Elimination Diet Gone Wrong?

[misdiagnosed6yrs]

  ravenwoodglass said:

It makes perfet sense if you are celiac. Oats would be a delayed reaction that may have lead to your symptoms after you ate the next day. The number of folks who can tolerate oats is not real high you should drop those until you are symptom free.

Also the mayo and the salsa, did you make sure that they are derived from non gluten grains? Not all celiacs can tolarate gluten vinagers.

With your tummy being the way it is you shouldn't even consider salsa, whether gluten free or not right now.

You also should be dropping dairy for a couple of months at least. You need the villi that are damaged to digest dairy, without them a couple of hours after consuming it you will have symptoms. Your doctor should have told you about that when you were diagnosed but he probably didn't.

Excellent advice. I'll take it.

But I thought Bob's red mill oats were okay. I don't need to be eating oats, I don't even care for them. It was for a cereal substitute.

The salsa thing was stupid. I realize that.

The doctor told me to look up a gluten free diet and do it. He told me to go to a dietician but after reading stories about them being uninformed, I didn't go. I did a lot of research but ignored the dairy stuff. Let's be honest, the gluten-free is enough to take in, then add dairy free? ha.

[tarnalberry]

but if you're trying to do an elimination diet, the first things you have to exclude are the top eight allergens, and that includes dairy.

[misdiagnosed6yrs]

  tarnalberry said:

but if you're trying to do an elimination diet, the first things you have to exclude are the top eight allergens, and that includes dairy.

I realize I started this thread as an elimination diet and yes I did cut out dairy until my doctor said go back to eating food. Thats when I had string cheese. I was going to start a new thread but I didn't want to have to explain why I was eating the foods I was eating.

If what I am feeling is a reaction from the glutening on dec 22nd.. wow. thats a long time. If what I am feeling is because the plaster in my house has wheat in it, then that's another story. BUT if neither is the case and what I am feeling is because I'm eating something wrong... I stll need the input.

I was getting worse as each day came. Today my stomach is so tight, I can't do anything. I am afraid tomorrow will be the same and I can't sit on my couch all day.

I can't escape from this house that may or may not have gluten in the air. They are sanding tonight and possibly tomorrow. We set up plastic and sheets at four locations to keep the dust from coming upstairs. As soon as the sanding is done, I have a team of people ready to clean it up. Twice.

Is there anything I can put on my rice that will make it taste not so dry and bland? I'm gonna try to stick to the brat diet for a few days.

Isn't that too much fruit though? Bananas and applesauce?

[tarnalberry]

can you stay at a friend's house? a hotel? just getting out of that environment might help...

[ravenwoodglass]

  misdiagnosed6yrs said:

I realize I started this thread as an elimination diet and yes I did cut out dairy until my doctor said go back to eating food. Thats when I had string cheese. I was going to start a new thread but I didn't want to have to explain why I was eating the foods I was eating.

If what I am feeling is a reaction from the glutening on dec 22nd.. wow. thats a long time. If what I am feeling is because the plaster in my house has wheat in it, then that's another story. BUT if neither is the case and what I am feeling is because I'm eating something wrong... I stll need the input.

I was getting worse as each day came. Today my stomach is so tight, I can't do anything. I am afraid tomorrow will be the same and I can't sit on my couch all day.

I can't escape from this house that may or may not have gluten in the air. They are sanding tonight and possibly tomorrow. We set up plastic and sheets at four locations to keep the dust from coming upstairs. As soon as the sanding is done, I have a team of people ready to clean it up. Twice.

Is there anything I can put on my rice that will make it taste not so dry and bland? I'm gonna try to stick to the brat diet for a few days.

Isn't that too much fruit though? Bananas and applesauce?

You could try a bit of extra virgin olive oil on the rice, just a small amount. You could also add just a touch of gluten-free cinnamon and a sprinkle of sugar, just a little bit, to make it a bit sweet if you absolutely can't stomach it plain.

