Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spoon-glutened


miles2go

Recommended Posts

miles2go Contributor

Hi all,

This was my third attempt at a gluten-free Thanksgiving away from home and the first time that I've been glutened. My family is wonderful and even though the dressing was cooked away from the turkey, the gravy was made from my "special" flour, my gluten-free foods were gobbled up and gluten-free at our house tasted more like dessert, what with the sweet potatoes, the jello mold, the pies, the cranberry jel, what is that anyway?? (hey, who can complain?;)) and mom asking about how to cook ALL the Christmas cookies gluten-free, I still managed to get glutened from the spoon that was used for the gluteny stuffing and the gluten-free gravy. Nothing too serious, but it will be another nine days or so to sort things out. In the meantime, I'm so grateful for this silly incident for a number of reasons, as I'm not officially diagnosed.

a. my pots, pans and kitchen utensils are just fine

b. my family doesn't think I'm a kook anymore, at least over my dietary needs :)

c. no need for Enterolab

d. they are trying, but like everyone else, don't get it exactly right every time.

I wish that we didn't have to get it exactly right, every time, but hey...I should mention that that was one in five meals over the course of the holiday that did not go off without a hitch.

Hope everyone had a great day, whatever you did!

My question: did anyone else get glutened and if so, do you know what went astray?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PeggyV Apprentice

I did, and it was my fault. I have been gluten free a little over 1 year. Every year I bake dinner rolls for the holidays (the yummy gluten kind) My family loves them and I enjoy working with gluten dough. I have gotten very sensitive to gulten now, I dont know why, but the longer I go gluten free the easier it effects me. This year I wore latex gloves when baking my rolls so I wouldnt get the dough under my nails and was very careful, but it still got me, I have read that flour have done that to others on this site. I baked on Wed and had a reaction about 2 hours after. I am bummed, I will try a dust mask next time. I love baking rolls and dont want to stop unless I have tol

On Thanksgiving I did all the main dishes.. Turkey, glutten free corn bread stuffing, sweet potato, etc. so I would get sick. I had my mother in law bring the pumpkin pie and green bean cassarole. When I heated up the green beans in the micorwave, I stuck my finger in it to see if it was hot and then licked my finger! Talk about feeling stupid! Sure enough about 2 hours later I looked like I was 5 months pregnant. Between getting gluten 2 days in a row, I was pretty useless Thursday night and Friday. Felt sick, bloated etc ...you all know the rest, but at least I didnt get the lower back pain this time. Just hoping I dont get a dh outbreak.

Yellow Rose Explorer
I did, and it was my fault. I have been gluten free a little over 1 year. Every year I bake dinner rolls for the holidays (the yummy gluten kind) My family loves them and I enjoy working with gluten dough. I have gotten very sensitive to gulten now, I dont know why, but the longer I go gluten free the easier it effects me.

You are more sensitive because your gut is healing and now you are absorbing more so reacting more. I did the same thing with rolls and my family loved them but I warned them this is the last year and I will be sending them the receipe. There was flour all over my kitchen and I didn't get glutened but it was a pain cleaning it up. I did use a mask that my husband brought me and my DD mixed the flour for me and after the mixing I took over. I also used gloves so it wouldn't get under my fingernails or into any small cuts on my hands. Feel better soon.

Yellow Rose

PeggyV Apprentice
You are more sensitive because your gut is healing and now you are absorbing more so reacting more. I did the same thing with rolls and my family loved them but I warned them this is the last year and I will be sending them the receipe. There was flour all over my kitchen and I didn't get glutened but it was a pain cleaning it up. I did use a mask that my husband brought me and my DD mixed the flour for me and after the mixing I took over. I also used gloves so it wouldn't get under my fingernails or into any small cuts on my hands. Feel better soon.

Yellow Rose

Yellow Rose,

So you were able to make the rolls with a mask? I dont mind the clean up, I use paper towel or throw the sponge away after I am done. I think it was the flour flying around that got me. I only want to make the 2 or 3 times a year, it is a tradition in our family. I will try the mask at Christmas, if I get glutened again, I will give up.

debmidge Rising Star

Spoon glutening is high hazard when eating at other person's house. This was one of the rules my mother in law could not get used to. That's why we had to stop having meals/holiday meals at her house. As she got older (80's) there was no way she could learn to do it differently. It became a "Russian Roulette" eating there.

buffettbride Enthusiast
Spoon glutening is high hazard when eating at other person's house. This was one of the rules my mother in law could not get used to. That's why we had to stop having meals/holiday meals at her house. As she got older (80's) there was no way she could learn to do it differently. It became a "Russian Roulette" eating there.

My biggest fear is also the "gluteny spoon" when eating at our family member's houses. They get Celiac Disease and WANT to get it right, but unless you really live it every day it's easy to make those mistakes. Our biggest problem is with my husband's step mother and my husband's grandmother. They are very attached to a lot of their old recipes and just have a hard time letting go of them.

miles2go Contributor
My biggest fear is also the "gluteny spoon" when eating at our family member's houses. They get Celiac Disease and WANT to get it right, but unless you really live it every day it's easy to make those mistakes. Our biggest problem is with my husband's step mother and my husband's grandmother. They are very attached to a lot of their old recipes and just have a hard time letting go of them.

How do you handle the social aspect of things, such as they are? :D

Same, here!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cath4k Apprentice

This was our first Thanksgiving gluten-free. My mom always does Thanksgiving and she worked SO hard to get it right for us!! Mind you, we have to be gluten free, casein free, Feingold (which means no aspartame, artificial colors, artificial flavors, BHT, BHA, or TBHQ). We also cannot do corn syrup, high fructose corn syrup, or MSG. WHEW!

She made two separate chickens rather than turkey and did not stuff ours with stuffing, just veggies. She made mashed potatoes, corn, and broccoli without any dairy or seasonings (we added our own.) She made us our own gravy from our chicken using cornstarch rather than flour. She set out all the salad fixings so everyone could assemble their own. We brought our own salad dressings, butter (for the one child who can do casein), and cake. My mom didn't even make rolls because she knows how much my 4 yo loves them and didn't want him to see them and not be able to eat them! She wouldn't let us do anything else for the meal as she wanted to do it all! Amazing!

We did not get sick. But you know what then happened? We put up our Christmas tree that evening and made a special eggnog substitute drink (very yummy) and the darn Pacific Almond Milk which was labeled gluten free was contaminated and glutened us!! After all my mom's hard work, we glutened ourselves that night!

We know it was the almond milk, because we could chart our milder symptoms back through the week to each time we had small amounts of it in our tea. Then we had a large amount that night and got really sick. UG!

I am SO done with processed food!

I'm sorry you got glutened!

Cathy

buffettbride Enthusiast
How do you handle the social aspect of things, such as they are? :D

Same, here!

Well, sometimes we let our daughter have a meal before we go somewhere to eat, like a family member or friend's house, so she's not as hungry and make sure there are a few items there (usually we bring them) that are gluten free and very yummy.

The biggest disappointment is this year on Christmas Eve my husband's step mother is making gumbo and she wants to use her traditional recipe with regular flour and not gluten free flour. (My husband has made that recipe gluten free several times and it is indistinguishably as good). Sadly, gumbo is one of my daughter's favorite foods so instead of the alternative she offered of turkey and rice soup (which she eats a few times a week anyway), hubby is going to make her gluten-free gumbo to have.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.