Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Growth Catch Up In Older Kids


Worriedtodeath

Recommended Posts

Worriedtodeath Enthusiast

HI!

How much did your kids grow after going gluten-free and how old where they when you started gluten-free? I'm wondering just how much my 10 year old would grow if he went gluten-free.

I suspect ,since dealing with all the baby's problem, he is also Celiac. Both boys had almost identical problems to hers except they never slipped off of the growth chart, just fell down a few percentile points. Then their diaherra stopped and they have since floated between bouts of diaherra and constipation along with the general my tummy hurts all over. I'm going to have them tested just to see what their levels are.

Thanks

Stacie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dandelionmom Enthusiast

My daughter is tall anyway for her age but shortly after going gluten-free she shot up a couple of inches and filled out (she's still thinner than anyone else in her classes though). 3 months after going gluten-free we had to buy all new clothes in the next size.

buffettbride Enthusiast

My daughter never fell off the growth charts either, she just kinda stayed stuck in the 50% percentile for height, which was odd because both her parents were tall as kids. Just didn't seem right. It was most noticeable going back to school last year after summer when everyone grew and she didn't!

I haven't measured her lately, but I think I will tonight because there's definitely been some progress. Since her growth stunting was minor and gradual, I expect her catch-up to be as well.

taylor- Rookie

Hey! when I was diagnosed I was about a year and a half. I was very very small for my age, in one of the lower percentiles (when I was really sick I lost 5-10 pounds). About 6 months after my biopsy and going on the diet I gained a lot of weight, I was really fat, but I was also really short. I thinned out by 1st grade but was still the shortest in my class. I was always the shortest one until probably 5th-7th grade, Needless to say, it took me several years to catch up, but I did do it, and I'm actually one of the taller ones now and at a healthy weight. If he is gluten intolerant/celiac, going gluten free would definitely help his growth and weight!

shan Contributor

my daughter was 2 and 2 months, when she went gluten free. In 7 months - as in when i bought for her the winter clothes, she had grown two/three clothes sizes and three shoe sizes :) she is still on the shorter side, but she has grown loads!!!

Cath4k Apprentice

My 16 yo dd was never short. Actually as a baby she was always at the top of the chart. But she kind of stopped growing around 14 yo when she hit almost 5'7". This is a normal height and a normal age to stop growing, but I always thought it was odd that she didn't grow taller, as that was what we had expected her to do. This is the same age when we really started to note that something wasn't right as far as her health was concerned. Of course, we can look back now and see what the gluten was doing even way back to babyhood, but hindsight is 20/20.

At 16 yo and after probably a year and a half of staying at the same height, she has grown probably 1/2 inch since going gluten-free. She has only been gluten free for two months! She is now noticeably taller. I noticed it first by looking at her next to her father and then when I was helping her fix her hair and had to reach up higher. Then she saw a friend that she hasn't seen for a few weeks and the friend noticed that she is taller. So we measured her and she has grown.

My 12 yo is also growing. She was another one who started out at the top of the charts all through baby and toddlerhood and then just sank down the chart and stayed down there ever since. It was never too far down to worry about, but she would go YEARS between growth spurts. At 12 yo she JUST grew into a children's size 10. She has noticeably grown also and hasn't even been gluten free as long as my older dd. She and one of her friends were the shortest girls in their Sunday School class and my dd says she is now much taller than her friend rather than just a tiny bit taller.

Cathy

cyberprof Enthusiast
My 16 yo dd was never short. Actually as a baby she was always at the top of the chart. But she kind of stopped growing around 14 yo when she hit almost 5'7". This is a normal height and a normal age to stop growing, but I always thought it was odd that she didn't grow taller, as that was what we had expected her to do. This is the same age when we really started to note that something wasn't right as far as her health was concerned. Of course, we can look back now and see what the gluten was doing even way back to babyhood, but hindsight is 20/20.

At 16 yo and after probably a year and a half of staying at the same height, she has grown probably 1/2 inch since going gluten-free. She has only been gluten free for two months! She is now noticeably taller. I noticed it first by looking at her next to her father and then when I was helping her fix her hair and had to reach up higher. Then she saw a friend that she hasn't seen for a few weeks and the friend noticed that she is taller. So we measured her and she has grown.

My 12 yo is also growing. She was another one who started out at the top of the charts all through baby and toddlerhood and then just sank down the chart and stayed down there ever since. It was never too far down to worry about, but she would go YEARS between growth spurts. At 12 yo she JUST grew into a children's size 10. She has noticeably grown also and hasn't even been gluten free as long as my older dd. She and one of her friends were the shortest girls in their Sunday School class and my dd says she is now much taller than her friend rather than just a tiny bit taller.

Cathy

My 14.5yo son has dropped from the 75 percentile in height to below 25% and from 50 percentile in weight to below 25% in two years. He is 5'4' and is one of the shortest kids instead of being among the taller ones - and so skinny. He lost weight in September/October and went gluten free in November, despite the negative blood tests and the GI's disagreement. I am PRAYING for a growth spurt. Not because being short is so bad but because I want him to be healthy.

I hope it works.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ryebaby0 Enthusiast

Be hopeful! My son was tiny (less than 5lb) at birth, dx at 9 at the 8-10th percentiles and then fell off both height and weight charts. He is now, at 14, in the 50th for weight, and the 80th for height!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

    3. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    4. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.