Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Picc Line


confusedks

Recommended Posts

confusedks Enthusiast

I am going to get a PICC line in over the next couple days for IV treatments. I was wondering if anyone has had one before? Was it painful, how long did you have it? Was it a pain to take care of? AHHH...I'm so nervous!! :o

Kassandra


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

I had a PICC line when I was first diagnosed becasue I had to to daily IV feedings. I had it for a month. I was in the hospital, and they did it right in my hospital room. It was in my left arm. They will numb the site and feed the line in using ultrasound to make sure they get it in the right place. The lidocaine hurt a little, but the PICC line didn't hurt much. My arm was a little achy for a few days, but not too bad. I had a home health nurse that would come to my house once a week and change the dressing, but it doesn't sound like you will have yours that long. The only care I really had to do with it was flushing it with saline daily to keep it from clotting.

I much preferred it to the other types of central lines I have had before. I also had a port-a cath (1 year in 1994) and a groshong (2 years during cancer treatment). The PICC line left a much smaller scar that I can't even see anymore. It was smaller than a freckle. The procedure to put it in and take it out was also much easier - in the hospital room rather than an operating room.

You do need to make sure it doesn't get wet or yanked on my your clothes. I had a sleeve thingie that I rolled it up in during the day and just wore long sleeved shirts. Nobody even knew I had it most of the time.

I can answer more questions if you want. Feel free to PM me if you are nervous about it.

confusedks Enthusiast

Colleen,

Thank you for your reply. I am going to have it in for iron IV's and they will administer them at the Dr's office, so I won't have to flush it or anything on my own.

Since I won't be going to the hospital for treatments, I am assuming I will go to the hospital for the placement of the line? Is that right? I guess I will find out soon...ugh!

I just worry about these kinds of things, my had once almost doubled in size just from a needle for the start of an IV, without any liquids in it or anything! It was ridiculous. Can people reject the PICC line? (does that make sense?)

Kassandra

Sorry for so many questions. :(

cruelshoes Enthusiast

I had mine put in while I was already in the hospital, but I'm sure it could have been done as an outpatient procedure. It was not even placed by a doctor, it was placed by 2 nurses that had gone to some special training. They rolled a portable ultrasound machine right to my bedside.

I don't know if one can reject the line. All it really is is an IV that is intended for longer term use. The main concerns with it will be, of course, infection and clotting over of the end that is in your body. It is put into a larger vein in your upper arm, so it's not like when they try to put in an IV line in the tiny veins in your hand or wrist. They cover the end that goes into your skin with a piece of gauze, and then cover the whole thing with a larger piece of adhesive. It's kind of like a clear bandage that is about 4 inches by 4 inches. Think of contact paper. :) The only part that sticks out of this covering is the tube that they will use to hook the IV into I think the tube part was about 5 inches long or so.

I know it sounds scary, but mine really wasn't that bad.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
      12

      Second chance

    2. - Mari replied to Jmartes71's topic in Doctors
      12

      Second chance

    3. - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

    4. - knitty kitty replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

    5. - anya22 replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,677
    • Most Online (within 30 mins)
      7,748

    Bob Trav
    Newest Member
    Bob Trav
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
    • anya22
      Thanks for the reply! I kept my diet the same continued to eat gluten.  I forgot to mention I have also failed to gain weight even with an high calorie diet since a young age
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.