Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vaccines


gfmelissa

Recommended Posts

gfmelissa Apprentice

My work dictates that we must get a TB/PPV test/vaccine each year. I am supposed to get it in two weeks. is it gluten-free?? does anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

What state are you in? It may be illegal for your company to require vaccination.

You need to read the vaccine package insert before you get the vaccine. Look under contraindictions, it may say it will exacerbate auto-immune diseases.

Vaccination should be your decision.

I feel having an auto-immune disease is contraindiction for all vaccines, regardless of ingredients.

Your local library will be able to help you find the release form for your state. (Yes, most states have release forms.)

Your doctor's office may not want to give you a copy of the vaccine package insert. 3 doctor's offices would not give me copy. They are online on the cdc website.

Laura

lovegrov Collaborator

Having a vaccination is not a contradiction for ALL autoimmune diseases. I've never heard that people with celiac should avoid immunizations. I get the flu vaccine every year with no harmful results.

It appears from another post by the same person that this is NOT a vaccine but a test to prove she is free of TB. In certain types of work, this most certainly can be required if you want the job.

I assume this is the scratch test? If so, it will certainly be gluten-free. And even if it weren't gluten-free, it doesn't matter unless you're swallowing it.

richard

MySuicidalTurtle Enthusiast

Just because you don't injest it doesn't mean you won't have a reaction.

I don't know about those ones but I had the meningitis shot and did have a reaction to it. It wasn't too bad (rash, burning, redness, and swelling) but lasted a week or two and the doctor saidto only be concerned if I felt dizzy.

Just be careful about what is put in your body.

Guest PastorDave

Hi there, I asked a pro about this (a nurse who worked in vaccine preventable diseases as well as a celiac herself) and she said that there is no way that any vaccine should be made with gluten, since gluten is a thickening agent, and the last thing a nurse wants is to have to push something even thicker through a needle.

And momida it is not illegal for employers to require TB tests if they believe that it is possible that thier employees might have come in contact with it. In fact the American Government requires one for anyone who wishes to immigrate to the US. TB is an awful disease and extremely contagious, it is important to keep it contained. Many employers will allow you to opt out of a skin test, but you will need a chest x-ray instead, however the employer may not pay for that.

tarnalberry Community Regular

You can definitely react to elements in a vaccine - that's why you're not supposed to get a flu shot if you have an egg allergy. (It's "grown" in eggs.) I had a pretty annoying reaction to the pneumovax myself, but a side-effect, even an annoying one, needs to be weighed against the value of the vaccine itself. If the vaccine I got reduces my chance of getting pneumonia by 33% over the course of the next five years, given my chances otherwise of getting it, it's well worth the "too painful to even touch for a week" and "too itchy to not touch" arm that I had.

lovegrov Collaborator

I didn't say that you can't react to ingredients in an injection. I said you wouldn't

have a celiac reaction. Allergic reactions are an entirely different thing and are very well documented. A rash, burning and redness is NOT celiac. Allergic and celiac reactions are not the same.

As I think I said, I have also been told by medical people that injections and IVs will never contain gluten. It's simply not something we need worry about.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

What is it when I wear gluten make up or shampoo and get red burnign eyes and itchyness and burned scalp? Can we have allergic AND celiac symptoms to gluten?

lovegrov Collaborator

Yes, you can have celiac AND allergic reactions. Reactions like that on your skin sound like allergic reactions. It is not a celiac reaction,

richard

mommida Enthusiast

I replied in regards to the vaccine, not the t.b. test.

Vaccines work on the premise of a "normal immune" system. Celiac Disease is an auto immune disease.

If you would like to read the vaccine package insert, some do say "may exacerbate auto-immune related illness."

It should be this person's personal and PRIVATE DECISION!

This person is asking for information to make this decision. This is a highly arguemented topic. There is A LOT of information available, and I think the first place she should start looking is the actual information sheet for this particular vaccine.

Different states have different laws. Some states allow religous exemptions, some for contraindictions. It has come to my attention a lot of people don't know what their rights are.

Laura

mommida Enthusiast

What happened to Mariann/Marian/Marrianne's post?

L

lovegrov Collaborator

The original poster clarified in a different post that this is a TB TEST, not a vaccine. Certain jobs can certainly require you to prove you don't have TB.

My own doctor has celiac and he says the warning about vaccines and autoimmune diseases does not apply to people who are faithfully on the gluten-free diet. As long as we're not eating gluten, our immune systems are fine, unlike other autoimmune diseases where your system is out of whack all the time. At least that's how I understand it. I know that flu and pnuemonia vaccines ARE recommended for us (although having just celiac disease does not put you in the high-risk category).

Everybody should consult with his or her own doctor.

richard

gfmelissa Apprentice

Actually, I am the original post-er, and I would like to say that i appreciate everyones different opinion. Thats why we have this message board!! so no one needs to get upset! They are doing the shots on monday and, i am going to ask the nurse what she thinks before I get it.

Thanks for the info guys!

Melissa

mommida Enthusiast

Don't take a nurse, doctor, Richard, Richard's doctor, or my word for your information, if you have a vaccine concern. The package insert will have ingredients, contraindications, adverse reaction information, and effeciency statistics.

If you are receiving a single dose or from a multi-dose also can have an effect.

When you go on a gluten free diet you learn to read the labels, this should not be that different.

You did not mention if you have any other sensitivites or health issues, that would be another reason for you to read the package insert for anything going into your body.

I own stock that pertains to this subject so I do try and stay informed.

