Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Bleeding Disorders

jmn

By jmn
in Related Issues & Disorders

Recommended Posts

jmn Rookie
jmn
Posted

Hello:

My 17-year-old son and I both have celiac disease. He had four wisdom teeth extracted 12 days ago. We've been back to the oral surgeon twice with complications. His wounds won't stop bleeding and aren't healing correctly. This happened several years ago when he had teeth extracted before orthodontia.

Is anyone aware of a connection between bleeding/clotting disorders and celiac disease?

Thanks.

JMN

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


fitgirlie Newbie
fitgirlie
Posted
Hello:

My 17-year-old son and I both have celiac disease. He had four wisdom teeth extracted 12 days ago. We've been back to the oral surgeon twice with complications. His wounds won't stop bleeding and aren't healing correctly. This happened several years ago when he had teeth extracted before orthodontia.

Is anyone aware of a connection between bleeding/clotting disorders and celiac disease?

Thanks.

JMN

I don't know of any "medical" disorders, but I know any time I have ever had any surgery/procedures done,I have encountered the same reaction.

Nyxie63 Apprentice
Nyxie63
Posted

A lot of Celiacs are deficient in vit K, which is essential for blood clotting. Could be why he's still bleeding.

kevsmom Contributor
kevsmom
Posted
A lot of Celiacs are deficient in vit K, which is essential for blood clotting. Could be why he's still bleeding.

I agree. before I was diagnosed, I would get bruises all over, for no reason at all. It turned out that my body was not absorbing Vitamin K. My Platelet level was off the charts at 909 (Normal range is 140-415).

Cindy

trents Grand Master
trents
Posted

Has your son had any blood work done recently to check for platelet levels or other clotting factors? That would seem to be the place to start. You should ask your doctor to order a CBC and other tests that check for the various clotting factors.

Steve

BRUMI1968 Collaborator
BRUMI1968
Posted

I have Celiac and ITP (Idiopathic thrombocytopenia purpura). The ITP is when one does not have enough platelets - it's autoimmune. I'm no longer on any medication and I'm just fine. But you should have your son checked - a CBC will do the trick (Complete Blood Count).

confusedks Enthusiast
confusedks
Posted

What numbers specifically do you look for on the CBC. I am about to have a PICC line put in and they are going to run tests to find out if my blood will clot normally. I had labs done not too long ago and they may have already taken it...what do you look for?

Kassandra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nyxie63 Apprentice
Nyxie63
Posted
What numbers specifically do you look for on the CBC. I am about to have a PICC line put in and they are going to run tests to find out if my blood will clot normally. I had labs done not too long ago and they may have already taken it...what do you look for?

Kassandra

When they test mine before getting a thyroid biopsy done, it's usually a separate test in addition to the CBC. They test PT, PTT and platelets. If they want to look more in-depth, there are other additional tests they can run.

jmn Rookie
jmn
Posted
  • Author

Thanks to all of you. Now I have something to go on.

JMN

loraleena Contributor
loraleena
Posted

There are a few of us on here with ITP mentioned earlier. Get a CBC. His platelets should be above 150,000.

nikki-uk Enthusiast
nikki-uk
Posted

My husband (a coeliac) has had problems with easy bleeding and low platelets.

At the moment his haemotolgist is happy with his levels (although not as good as the average person, they are not dangerous) - he's not been dx with ITP though.

I'm not sure any of the docs know exactly why this has been occuring for my hubby :blink:

bklyn Enthusiast
bklyn
Posted

I have the opposite problem - high platelet count. I am due for a check up soon, my hematologist initially thought celiac was causing high platelets, but my Ttg #'s are negative, so he's not sure why I would have high platelets (which can be caused by inflammation).

jmn Rookie
jmn
Posted
  • Author

OK. I dug out a CBC my son had last summer. Mean Platelet Volume (8.3) and Platelet Count (250) were both within the normal range. Does this mean we can assume it is a vitamin K deficiency? I've stocked up on green leafy vegetables. We'll see if that helps.

JMN

  • 5 weeks later...
illini02 Newbie
illini02
Posted

Before I was diagnosed with Celiac I had problems with bleeding/bruising from scurvy - vit C deficiency. It often leads to problems with bleeding gums and bruising. Believe it or not my doc decided to test me for celiac because of the scurvy. Smart doc!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,038
    • Most Online (within 30 mins)
      7,748
    Briannas01
    Newest Member
    Briannas01
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.