Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Get Rashes, But They're Not That Bad

Joyous

By Joyous
in Dermatitis Herpetiformis

Recommended Posts

Joyous Enthusiast
Joyous
Posted

I've been getting rashes for a long time, but they've never really bothered me that much. I guess I'm so used to it I don't really think about it. (I think a doctor once suggested infected hair follicles?) It's little red dots that are spread out, never patches (unless I wear jewelry).

It sort of comes and goes on my thighs, but it's there more often than not. Occasionally I get a mild rash on my stomach as well. I always have acne and a mild rash on my back and chest. I don't wear jewelry because my skin is so sensitive that I get a rash (a pink, itchy, raised patches) from watches/braclets and necklaces.

Does this sound like it's related to celiac disease, or do I just have sensitive skin?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Joyous Enthusiast
Joyous
Posted
  • Author

And as long as I'm asking about skin, what about the purple blotches that are especially noticeable in winter? :D

Ed-G Newbie
Ed-G
Posted
I've been getting rashes for a long time, but they've never really bothered me that much. I guess I'm so used to it I don't really think about it. (I think a doctor once suggested infected hair follicles?) It's little red dots that are spread out, never patches (unless I wear jewelry).

It sort of comes and goes on my thighs, but it's there more often than not. Occasionally I get a mild rash on my stomach as well. I always have acne and a mild rash on my back and chest. I don't wear jewelry because my skin is so sensitive that I get a rash (a pink, itchy, raised patches) from watches/braclets and necklaces.

Does this sound like it's related to celiac disease, or do I just have sensitive skin?

It seems to me that you may have DH. I've always had, especially during my teenage years when I wasn't watching my diet, these red bumps and splotches on my back and sides. People even called me "acneback" I had so much. Does it itch at all? While mine did not itch, it was awfully dry.

Ed in MD

blueeyedmanda Community Regular
blueeyedmanda
Posted

I think it sounds like DH could be possible.

Joyous Enthusiast
Joyous
Posted
  • Author

It looks a lot like Maggi315's photos! :o Maybe I should try to take some. I have some of my face, but I can't seem to get my camera to take a clear photo of my legs, and I haven't tried my chest or back.

Right now my face actually looks a lot clearer than it usually does for some reason, but here are a couple face pics. The second one has circles on it to show which pimples (?) are the most recent. A lot of what's there is actually discoloration from previous pimples (?).

http://i14.photobucket.com/albums/a317/cha...ony/joy027a.webp

http://i14.photobucket.com/albums/a317/cha...ony/joy031a.webp

Yes, it itches, but not too bad. It usually itches the most around my braline. The rash by my knees also itches sometimes, but not horribly.

This is so funny... I've tried so many topic medications and remedies, and nothing's ever worked. I've even tried oral medications without success. (But hey, nothing's better for the digestive system than taking antibiotics for a year straight! :lol: )

frec Contributor
frec
Posted

I don't know about DH, but my acne improved about 80% when I went gluten-free--a lovely bonus.

pixiegirl Enthusiast
pixiegirl
Posted

I never had DH diagnosed either but I do think I had it, for years I had dark purple spots on my skin, it didn't look like classic DH but it did go away (slowly) after I went gluten-free. On top of the dark purple rashes I also had small red bumps and other various rashes, some itchy, some not. And for the most part they are all gone too.

I think when we are ingesting gluten and shouldn't be it just messes up our entire immune system.

Susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janeti Apprentice
Janeti
Posted

Joyous...

About three weeks ago we went out to dinner and I got the impression that the restaurant was not gluten savvy....the next morning when I woke up I had an itchy rach all over my chest. I am sure that it had something to do with being glutened :blink: I am not sure though if it would considered DH? The rash lasted about 2 weeks....annoying!!

blueeyedmanda Community Regular
blueeyedmanda
Posted

I have to add, I too never had DH and the skin problems which some members experience, occasionally I had the itchy patches...My acne also improved and my face is fairly clear (it was never too bad but still) the only time I get acne now is around my "time".

Joyous Enthusiast
Joyous
Posted
  • Author

What I'm wondering is if a lot of what people think is acne is actually mild DH. I could be way off, but it would certainly explain why so many people here say that their acne went away after they stopped eating gluten, and in my case it would explain why nothing the dermintologist could come up with would get rid of my acne, not even a year's worth of different antibiotics. He said some acne is resistant to treatment. I wonder what percentage of the population has "acne" that doesn't respond to acne medication?

Joyous...