Laura

lovegrov Collaborator

I agree that nobody should base their decision on my advice or opinion or even that of my doctor (although because he has celiac he knows a HECK of a lot more about it than your average medical person), I can't agree that you shouldn't listen to what your doctor has to say. That doesn't make any sense. Sure, go ahead and read the insert, but I also would't fully base my decision on that.

No matter what is decided, you don't have to worry about gluten in the injection.

richard

mommida Enthusiast

Doctors usually don't memorize the ingredients of vaccines.

I would have to go in favor of the ingredient list over what the doctors professional opinion of what the ingredient list would be.

Does that make sense to you?

L

lovegrov Collaborator

Doctors might not memorize all the ingredients, but every medical person I've seen who has commented on the subject has said that IV's and injectables NEVER have gluten -- without exception. These same people say that even if they did have gluten, it would not be a problem because you're not swallowing it. The problem with just reading an ingredient list, as we know, is that ingredeints are often hidden.

I'm not a doctor and not an expert. Please don't take what I say as gospel. I'm merely repeating what I've read and what my doctor who has celiac has told me.

richard

mommida Enthusiast

O.K. Let me clarify this for you. A person on a gluten free diet has to read every label for food and products they are going to ingest. People who notice products on their bodies cause reactions need to read the labels too. Every person should pay attention to what is being put into their body. There are safe guidelines for vaccines. They may have a safer vaccine available. ( if you need more specific comparison = the injectable polio versus the ingested live virus polio, now we should only be using the injected )

I had a pediatrician swear up and down that the vaccine for my child did not have mercury in it. Law went into effect to stop the manufacter of mercury in this vaccine. I said I wanted to check the vaccine package. Guess what? It had mercury in the vaccine. We chose to wait for the thimerisol free vaccine. (Doctors do make mistakes.) Does it hurt to double check? How much could it hurt not to?

Taking some time to make an informed decision, that is right for you, is what I am trying to advocate. I get really annoyed people don't know it is their right to decide on this issue. In states that make that a little more difficult you do have the right to go to court and fight on this issue.

Laura

lovegrov Collaborator

Maybe we're talking about different things -- sort of. If I were ingesting or swallowing the vaccine I would most certainly check the ingredients for gluten. If it were being injected, I would not check it for gluten because I know it's not there and because I'm not swallowing it.

I don't know all the legal ins and outs, but private employers have a pretty wide latitude in what they require of employees. They can require certain dress, hair length, invasive drug tests and so on. If an employer tells you you can have a job but one requirement is to get a TB vaccine, I would think that would be perfectly legal (although maybe not if they add this requirement on after you've been hired). You have the right to turn down the job but I simply don't see where you'd have the right to say "No, I'll take the job but I won't follow your vaccine rule."

richard

mommida Enthusiast

People take jobs and yet continue to practice religion.

Christian Science, Jehova's witness, Christian, or Jewish, Muslum, Tao, etc.

There are religions that do not belive in vaccinations.

Can you say discrimination lawsuit?

L

As for reading the label on something injected into the body, we would be foolish not to. Eggs are a food allergy and yet there is a warning on the MMR vaccine. We feel confident they do not put gluten in the vaccines on the market now, what about next year? Part of new vaccine research is to put it in food.

L

tarnalberry Community Regular

Actually, jobs can require vaccinations regardless of religion because there is no requirement that you take the job. Public schools, I believe, are required to have exemptions, but that's because you are required to attend school - and public schooling is required to be accessible to all. A job is a privalege, not a right, and they may require any of a number of things that are not legal in the public sector (including searches that would elsewhere amount to invasion of privacy).

mommida Enthusiast

I think that law would still vary from state to state. vaccines.com can provide a link to vaccine laws for each state.

L

lovegrov Collaborator

I couldn't download everything on that site because of the size of some of the files but everything I saw had to do with the vaccines required in each state, not how you can get out of taking them.

If your proposed job is health sensitive, and your private employer requires certain vaccinations because of that, then if your religion doesn't allow vaccinations, why in the heck would you apply for that job!!!!!!! You are not required in any way or manner to apply for or accept this job. The employer is not going out and forcing you to apply. The state is not requiring you to apply. So there would be no religious discrimination.

My wife is a nurse and if you want to be a nurse, you most definitely need to take (actually, she's REQUIRED to take) the hepatitis vaccination (you'd be a fool if you didn't), and you 'd be an idiot if you didn't take the flu shot every year. Plus, you'd be a threat to the health of your patients because you could spread hepatitis or the flu to them.

richard

mommida Enthusiast

The point was to make an informed decision. The laws, exemption, ingredients, contraindications, benefits, risk of adverse reaction, your personal risk for infection, and options for a possible safer vaccine are all reasonable concerns. The time to ask the question is sooner rather than later.

Your profession is your choice.

Religion is your choice.

I could not even begin to speculate on the choices people make.

If law's are in place to protect someone's right, and a employer chooses to violate those rights, legal action should be taken.

L

mommida Enthusiast

Sorry I was interrupted,

If you need to find a waiver form for your state, you can go to your local library. The librarian can assist your search and provide a hard copy.

Richard,

What if your wife, the nurse, had a change in her health and she was now contraindicated for the mandatory vaccine? The label states clearly the RISK now outweighs any benefit the vaccine can offer. To get the vaccine clearly violates the intended usage.

What options have you left for that person?

Although you seem to be argueing the religous exemption, a medical exemption has the same implications. You state she is a risk to her patients.

Why should she be able to keep her job?

Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.