Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Picc Line


confusedks

Recommended Posts

confusedks Enthusiast

I am going to get a PICC line in over the next couple days for IV treatments. I was wondering if anyone has had one before? Was it painful, how long did you have it? Was it a pain to take care of? AHHH...I'm so nervous!! :o

Kassandra


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

I had a PICC line when I was first diagnosed becasue I had to to daily IV feedings. I had it for a month. I was in the hospital, and they did it right in my hospital room. It was in my left arm. They will numb the site and feed the line in using ultrasound to make sure they get it in the right place. The lidocaine hurt a little, but the PICC line didn't hurt much. My arm was a little achy for a few days, but not too bad. I had a home health nurse that would come to my house once a week and change the dressing, but it doesn't sound like you will have yours that long. The only care I really had to do with it was flushing it with saline daily to keep it from clotting.

I much preferred it to the other types of central lines I have had before. I also had a port-a cath (1 year in 1994) and a groshong (2 years during cancer treatment). The PICC line left a much smaller scar that I can't even see anymore. It was smaller than a freckle. The procedure to put it in and take it out was also much easier - in the hospital room rather than an operating room.

You do need to make sure it doesn't get wet or yanked on my your clothes. I had a sleeve thingie that I rolled it up in during the day and just wore long sleeved shirts. Nobody even knew I had it most of the time.

I can answer more questions if you want. Feel free to PM me if you are nervous about it.

confusedks Enthusiast

Colleen,

Thank you for your reply. I am going to have it in for iron IV's and they will administer them at the Dr's office, so I won't have to flush it or anything on my own.

Since I won't be going to the hospital for treatments, I am assuming I will go to the hospital for the placement of the line? Is that right? I guess I will find out soon...ugh!

I just worry about these kinds of things, my had once almost doubled in size just from a needle for the start of an IV, without any liquids in it or anything! It was ridiculous. Can people reject the PICC line? (does that make sense?)

Kassandra

Sorry for so many questions. :(

cruelshoes Enthusiast

I had mine put in while I was already in the hospital, but I'm sure it could have been done as an outpatient procedure. It was not even placed by a doctor, it was placed by 2 nurses that had gone to some special training. They rolled a portable ultrasound machine right to my bedside.

I don't know if one can reject the line. All it really is is an IV that is intended for longer term use. The main concerns with it will be, of course, infection and clotting over of the end that is in your body. It is put into a larger vein in your upper arm, so it's not like when they try to put in an IV line in the tiny veins in your hand or wrist. They cover the end that goes into your skin with a piece of gauze, and then cover the whole thing with a larger piece of adhesive. It's kind of like a clear bandage that is about 4 inches by 4 inches. Think of contact paper. :) The only part that sticks out of this covering is the tube that they will use to hook the IV into I think the tube part was about 5 inches long or so.

I know it sounds scary, but mine really wasn't that bad.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.