Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shampoo

jvacc

By jvacc
in Dermatitis Herpetiformis

Recommended Posts

jvacc Rookie
jvacc
Posted

Does anyone know if shampoo or hair products that contain gluten can damage your scalp.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Does anyone know if shampoo or hair products that contain gluten can damage your scalp.

Many people here do react to gluten in shampoo or hair product. There are many options for gluten free hair products.

wowzer Community Regular
wowzer
Posted

Before going gluten free, I had a horrble time with shampoo, body wash, etc. It got to the point just about anything I used itched. I'm sure gluten was the problem. I was cleaning out my collection the other day and found a bottle of Clinique shampoo. I had quit using it because it burned my scalp. I should have taken the stuff back. I read the ingredients and the third one of course was wheat. I am sure that I have DH. It is frustrating that is for sure.

  • 1 month later...
munchkinette Collaborator
munchkinette
Posted

I don't know what it is about Clinique products, but they have always given me problems. I got the skin care kit in college, and it totally made me break out. The breakouts were not acne. I don't know what it was- kind of sore/scab like, but I'm not sure if I would call it blisters. Clinique is the one brand that I reacted so strongly to that I've avoided it for years. (That was 10 years ago.)

I use Wella shampoo and conditioner. They do have sweet almond oil in them, so they won't work for nut allergies. I don't know if all Wella shampoos and conditioners are gluten-free though. I know you're probably all paranoid and double (and triple) check labels anyway. :)

muddy puppy Newbie
muddy puppy
Posted
Before going gluten free, I had a horrble time with shampoo, body wash, etc. It got to the point just about anything I used itched. I'm sure gluten was the problem. I was cleaning out my collection the other day and found a bottle of Clinique shampoo. I had quit using it because it burned my scalp. I should have taken the stuff back. I read the ingredients and the third one of course was wheat. I am sure that I have DH. It is frustrating that is for sure.

Frustrating is too mild a word for this!! I have been gluten free since march but didn't really think I needed to look at the labels of my shampoo and soap. Reading food labels is hard enough! I have been itching for 10 year, severly, for 4 years. I thought it was all the chemicals in soap, shampoo, lotion, etc... and tried DOZENS of different brands. When I started eating gluten free there was drastic change, but the itching never went away 100%. I thought I was just getting "contaminated" by accident, since gluten is sometimes hidden in foods you wouldn't expect it to be in... (like finding barley malt in Lindt Chocolate truffles) but I have been suspecting lately that it is in my soap, lotion and shampoo. I read somewhere that tocopheryl acetate could be derived from wheat, well, that is in just about every body wash and lotion found at the average store. Yes frustrating is an understatement. But it is helpful to know I'm not alone.

Romney Newbie
Romney
Posted
:o The photos that one of you sent look a lot like the rash my husband has had for some time. What do I look for in the ingredients of laundry soap? Will it just say "wheat" Do the laundry and soap makers have to identify ingredients that are a frequent cause of health issues like the food companies do? I tried the link that someone sent but it did not work. Does anyone know where I would get a list of soaps, detergents, etc that are gluten free or a list of those to avoid? Thanks
Lisa Mentor
Lisa
Posted
:o The photos that one of you sent look a lot like the rash my husband has had for some time. What do I look for in the ingredients of laundry soap? Will it just say "wheat" Do the laundry and soap makers have to identify ingredients that are a frequent cause of health issues like the food companies do? I tried the link that someone sent but it did not work. Does anyone know where I would get a list of soaps, detergents, etc that are gluten free or a list of those to avoid? Thanks

Other than foods, companies do not have to disclose any allergins.

Here is a list of thingss to look out for:

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Here is a list of companies who wil list gluten as in "wheat, barley, malt and rye":

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

This is what I learned from L'oreal

unscented: there still could be a fragrance in it which would have trace gluten

fragrance free: has no fragrance at all

Choice to make if you want no trace of gluten: fragrance free

Fragrance free shampoo & conditioner are difficult to find. I found over internet drug store and it's made by Person & Covey,Inc. It's called DHS Clear Shampoo and DHS Conditioning Rinse.

Neutrogena USED to make a fragrance free shampoo but stopped a few years ago. So far I have not found any major manufacturer who makes a fragrance free hair line.

Romney Newbie
Romney
Posted
This is what I learned from L'oreal

unscented: there still could be a fragrance in it which would have trace gluten

fragrance free: has no fragrance at all

Choice to make if you want no trace of gluten: fragrance free

Fragrance free shampoo & conditioner are difficult to find. I found over internet drug store and it's made by Person & Covey,Inc. It's called DHS Clear Shampoo and DHS Conditioning Rinse.

Neutrogena USED to make a fragrance free shampoo but stopped a few years ago. So far I have not found any major manufacturer who makes a fragrance free hair line.

Romney Newbie
Romney
Posted

Thank you. You have been a great help. Currently we are using a deoderant soap and his rash is getting worse. Will pick up some Dove tomorrow. We rewashed all the clothing in All Free and Clear but the rash on his back is getting worse. I wondered if it might be the shampoo. Currently using a dandruff shampoo. Can anyone recommend a gluten free dandruff shampoo? Will look tomorrow to see if Dove has one.Any other ideas what may be causing this rash to persist? The doctor just keeps prescribing prednisone but we really want to eliminate the source.

  • 2 weeks later...
Gwen B Rookie
Gwen B
Posted
Thank you. You have been a great help. Currently we are using a deoderant soap and his rash is getting worse. Will pick up some Dove tomorrow. We rewashed all the clothing in All Free and Clear but the rash on his back is getting worse. I wondered if it might be the shampoo. Currently using a dandruff shampoo. Can anyone recommend a gluten free dandruff shampoo? Will look tomorrow to see if Dove has one.Any other ideas what may be causing this rash to persist? The doctor just keeps prescribing prednisone but we really want to eliminate the source.

Wholefoods have a list if gluten free products. Their 365 shower gel is gluten-free but not their shampoo. I found that out the hard way. However they do a Dessert Essence Organics brand shampoo and conditioner which is really nice, actually labelled Wheat Free and Gluten Free. Maybe they do other products, I haven't asked the store recently because I like this one. You may want to watch out for Tocopherol and tocopherol acetate. I react with the soy based TA too. It's also in most lipsalves.

You're quite right to be annoyed with the doctor. It's ridiculous to keep taking meds when you could be well. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,141
    • Most Online (within 30 mins)
      7,748
    islaPorty
    Newest Member
    islaPorty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.