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What Was I Thinking?

wowzer

By wowzer
in Coping with Celiac Disease

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wowzer Community Regular
wowzer
Posted

My dear son works at a pizza place. He comes home and plunks down at the computer. When he was done, I did clean the desk, mouse, keyboard, chair, etc. We were talking in the kitchen and I saw him lean his hand on my coffee cup. I got a new cup for my coffee. As I was sitting here later, I'm feeling glutened. I looked and somehow I was back to the cup that I was trying to avoid. I can't believe I did that. I suppose we all learn from our miseries. Grrrrr

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gfp Enthusiast
gfp
Posted

Grr....

annoying as it is this sort of accident will always happen. Its annoying but its just life and no point blaming yourself. You identified the risk so that's a big plus...

darlindeb25 Collaborator
darlindeb25
Posted

Now, after the whole xanax incindent and my knowing now, that I do have a completely different reaction to being glutened now than the reaction I used to have, I actually wonder if I havent been glutened at work and never even knew I was. My xanax glutenings always give me this nervousness the next day, this on edge feeling, a teariness, and the over all achiness--but being achy is so normal for a person with neuropathy, that it's hard to separate the 2. Yet the people at work are always having bagels, cookies, donuts, cakes, you name it and they eat over my invoices, patients bring in donuts for us and they will get sat on our appointment book which I have to use too and I can't get it through their heads that they can have these things, but they have to stay clear of certain areas. They shouldn't sit boxes of donuts on the appointment book anyways and they do not need to eat over the invoices. Finally, I have it understood that NO ONE will eat at my desk.

After Halloween, they brought in left over candy and PAt asked me if I could have a piece and she was reading the ingredients. She read soy lecithin and wouldn't let me have it, stating, "I don't want you to get sick because of me!" Finally, she is paying attention and I figured I didn't need the candy enough to explain that lecithin is safe. The battle isn't over, but I am gaining.

bakingbarb Enthusiast
bakingbarb
Posted
My dear son works at a pizza place. He comes home and plunks down at the computer. When he was done, I did clean the desk, mouse, keyboard, chair, etc. We were talking in the kitchen and I saw him lean his hand on my coffee cup. I got a new cup for my coffee. As I was sitting here later, I'm feeling glutened. I looked and somehow I was back to the cup that I was trying to avoid. I can't believe I did that. I suppose we all learn from our miseries. Grrrrr

Heres a real good one, I bought my daughter some candy and without thinking I popped a couple of em in my mouth! It was chocolate afterall, I mean hello I never think when it comes to chocolate. ARGH About a half hour later I felt like I was gonna hurl! I darnk a ton of water after that!

wowzer Community Regular
wowzer
Posted
  • Author

I know what you mean about work. I am a bank teller at a drive in. I was off yesterday and came into today to find the person who worked in my window's gluten hand lotion. I'm sure she used it all day. I was wiping down anything I thought she touched. Is it asking too much to ask my coworkers to not use lotion that contains gluten? I suppose I could keep throwing it away. I do have a nice big bottle in my window that they are all welcome to use. It sure is an ongoing battle. If I work in the lobby, it's almost worse because we serve cookies. So what can I do?

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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