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Help..i Am So Confused...

ladybugs

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ladybugs Newbie
ladybugs
Posted

:huh: Enterolab results back today..I was below the upper limit on everything meaning that I have no direct evidence of active gluten sensitivity and no evidence of gluten-induced auto-immune reaction BUT it showed that I have one of the main genes that predisposes to gluten-sensitivity and celiac sprue ( HLA-DQB1 Molecular analysis, Allele 1 0202 and HLA-DQB1 Molecular analysis, Allele 2 0301 and the serological equivalent is HLA-DQ 2,3 (subtype 2,7)......

So can I eat gluten or NOT!!!!!!!!!!!!!!!! I am really not trying to be stupid and I am sorry if I should know the answer...but I have now been gluten-free for about 2 weeks and have only noticed vert minimal improvement...I have migraines, sarcodisis of the skin, constant gas and bloating, joint pain and fatigue. Help!

Thanks to all that reply...please do so quickly if you can. I need answers.

~Deb

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confused Community Regular
confused
Posted

You could be iga deficient, that is why you are not postive in antibodies.

Can you post all of your scores for us?

paula

ladybugs Newbie
ladybugs
Posted
  • Author
You could be iga deficient, that is why you are not postive in antibodies.

Can you post all of your scores for us?

paula

Hi Paula...thanks for responding so quickly!!!! Here are the results I rec'd today!!!

Date: 11/15/2007

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 6 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 4 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 275 Units (Normal Range <300 Units)

Fecal anti-casein (cow

AndreaB Contributor
AndreaB
Posted

Deb,

You don't have an active intolerance so you could continue eating gluten if you want to......or maybe just go gluten light. With the celiac gene you may or may not become active at some point. My husband tested negative through enterolab too but he has 2 celiac genes so he went gluten free with the rest of us.

Do you eat soy? That could cause some problems as well.

Other things you may want to look into is metals, lyme, viruses, parasites. Foods could be behind your symptoms though.

The only thing I could suggest if you're up to it is an elmination diet with detailed journaling to try and pinpoint foods that are problems for you. Another thing would be IgG ELISA testing. They aren't always accurate though.

ladybugs Newbie
ladybugs
Posted
  • Author
Deb,

You don't have an active intolerance so you could continue eating gluten if you want to......or maybe just go gluten light. With the celiac gene you may or may not become active at some point. My husband tested negative through enterolab too but he has 2 celiac genes so he went gluten free with the rest of us.

Do you eat soy? That could cause some problems as well.

Other things you may want to look into is metals, lyme, viruses, parasites. Foods could be behind your symptoms though.

The only thing I could suggest if you're up to it is an elmination diet with detailed journaling to try and pinpoint foods that are problems for you. Another thing would be IgG ELISA testing. They aren't always accurate though.

Thanks so much !!! Makes a bit more sense to me now. I think I will try the elimination diet...like you suggested.

Have good night.

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    • SilkieFairy
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      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
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