Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On My Way To Being Diagnosed

maggie123

By maggie123
in Coping with Celiac Disease

Recommended Posts

maggie123 Newbie
maggie123
Posted

New to this site. have been reading alot about celiac recently and need to know more.

I was diagnosed with hypothyroidism about 8 years ago. recently my sister was diagnosed with celiac disease. With her persistence I asked the doc to do the bloodtest on me and it came back positive.

I have an endoscopy next week.

Knowing what I know now I will not be surprised if endo is positive. for the past 8 years I have blamed my thyroid problems for joint pain, constipation, bloating, gas, general fatique weight that

just will not budge! It is all so clear to me now!

So, I look forward to gathering all the info necessary for me to regain my heslth back!

Maggie123

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome Maggie,

You won't find a better place to learn about Celiac. You will find great help here.

You already have a diagnosis of Celiac with positive blood work. An endoscopy can also confirm with a biopsy and sometimes visibly.

Let us know if we can help you with anything.

Darn210 Enthusiast
Darn210
Posted

Welcome Maggie!!

Kudos to your sister for being persistent!! And kudos to you for listening to your sister!! Lots of info here along with a lot of helpful and caring people. Tell your sister to check out this forum, too.

GlutenWrangler Contributor
GlutenWrangler
Posted

I agree, if you have positive bloodwork, you are already diagnosed with celiac disease. An endoscopy is trivial at this point in terms of diagnosis, but it may be helpful to assess your damage. If you have any specific questions, don't hesitate to ask. Otherwise I definitely recommend doing some reading on this site, it's a great resource. Good luck,

-Brian

markr Newbie
markr
Posted
New to this site. have been reading alot about celiac recently and need to know more.

I was diagnosed with hypothyroidism about 8 years ago. recently my sister was diagnosed with celiac disease. With her persistence I asked the doc to do the bloodtest on me and it came back positive.

I have an endoscopy next week.

Knowing what I know now I will not be surprised if endo is positive. for the past 8 years I have blamed my thyroid problems for joint pain, constipation, bloating, gas, general fatique weight that

just will not budge! It is all so clear to me now!

So, I look forward to gathering all the info necessary for me to regain my heslth back!

Maggie123

Boy, do I relate to what you are saying. While you are being tested, make sure you check for diabetes. I have Type 1 diabetes for 26 years, and I just found out that I have celiac. It effects about 12 -15% of of Type 1 diabetics. Like you said: it is all so clear to me now! :huh:

Mark

BSinCO Newbie
BSinCO
Posted

I am glad to hear that you are seeking support so soon. I have been on a gluten, soy, dairy, corn, and tomato free diet for a year and a half now. I am just joining the forum tonight. I am still having health issues and am looking for some help and advice myself.

I have done so much research over the past year. Glutenfreegirl.com gives some great advice and links to other informative sites.

I hope you start to feel better soon.

:D

New to this site. have been reading alot about celiac recently and need to know more.

I was diagnosed with hypothyroidism about 8 years ago. recently my sister was diagnosed with celiac disease. With her persistence I asked the doc to do the bloodtest on me and it came back positive.

I have an endoscopy next week.

Knowing what I know now I will not be surprised if endo is positive. for the past 8 years I have blamed my thyroid problems for joint pain, constipation, bloating, gas, general fatique weight that

just will not budge! It is all so clear to me now!

So, I look forward to gathering all the info necessary for me to regain my heslth back!

Maggie123

maggie123 Newbie
maggie123
Posted
  • Author
Welcome Maggie,

You won't find a better place to learn about Celiac. You will find great help here.

You already have a diagnosis of Celiac with positive blood work. An endoscopy can also confirm with a biopsy and sometimes visibly.

Let us know if we can help you with anything.

Thanks for all your support. i will definitely keep you posted. Question - Kraft crunchy peanut butter-

safe for me to eat? It has been a morning staple for me for quite sometime on toast.

This is a great site and I know I will benefit from all you veteran Celiacers.

Maggie 123

Canada

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


maggie123 Newbie
maggie123
Posted
  • Author
Welcome Maggie!!

Kudos to your sister for being persistent!! And kudos to you for listening to your sister!! Lots of info here along with a lot of helpful and caring people. Tell your sister to check out this forum, too.

Had it not been for my sister I would never suspected celiac nor my doctor as he was quite surprised and I think he will really be surprised with endo results. He is a great doc but he

thinks this bloodwork was positive due to family markers showing up???I didnt say anything - the proof will be in the endo. It just goes to show that not all docs are familiar with this disease.

But it will be a learning curve for him and hopefully help others in his practice will benefit.

Big learning curve for me too!

Maggie 123

Canada

ravenwoodglass Mentor
ravenwoodglass
Posted
Had it not been for my sister I would never suspected celiac nor my doctor as he was quite surprised and I think he will really be surprised with endo results. He is a great doc but he

thinks this bloodwork was positive due to family markers showing up???I didnt say anything - the proof will be in the endo. It just goes to show that not all docs are familiar with this disease.

But it will be a learning curve for him and hopefully help others in his practice will benefit.

Big learning curve for me too!

Maggie 123

Canada

If by some chance that endo comes back negative please ignore that result and do the diet anyway. The endo can miss a lot of us, so can the blood work but with a positive blood test you are already diagnosed. The proof is really in your response to the diet, don't let your doctor talk you out of it if the endo is not positive. There are doctors who with a positive on blood work but a negative on endo will tell folks it is okay to continue to eat gluten until the villi are damaged enough to show positive on endo. Don't let yours do that to you. You have found a great place for knowledge and support, welcome.

maggie123 Newbie
maggie123
Posted
  • Author
Welcome Maggie,

You won't find a better place to learn about Celiac. You will find great help here.

You already have a diagnosis of Celiac with positive blood work. An endoscopy can also confirm with a biopsy and sometimes visibly.

Let us know if we can help you with anything.

I need to know more about insomnia and the connection with celiac.

Any info on this. Thanks in advance.

Maggie 123

Darn210 Enthusiast
Darn210
Posted
I need to know more about insomnia and the connection with celiac.

Any info on this. Thanks in advance.

Maggie 123

Maggie, there is a whole section devoted to sleep. I would browse through some of those threads and/or do some searches.

maggie123 Newbie
maggie123
Posted
  • Author
Maggie, there is a whole section devoted to sleep. I would browse through some of those threads and/or do some searches.

thanks Janet I will go there.

maggie 123

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    4. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    5. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.