Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advantages Of Not Being Completely Gluten Free?


Joyous

Recommended Posts

Joyous Enthusiast

I'm sure it depends on the person because some people are much more sensitive to gluten than others, but it seems to me that for people who are just starting out on a gluten free diet, it might be a good idea not to go as far as preventing cross contamination. When I read stories here about having reactions to the most miniscule amounts of gluten, worse reactions than they would have had after eating a wheat product before the gluten free diet, it makes me wonder if those people would have been better off if they wouldn't have been so careful in the beginning (and in the years following).

If you have Celiac Disease and you cut out all gluten products but allow a very small amount of gluten to sneak through via cross contamination, will you still heal? And will you react as strongly on those occasions when you do accidentally consume gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

According to Dr. Chaitan Khosla, who spoke at the Celiac Disease Foundation 2007 Conference:

"Celiac disease is not an allergy. This is a disease where the severity of the disease correlates with the exposure. How do we know that? There are many studies that have been done over the past 20 years and perhaps over the past 35-40 years that show you can reach the same degree of severity with a little gluten over a long duration or a lot of gluten over a short duration. It's cumulative."

Guest j_mommy

No I don't think you will ever totally heal. I reacted prediagnosis every time I ate ANY gluten. With celiac it doesn't matter how sensitive you are...you still have the disease and stil shouldn't eat ANY gluten....including CC. THe risks are too high.

blueeyedmanda Community Regular

I take CC very seriously, for our new members just learning the ropes, having the CC exposure could mean the difference to them feeling better or worse. It is very important to stress the CC issue, it helps people weed out what is making them sick, they could be suspecting a safe food and all along it can be crumbs from the toaster or contaminated pots.

pugluver31902 Explorer

You need to be one hundred percent gluten free for an extended period of time in order for your risk of cancer and other autoimmune diseases to drop back to a more normal level. Getting even the tiniest bit of gluten for any extended period of time will never lower your risks.

debmidge Rising Star

The smallest amount of gluten, wether or not it's accidential or deliberate ( in an attempt to deflect a really bad reaction if you were to go gluten free and then get "glutened" and have a bad reaction)...the smallest amount of gluten will "jump start" the immune system to protect the body by producing the antibodies which make the celiac person sick and cause damage to the small intestine.

For a celiac, there's no benefit in the short run or in the long run to consuming gluten at any level for any reason. You're just going to have your body get bombarded over and over again.

kbtoyssni Contributor

Ditto what everyone else said - if you eat even a little bit of gluten, you won't ever heal. There's no point in not going fully gluten-free because you're still going to have all the medical issues associated with eating gluten. And not everyone has worse symptoms after going gluten-free. My symptoms are much less after two years gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



njbeachbum Explorer

Is there anyway to really know if you are getting a little bit of gluten without knowing it? I've been pretty confident that I've changed my diet to be completely gluten free, however, i haven't changed all of my pots and pans, but scrubbed them all thoroughly. I bought new wooden spoons and i use a toaster oven (and i scrubbed down the rack). Anyway, I haven't had much improvement in symptoms but I also have many years of damage to undo.

As a side note, I don't really know what a "glutening" feels like yet, however, I made lentil soup the other day with Jack Rabbit lentils (which are supposed to be free of any grain contamination). the next morning i woke with a burning feeling in my midsection and i was very gassy and ended up running to the bathroom a few times. but later in the day i felt ok. so, was that a glutening, or could it be that i can't handle legumes yet? or maybe it's just that a soup with lentils and brown rice is fiber overkill for someone recovering from celiac?? inquiring minds wanna know!

thanks!

Jestgar Rising Star
I or maybe it's just that a soup with lentils and brown rice is fiber overkill for someone recovering from celiac?? inquiring minds wanna know!

thanks!

I'd bet on that. It's taken me a long time to be able to eat a lot of fiber at once. Try lentils OR brown rice, but maybe not both together. And maybe not as much as you'd normally eat. You wouldn't use an abrasive scrub on a healing cut on your skin, think of high fiber foods as a bit abrasive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.