About three weeks ago we went out to dinner and I got the impression that the restaurant was not gluten savvy....the next morning when I woke up I had an itchy rach all over my chest. I am sure that it had something to do with being glutened :blink: I am not sure though if it would considered DH? The rash lasted about 2 weeks....annoying!!

Could very well be! Did it leave purple spots after it went away?

Janeti Apprentice
Janeti
Posted

Actually yes, they did leave spots. That also happened on my legs. I hate the way my skin looks now, its such a mess :(

Joyous Enthusiast
Joyous
Posted
  • Author

Are you like me, eating gluten so you can be tested?

Janeti Apprentice
Janeti
Posted

I was diagnosed 2/07 with celiacs. It has been a real rocky road since that time. At the time of my diagnosis I was b12, calcium, vit d deficient. I was very sick, and thought that I wasn't going to make it. It has been 10 months, and I feel that I have gained much knowledge, but there are times when I do get glutened, and my system lets me know, theres no escaping it. I also was tested through enterolab. I now have other allergies such as egg and soy. I am hoping that when my gut heals, it will help with the allergies. I am having another endoscopy this friday(12/28), they will be looking at the intestines, and hopefully will tell me good news. I really have not been feeling well these last couple of weeks....sometimes I can't figure out what the problem is though, what it was that I ate to make me feel like this. Will they be doing an endo on you?

Joyous Enthusiast
Joyous
Posted
  • Author
I was diagnosed 2/07 with celiacs. It has been a real rocky road since that time. At the time of my diagnosis I was b12, calcium, vit d deficient. I was very sick, and thought that I wasn't going to make it. It has been 10 months, and I feel that I have gained much knowledge, but there are times when I do get glutened, and my system lets me know, theres no escaping it. I also was tested through enterolab. I now have other allergies such as egg and soy. I am hoping that when my gut heals, it will help with the allergies. I am having another endoscopy this friday(12/28), they will be looking at the intestines, and hopefully will tell me good news. I really have not been feeling well these last couple of weeks....sometimes I can't figure out what the problem is though, what it was that I ate to make me feel like this.

Sorry to hear you're having such a rough time. Have you looked into L-Glutamine?

Will they be doing an endo on you?

My first GI appointment is on the 7th, and whether or not I get an endoscopy will probably depend on the bloodwork. (And on whether or not I still have insurance. Good times. :lol: )

Janeti Apprentice
Janeti
Posted

Goodmorning :) What is L-Glutamine? Is it a probiotic? Right now I am talking co-q10, magnesium, sublingual b12, viactiv, and oregano oil. I'm not sure if any of it is helping me. I work in a hospital on Long Island. A respected cardiologist told me about the co-q10, and that he is a believer in it. I don't know, I think that all of this can make you crazy :huh: Well tomorrow is the big day for the endo, and I am nervous :ph34r: I hope all is well...

elizn Newbie
elizn
Posted

Hi there! My first time writing. I

Joyous Enthusiast
Joyous
Posted
  • Author
Goodmorning :) What is L-Glutamine? Is it a probiotic? Right now I am talking co-q10, magnesium, sublingual b12, viactiv, and oregano oil. I'm not sure if any of it is helping me. I work in a hospital on Long Island. A respected cardiologist told me about the co-q10, and that he is a believer in it.

elizn is correct, L-glutamine is an animo acid. It's good for a lot of things, and recently my chiropractor told me that it's important for people whose digestive tracts are healing because it works directly on the digestive tract, sort of like a topical does on skin.

I haven't heard of viactiv or oregano oil, but the other ones I've read about in the past, and it seems like a good idea to take them.

I don't know, I think that all of this can make you crazy :huh:

Or at least feel like you are! I've been feeling crazy for years though, what with so many negative tests and doctors telling me that my symptoms are just depression or stress or anxiety. Ugh. I may have to be more extremist about my diet than I am used to being, but at least now I have an answer. :)

Well tomorrow is the big day for the endo, and I am nervous :ph34r: I hope all is well...

Being nervous makes you a ninja? Lol I want to become a ninja when I get nervous! ;):P

Seriously though, I hope your endo went well.

  • 3 months later...
moonlight Rookie
moonlight
Posted

Hi all,

My husband always had such red things on his back, close to shoulders, and neck, and on his belly...Doctors said the reason was his dry skin in 1993..Anyway, time passed..and 2005 he developed gluten intolerance. Those red rashes were a sign for us, we had no idea.

Now we watch his diet very well, he has no symptoms, he has good health - but if he east too much fruits (2 servings a day) those red rashes come back.

You may want to watch how much simple carb you consume.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,544
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.