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i_miss_cookie*dough

"made On Equipment Shared With Wheat, Etc..."

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heya!

so, i have been 7.5 weeks gluten-free.

and have stilll been feeling the SAME.

off the dairy as of today to see if that helps.

but i also noticed last night

that the black beans i eat

and the rice cakes i eat

and who KNOWS what else,

(though those ITEMS are themselves gluten-free)

on the label, below the ingredients -

(which is where i usually stop reading

but since i had an 8 hour drive

back to LA from no. cal yesterday

with my fiance,

i got a bit stir crazy and once

i finished books and magazines,

i started reading labels : )

it says...

"made on equipment shared with wheat, etc..."

could that be why i dont feel better?

have other ppl cut out things that say that on the packaging?

it appears that SOOOOOOOOOO many things

say that...

thoughts??

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I'm sorry you've been feeling bad! :(

I guess each person has to draw his or her own line about allergen statements... I personally try to stay away from the ones that are processed on shared equipment. I make some exceptions for Nestle because I talked to someone there on the phone who told me they thoroughly wash down the lines (this was for Maggi chicken broth bouillon stuff) but that they just wanted Celiacs to have all the information. I feel comfortable using that product every now and then. I wouldn't eat anything everyday that had that kind of warning.

I hope you get to feeling better soon!!


diagnosed 8/05 through positive bloodwork & biopsy

gluten-free since then!

"Those who are willing to be vulnerable move among mysteries." Theodore Roethke

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Guest j_mommy

I eat the ones that say "processed/made in teh same faciltity as wheat products" I generally stay away from the ones that same "use the same line" unless I have time to call and get the details.

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I do not eat things that say they are manufactured in a place with wheat. I have noticed that my daughters and I react to those often enough that it isn't worth the risk.


Karen

gluten free 4/06

casein free 7/06

DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free

vegetarian

gluten lite on and off since 1999

All dx'ed by Enterolab

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I follow the same rule of thumb as j_mommy.

More than anything, I keep track of how I feel. If a particular product is associated with symptoms (a food/symptom diary is essential here), I don't eat it.

Be sure to realize that those warning statements are voluntary. Items that mention nothing about shared equipment or facilities COULD have them. So it is necessary to be alert.


McDougall diet (low fat vegan) since 6/00

Gluten free since 1/6/07

Soy free and completely casein and egg free since 2/15/07

Yeast free, on and off, since 3/1/07 -- I can't notice any difference one way or the other

Enterolab results -- 2/15/07

Fecal Antigliladin IgA 140 (Normal Range <10 units)

Fecal Antitissue Transglutaminase IgA 50 (Normal Range <10 units)

Quantitative Microscopic Fecal Fat Score 517 (Normal Range <300 units)

Fecal anti-casein (cow's milk) IgA antibody 127 (Normal Range <10 units)

HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 06xx

Serologic equivalent: HLA-DQ 1,1 (subtype 5,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 11 (Normal range <10 units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 11 (Normal range <10 units)

Fecal Anti-Soy IgA 119 (Normal Range < 10 units)

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I eat the ones in the same facility, but I steer clear of the ones that say made on shared lines. If I get a reaction or even feel a little out of it after eating something from the same facility then I steer clear of that product as well.

It comes down to personal choice and what you feel comfortable doing.


~~~~Gluten Free since 9/2004~~~~~~

Friends may come and go but Sillies are Forever!!!!!!!

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I agree with Blueeyedmanda.

But the real reason I'm posting is because I have a really good recipe for cookie dough that doesn't have raw eggs in it - so "i_miss_cookie*dough" if you would like the recipe, let me know. (My 17 year old cousin who wouldn't eat anything gluten-free to save her life loves the cookie dough.)


Liz

Started Specific Carbohydrate Diet on 8-16-09 because son was diagnosed with Ulcerative Colitis and want to give him moral support.

Diagnosed with Minimal Change Nephrotic Syndrome in 2003. Discovered that going completely gluten-free put me in remission.

I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Psalms 27:13

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I agree with Blueeyedmanda.

But the real reason I'm posting is because I have a really good recipe for cookie dough that doesn't have raw eggs in it - so "i_miss_cookie*dough" if you would like the recipe, let me know. (My 17 year old cousin who wouldn't eat anything gluten-free to save her life loves the cookie dough.)

ooooh...me likey the sound of that!!

bring it on, sister!

thanks!

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