Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Picc Line


confusedks

Recommended Posts

confusedks Enthusiast

I am going to get a PICC line in over the next couple days for IV treatments. I was wondering if anyone has had one before? Was it painful, how long did you have it? Was it a pain to take care of? AHHH...I'm so nervous!! :o

Kassandra


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

I had a PICC line when I was first diagnosed becasue I had to to daily IV feedings. I had it for a month. I was in the hospital, and they did it right in my hospital room. It was in my left arm. They will numb the site and feed the line in using ultrasound to make sure they get it in the right place. The lidocaine hurt a little, but the PICC line didn't hurt much. My arm was a little achy for a few days, but not too bad. I had a home health nurse that would come to my house once a week and change the dressing, but it doesn't sound like you will have yours that long. The only care I really had to do with it was flushing it with saline daily to keep it from clotting.

I much preferred it to the other types of central lines I have had before. I also had a port-a cath (1 year in 1994) and a groshong (2 years during cancer treatment). The PICC line left a much smaller scar that I can't even see anymore. It was smaller than a freckle. The procedure to put it in and take it out was also much easier - in the hospital room rather than an operating room.

You do need to make sure it doesn't get wet or yanked on my your clothes. I had a sleeve thingie that I rolled it up in during the day and just wore long sleeved shirts. Nobody even knew I had it most of the time.

I can answer more questions if you want. Feel free to PM me if you are nervous about it.

confusedks Enthusiast

Colleen,

Thank you for your reply. I am going to have it in for iron IV's and they will administer them at the Dr's office, so I won't have to flush it or anything on my own.

Since I won't be going to the hospital for treatments, I am assuming I will go to the hospital for the placement of the line? Is that right? I guess I will find out soon...ugh!

I just worry about these kinds of things, my had once almost doubled in size just from a needle for the start of an IV, without any liquids in it or anything! It was ridiculous. Can people reject the PICC line? (does that make sense?)

Kassandra

Sorry for so many questions. :(

cruelshoes Enthusiast

I had mine put in while I was already in the hospital, but I'm sure it could have been done as an outpatient procedure. It was not even placed by a doctor, it was placed by 2 nurses that had gone to some special training. They rolled a portable ultrasound machine right to my bedside.

I don't know if one can reject the line. All it really is is an IV that is intended for longer term use. The main concerns with it will be, of course, infection and clotting over of the end that is in your body. It is put into a larger vein in your upper arm, so it's not like when they try to put in an IV line in the tiny veins in your hand or wrist. They cover the end that goes into your skin with a piece of gauze, and then cover the whole thing with a larger piece of adhesive. It's kind of like a clear bandage that is about 4 inches by 4 inches. Think of contact paper. :) The only part that sticks out of this covering is the tube that they will use to hook the IV into I think the tube part was about 5 inches long or so.

I know it sounds scary, but mine really wasn't that bad.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,428
    • Most Online (within 30 mins)
      7,748

    twin68grcom
    Newest Member
    twin68grcom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • catnapt
      oh geez!! i made a whole long detailed post and it didn't save it   I give up grrrrrrrrrrr  
    • catnapt
      I'm not delaying my recovery- I was well on my way to recovering, IF I do have celiac disease by listening to my body and not eating the foods that made me feel ill. the drug I just stopped taking was making me incredibly ill and it's unfortunate and more than  a little frustrating that the dr  
    • Wheatwacked
      Click on the image to make it larger.  Maybe doesn't work on phone browser,  That was from 2021. Absolutely, they should be tested, The point is you have symptoms that the doctors don't understand and malabsorption may be the cause.   Not trying to.  But much of your rant includes refeferences that may indicate multiple nutritional deficiencies.     Some countries also have tax incentives and financial aid for Celiacs.   Celiac disease is recognized as a disability under the ADA because it substantially limits major life activities like eating and digestive function. Protections require reasonable accommodations in public accommodations, including schools (504 plans), colleges, and hospitals. These often include providing safe, gluten-free food, though they do not force restaurants to provide it.  As far as your recovery, eat gluten free.  Get healthier now and worry about diagnosis later.  Many here on the forum have gone ten or more years looking for a diagnosis, with many doctors and many misdiagnosis along the way. It really doesn't matter why, but you cannot eat  gluten.  That is what is important.  With gluten out of the way, maybe the doctors can make sense of your remaining symptoms.  If you need the ADA, then a medical diagnosis is the way to go.  Meantime you are delaying your recovery from whichever celiac disease or NCGS and the inevitable step one of Gluten Free Diet. tWe come to share experiences and maybe it will help someone. In reality, I don't care.  By the way I have stopped 6 medications Against Medical Advice because they did not do their job and the side effects were crippling. This is a lifelong fight for your life.  Pick you battles carefully.  Assume the worst, celiac disease, and deal with it.  Denial is not just a river in Egypt. Pleased to meet you, too.  
    • catnapt
      I can't read any of this... the print is too small and it looks like all you eat is milk, cereal cookies and some fruit..?   and some coffee?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.