I am giving you a link to the NIH website. You can do a search there for the exact brand of drywall compound and drywall that you are using. After you get to the page you need to be sure to look at the whole thing, near the bottom will be a listing of each thing that is in it and what it is made of. For example one brand I looked at yesterday stated starch - tapioca. That particular brand would be safe. Here's the link:

Open Original Shared Link

You may need to go to the home page tab but may be able to just enter the product on the page that comes up.

You should 'hide' while the dusting is going on if you can't do anything else. If you can't leave do let others do the clean up and I would consider getting a respirator at your local home supply company. Don't get the cheapest you can find you want something pretty good to make sure it is filtering what it should. Also I would literally tape off the kitchen if you can. Hang plastic sheets over that door even if it is not adjacent to the work being done. Tape all the way around it and don't remove the sheet until at least an hour after everything has been cleaned up. You also want to ask the folks doing the cleaning to spray the rooms with just a light spray of plain water. It will draw the powder out of the air and make it easier to vacuum up. Make sure you use a shop vac, the dust will ruin your regular vacuum and it will throw particles all over every time you use it after, if it still works. If household members are doing or helping with the process have them remove their clothes and place them immediately in the washer or wear old clothes they can remove and toss. After they are naked have them run through the house and get immediately into the shower. It is to cold to hose them off outside. My Dad was a construction worker and although we didn't know at the time we were all celiacs the methods I mentioned were what he had us do on a routine basis when we were doing drywall.

[emorgan816]

"Within just a few months strictly gluten free the only things I am allergic to now is a few perfumes, cat spit and my yew bushes when they bloom."

How do they test for "cat spit" ?! That cracked me up for some reason

Elizabeth Secora

[emorgan816]

  misdiagnosed6yrs said:

Excellent advice. I'll take it.

But I thought Bob's red mill oats were okay. I don't need to be eating oats, I don't even care for them. It was for a cereal substitute.

The salsa thing was stupid. I realize that.

The doctor told me to look up a gluten free diet and do it. He told me to go to a dietician but after reading stories about them being uninformed, I didn't go. I did a lot of research but ignored the dairy stuff. Let's be honest, the gluten-free is enough to take in, then add dairy free? ha.

I did read in my celiac newsletter this month the Bob's Red Mill did just come out with gluten-free Oats - they are Rolled Oats and the Steel Cut Oats. They are new so I think the oats you are eating may not be totally gluten-free. Here is the link to their exciting news: Open Original Shared Link

Elizabeth Secora

[ravenwoodglass]

  emorgan816 said:

"Within just a few months strictly gluten free the only things I am allergic to now is a few perfumes, cat spit and my yew bushes when they bloom."

How do they test for "cat spit" ?! That cracked me up for some reason

Elizabeth Secora

I have an older kitty that was taken from her mom too soon. She sucks on my hands when she gets the chance, like when I am at the computer. Within minutes my eyes start to water and my nose fills up. That's enough of a test for me. If she just sits there quietly I am fine. I had another stray we fostered that did the same thing, and I would react the same way. The cat's are gluten-free so I know it's not the gluten. It's the cat spit.

[ravenwoodglass]

  emorgan816 said:

I did read in my celiac newsletter this month the Bob's Red Mill did just come out with gluten-free Oats - they are Rolled Oats and the Steel Cut Oats. They are new so I think the oats you are eating may not be totally gluten-free. Here is the link to their exciting news: Open Original Shared Link

Elizabeth Secora

I just got some of those to try. I haven't tried oats since I was diagnosed. For some of us the issue is not just CC but that our guts can't handle the protein in the oats. It is similar to the gluten. Many of us can eat them safely but the only way to know for sure is to challenge them when we are feeling good. They shouldn't be used early in the diet because of the possibility of a reaction.

[hathor]

  emorgan816 said:

I did read in my celiac newsletter this month the Bob's Red Mill did just come out with gluten-free Oats - they are Rolled Oats and the Steel Cut Oats. They are new so I think the oats you are eating may not be totally gluten-free.

This isn't quite right. They sell BOTH gluten-free oats (which say gluten-free in large friendly letters on the package) and regular oats (which are cross-contaminated, like all regular oats). There is no indication that they plan to discontinue selling the regular oats.