
    4. Haugeabs
      - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil. Gluten free but not certified gluten free. Soy free, GMO free.
    5. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,415
    • Most Online (within 30 mins)
      7,748
    Heavenly Flower
    Newest Member
    Heavenly Flower
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By trents · Posted

      Welcome to celiac.com, @Heavenly Flower!  You're off to a good start but you can certainly branch out some. White rice is fairly devoid of nutrition. Baked potatoes with the skin (washed) would be a better choice for the starch unless, that is, you don't do well with members of the nightshade family. Yams or sweet potatoes would be even better because of the beta carotene. Do you have issues with eggs and dairy? How about fresh fish? What about fresh fruit? There are also non gluten alternative grains like quinoa, buckwheat (not related to wheat) groats and sorghum that are sold by companies like Bob's Red Mill that can be used for hot breakfast cereals. Gluten free oats is also an option, though some celiacs can't do oats because the protein in them (avenin) is similar enough to gluten to cause a reaction. Gluten is found only in wheat, barley and rye.
    • Heavenly Flower
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By Heavenly Flower · Posted

      I was just diagnosed with celiac disease after Thanksgiving. I can't imagine what all you had to do to get all the information you have, it just seems so overwhelming. I am still trying to figure it all out and don't know if the information I'm getting is correct. I have been eating only white rice and chicken breast, pork, or steak and fresh vegetables.  Gluten free pretzels and rice cakes to snack on. But that's about it cause I don't know what I can eat it's to overwhelming.  I don't even know what symptom to look for for possible cross contamination cause I also have microscopic Colitis which has the same symptoms as celiac disease. I'm hoping at least being on this forum I can get information that will help me figure it all out. Sorry I am not able to help you and hope you get the relief you are looking for. 
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      I just read this article here on Celiac.com.  For anyone interested in or following this thread, they may also want to read this article for additional insight:  
    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.