Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nasty, Horrible Headache -- Help!


Sailing Girl

Recommended Posts

Sailing Girl Apprentice

I glutened myself accidentally (well, sort of) on New Year's Eve. A friend put a *huge* amount of time and effort into producing what she said was a "gluten-free" meal in her gluten-filled kitchen, even after I asked her not to do so and told her I would bring food for me and for my DD.

I knew the huge chance I was taking by eating any of it (and did check on all the ingredients), but in the end decided not to offend her and hurt her feelings. I ate very lightly and stuck to stuff like the plain broccoli and the roast. Didn't chance the gravy (which she made with rice flour), nor the dessert (said I was full and gosh that was good and thank-you-so-much-for-making-it-all-gluten-free). <sigh>

Well, the rest is predictable. Sick sick sick since about 3a that morning.

I'm mostly over it, but I can't seem to shake the headache/migraine. This is the worst one I've had since last summer (probably the worst glutening I've had since then, too). I've tried lots of caffeine, I've tried raising my blood sugar, and I don't have any meds in the house.

Does anyone have any sure-fire headache remedies to pass along? I'm desperate to shake this thing!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If this is a confirmed migraine that has lasted for 3 days you may want to consider calling the doctor. Mine, thank goodness never lasted more than a day, I really feel for you. A friend used to get ones that would go on for days and often her doctor would be able to give her something that would stop the pain quickly and not have it recur on waking. I hope you get over yours soon.

Glutenfreefamily Enthusiast

I would call your dr. My dr prescribes imitrex or sometimes darvocet for migraines. I have yet to take either since my headaches only usually last a day or two and caffeine usually helps.

GlutenWrangler Contributor

If it gets too severe, don't hesitate to go to the ER. They'll probably give you morphine. I had an extremely bad migraine once. I couldn't even walk and my father had to wheel me in to the ER in a wheel chair. But they really helped me out, so I'm sure they can help you out too. I hope you feel better soon.

-Brian

Sailing Girl Apprentice

Thanks for all your replies and concern!

It hasn't been severe enough to prod me into seeing an MD or going to the ER. It's just ... there, in a constant, annoying kind of way. It improved enough yesterday that I was able to ignore it (mostly), and it's *almost* gone today. But for future reference, I would dearly love to know how to knock it out before it's run its course -- the three-day marathon headache (combined with fatigue) is my worst glutening symptom.

Jane

lizard00 Enthusiast
I'm mostly over it, but I can't seem to shake the headache/migraine. This is the worst one I've had since last summer (probably the worst glutening I've had since then, too). I've tried lots of caffeine, I've tried raising my blood sugar, and I don't have any meds in the house.

I get the same headache... I know exactly how horrible it is. Mine usually starts within 30 minutes to an hour. I have tried all the same things, thinking if I drink more water or eat some fruit I can flush it out faster and unfortunately, it doesn't work. I've tried all types of meds I could find... aspirin, tylenol, excedrin (pick a type) got a head/neck massage, ANYTHING. so i've decided that rather than take drugs that don't work and have to rid my body of THAT too, i just have to let it run through. it's awful though.

the headaches and my extreme exhaustion were actually the reason I went gluten-free. Both have cleared up since then.

i really hope you are feeling better!!

hayley3 Contributor

I would do anything to never have another migraine! Mine normally lasted 3 days. Unbearable. I started noticing that my stomach was involved and figured they must be related. I just got over one.

I have tried everything. I managed to make mine shorter but I was never sure which one did it. I started keeping a headache diary. I went back and forth between a muscular reaction or swollen sinuses from an allergic reaction, and I'm still not sure which it is.

I normally do a Neti pot first, then Motrin, then Nerve Control herbs (that's what they are called by Nature's Sunshine), I double up on my magnesium/potassium pills, and drink Chamomille tea. I also rub my scalp. I used to take Petadolex by Enzymatic Therapy but it was too expensive, it relaxes your blood vessels.

When I gave up coffee, if I got a headache, I could just drink a cup of coffee. Even Dr. Weil recommends this, but since I drink coffee regularly, it doesn't work for me. The caffeine shrinks the blood vessels.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I would do anything to never have another migraine! Mine normally lasted 3 days. Unbearable. I started noticing that my stomach was involved and figured they must be related. I just got over one.

I would also get the multi-day, sometimes incapacitating migraines. I was getting them often enough - at least once a week, often multiple times a week (which is a problem when they last 2-4 days) - that I ended up going on Topomax as a preventative. It's been quite effective, and I now get migraines on the order of a handful a year.

(I developed migraines long after going gluten free, and they became much more frequent long after going dairy free. I tested out dietary triggers and environmental triggers I could control. All with no luck. And caffeine didn't work for me either.)

hayley3 Contributor

I think when the caffeine worked for me, I was on a very strict vegetable/fruit only diet. So maybe that's why it worked. It's interesting that you say you were still getting the headaches even though you were gluten free. Very interesting..... I just got one and traced it to consuming corn syrup. Last night I got a bad case of gerd, and I had ate some corn, and also had some peppermint candy with corn syrup. It's so hard to narrow it down unless that's all you ate, but the connection is making me wonder if it's the corn instead of the wheat. I can dream, can't I! :D

tarnalberry Community Regular
I can dream, can't I! :D

Better than that! You can test it!

Make sure to eat foods that you *know* you're fine with for at least two or three days, then try corn, and plenty of it. (That's a quick and dirty way to test one item, anyway.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,678
    • Most Online (within 30 mins)
      7,748

    Kristina S
    Newest Member
    Kristina S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.