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Shampoo


jvacc

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jvacc Rookie

Does anyone know if shampoo or hair products that contain gluten can damage your scalp.


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Lisa Mentor
Does anyone know if shampoo or hair products that contain gluten can damage your scalp.

Many people here do react to gluten in shampoo or hair product. There are many options for gluten free hair products.

wowzer Community Regular

Before going gluten free, I had a horrble time with shampoo, body wash, etc. It got to the point just about anything I used itched. I'm sure gluten was the problem. I was cleaning out my collection the other day and found a bottle of Clinique shampoo. I had quit using it because it burned my scalp. I should have taken the stuff back. I read the ingredients and the third one of course was wheat. I am sure that I have DH. It is frustrating that is for sure.

  • 1 month later...
munchkinette Collaborator

I don't know what it is about Clinique products, but they have always given me problems. I got the skin care kit in college, and it totally made me break out. The breakouts were not acne. I don't know what it was- kind of sore/scab like, but I'm not sure if I would call it blisters. Clinique is the one brand that I reacted so strongly to that I've avoided it for years. (That was 10 years ago.)

I use Wella shampoo and conditioner. They do have sweet almond oil in them, so they won't work for nut allergies. I don't know if all Wella shampoos and conditioners are gluten-free though. I know you're probably all paranoid and double (and triple) check labels anyway. :)

muddy puppy Newbie
Before going gluten free, I had a horrble time with shampoo, body wash, etc. It got to the point just about anything I used itched. I'm sure gluten was the problem. I was cleaning out my collection the other day and found a bottle of Clinique shampoo. I had quit using it because it burned my scalp. I should have taken the stuff back. I read the ingredients and the third one of course was wheat. I am sure that I have DH. It is frustrating that is for sure.

Frustrating is too mild a word for this!! I have been gluten free since march but didn't really think I needed to look at the labels of my shampoo and soap. Reading food labels is hard enough! I have been itching for 10 year, severly, for 4 years. I thought it was all the chemicals in soap, shampoo, lotion, etc... and tried DOZENS of different brands. When I started eating gluten free there was drastic change, but the itching never went away 100%. I thought I was just getting "contaminated" by accident, since gluten is sometimes hidden in foods you wouldn't expect it to be in... (like finding barley malt in Lindt Chocolate truffles) but I have been suspecting lately that it is in my soap, lotion and shampoo. I read somewhere that tocopheryl acetate could be derived from wheat, well, that is in just about every body wash and lotion found at the average store. Yes frustrating is an understatement. But it is helpful to know I'm not alone.

Romney Newbie
:o The photos that one of you sent look a lot like the rash my husband has had for some time. What do I look for in the ingredients of laundry soap? Will it just say "wheat" Do the laundry and soap makers have to identify ingredients that are a frequent cause of health issues like the food companies do? I tried the link that someone sent but it did not work. Does anyone know where I would get a list of soaps, detergents, etc that are gluten free or a list of those to avoid? Thanks
Lisa Mentor
:o The photos that one of you sent look a lot like the rash my husband has had for some time. What do I look for in the ingredients of laundry soap? Will it just say "wheat" Do the laundry and soap makers have to identify ingredients that are a frequent cause of health issues like the food companies do? I tried the link that someone sent but it did not work. Does anyone know where I would get a list of soaps, detergents, etc that are gluten free or a list of those to avoid? Thanks

Other than foods, companies do not have to disclose any allergins.

Here is a list of thingss to look out for:

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Here is a list of companies who wil list gluten as in "wheat, barley, malt and rye":

Open Original Shared Link


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debmidge Rising Star

This is what I learned from L'oreal

unscented: there still could be a fragrance in it which would have trace gluten

fragrance free: has no fragrance at all

Choice to make if you want no trace of gluten: fragrance free

Fragrance free shampoo & conditioner are difficult to find. I found over internet drug store and it's made by Person & Covey,Inc. It's called DHS Clear Shampoo and DHS Conditioning Rinse.

Neutrogena USED to make a fragrance free shampoo but stopped a few years ago. So far I have not found any major manufacturer who makes a fragrance free hair line.

Romney Newbie
This is what I learned from L'oreal

unscented: there still could be a fragrance in it which would have trace gluten

fragrance free: has no fragrance at all

Choice to make if you want no trace of gluten: fragrance free

Fragrance free shampoo & conditioner are difficult to find. I found over internet drug store and it's made by Person & Covey,Inc. It's called DHS Clear Shampoo and DHS Conditioning Rinse.

Neutrogena USED to make a fragrance free shampoo but stopped a few years ago. So far I have not found any major manufacturer who makes a fragrance free hair line.

Romney Newbie

Thank you. You have been a great help. Currently we are using a deoderant soap and his rash is getting worse. Will pick up some Dove tomorrow. We rewashed all the clothing in All Free and Clear but the rash on his back is getting worse. I wondered if it might be the shampoo. Currently using a dandruff shampoo. Can anyone recommend a gluten free dandruff shampoo? Will look tomorrow to see if Dove has one.Any other ideas what may be causing this rash to persist? The doctor just keeps prescribing prednisone but we really want to eliminate the source.

  • 2 weeks later...
Gwen B Rookie
Thank you. You have been a great help. Currently we are using a deoderant soap and his rash is getting worse. Will pick up some Dove tomorrow. We rewashed all the clothing in All Free and Clear but the rash on his back is getting worse. I wondered if it might be the shampoo. Currently using a dandruff shampoo. Can anyone recommend a gluten free dandruff shampoo? Will look tomorrow to see if Dove has one.Any other ideas what may be causing this rash to persist? The doctor just keeps prescribing prednisone but we really want to eliminate the source.

Wholefoods have a list if gluten free products. Their 365 shower gel is gluten-free but not their shampoo. I found that out the hard way. However they do a Dessert Essence Organics brand shampoo and conditioner which is really nice, actually labelled Wheat Free and Gluten Free. Maybe they do other products, I haven't asked the store recently because I like this one. You may want to watch out for Tocopherol and tocopherol acetate. I react with the soy based TA too. It's also in most lipsalves.

You're quite right to be annoyed with the doctor. It's ridiculous to keep taking meds when you could be well. Good luck.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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