Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Delayed Growth, Vomiting For 2 Months


sez

Recommended Posts

sez Newbie

My son is 6 years old and has been vomiting every day for about 2 months now. Some days are better than others. It doesn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I agree that your son's problem could be celiac disease. Failure to thrive (or failure to grow, really) is one of the most common symptoms of celiac disease in young children. Since the blood tests are extremely unreliable in young children, your son's test results could well be false negative. Since one was elevated, I would either demand an endoscopy with biopsies for celiac disease (within a week), or put him on the gluten-free diet to see if it helps. You have to do something, as vomiting so often could damage his stomach and erode his esophagus.

If you go for the biopsy, put him on the gluten-free diet as soon as it is done. The diet is really the best and most reliable test, especially in kids.

Guest Rosany

Dear Sez,

I agree with Ursa Major It does sound like possible celiac disease. I am really new to this as well but wanted to stop in and send big hugs your way. I hope things work out for your little boy. Hugs and have a great night.

Rosa

gfgypsyqueen Enthusiast

I would recommend getting the formal biopsy test for Celiacs and gene tests. If those come back positive, the child will not be able to argue with you when he is older about whether or not he really has this disease. If the tests are inconclusive or negative, I would still recommend trying the gluten-free diet for 6mths or so. Keep a log to see the changes in behavior, growth, etc.

In my case, I have Celiacs so I was more aware of what to look for in my kids. My youngest had barely grown for over a year. She ate non-stop and was tiny for her age. The Drs said she was just petite. With the amount of food she ate (always starving) she should have been tiny and way over weight! After insisting that she be tested for Celiacs, getting the biopsy (inconclusive) and the gene test (DQ2 positive) the Dr insited that she did not have Celiacs and could not possibly have it. After many arguments with that Dr and family, I put her on the diet. EVERYTHING has changed. She has reactions to gluten. She has grown several inches and gained about 5 lbs since going gluten-free in August. Her rashes are gone and her behavior has done a 180 degree change for the better.

So IMO, you seem to be taking drastic measures for you child now. Try the testing and then the diet for Celiacs. It is only food and no side effects. It may be the answer you have been lookng for.

Ask more questions or ask for advice on this site. Everyone is really helpful and someone has usually gone through the problem before.

kenlove Rising Star

I'm 50 years older than your son but my sympathies are with him. I went through the vomiting spell for 6 months daily.

As soon as I went gluten free it stopped after 2 days of being off of all gluten. I'm sure someone on the forum could give you the name of some doctor who specializes in children and understands celiac.

Good luck

Ken

My son is 6 years old and has been vomiting every day for about 2 months now. Some days are better than others. It doesn
Janeti Apprentice

My son was sick from the day I put a bottle in his mouth...long story. But at 22, we now know he has celiacs. When he was in high school, he was only 5 feet tall, and wanted so badly to play football, he just was not growing. Today, he is over 6 feet tall, and healthy. No more nausea, stomach aches, running to the bathroom, and that nasty DH that was all over his neck and in the palm of his hands. It is so worth it to have him tested...it could save years of sickness.

Darn210 Enthusiast

Just wanted to chime in . . . whereas it could definitely be celiac, it may be some other type of food intolerance. My daughter reacts with vomitting/spitting up when she has something with a lot of blue dye in it. I know someone else whose child reacts that way to dairy. Both of those are somewhat of an immediate reacation (within an hour? of ingestion) but I could see a delayed reaction, too. You might want to keep a food diary to see if you notice any patterns . . . always worse on a day after a lot of milk or wheat or whatever. Trying a gluten free diet would certainly answer that question, but if that is unsuccessful, you might try eliminating some of the other big possibilites such as milk. I also want to mention, that foods don't always show up as allergies. The child that reacted with vomitting to milk was Not allergic and an allergist won't even test for a food dye, that is automatically considered an intolerance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vanillazeis Rookie
My son is 6 years old and has been vomiting every day for about 2 months now. Some days are better than others. It doesn
Electra Enthusiast
My son is 6 years old and has been vomiting every day for about 2 months now. Some days are better than others. It doesn't seem to slow him down though. He eats all the time even after vomiting. He will occasional complain of stomach pain but not every day. He has seen his pediatrician several times and they tried medicine for gastric reflux, did an upper GI and he gave up and was going to refer him to a GI doctor. I did some research myself and ran across some literature on celiac and it sounds like a real possibility. I requested my son be tested and the lab results showed only the IgG was elevated. Everthing else was normal. He has always been underweight and has delayed growth problems. He was even put on growth hormone for delayed growth in which doctors could not find a cause. I am frustrated that no doctors have not figured this out before now. I have spent a lot of money on growth hormone and probably all he needed was a gluten free diet. If you don't mind could you tell me your thoughts on this. Thank you very much

My son has been vommiting since birth often more then once a day. As he gets older it slows down, and we have yet to get a diagnosis. After I was diagnosed with Celiac I was convinced that my son also had it, so I got him blood tested and it came out negative. I'm still afraid he has it, but at this point we can't seem to get a positive result on anything. Good Luck and I hope we both get answers soon!!

Oh and he had a biopsy too back when he was 3 but we need to get that repeated. The Ped GI we had is the only Ped GI specialist in our entire state and he "claimed" that biopsies in children 3 and under are "ACCURATE" which goes against all the literature I read.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,650
    • Most Online (within 30 mins)
      7,748

    Alexandersgirl
    Newest Member
    Alexandersgirl
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
    • Julie 911
      Good day! New members here and I have a question about medication. My gastroenterologist made me stop some medication during the gluten challenge beforenthe screening test but I have a little surgery tomorrow and I need to know if I can use tylenol for half a day or if it will give me false results using it.   Thanks 
    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.