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Sooo, How Long Did It Take You?

Johnny Cool

By Johnny Cool
in Coping with Celiac Disease

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Johnny Cool Rookie
Johnny Cool
Posted

Being as I'm new to this disease, I've been on the no gluten diet for a month now and feel the same as before <_< . The wierd thing for me is, besides the "foggyness" and being dizzy and light headed is, my face and mostly my lips are numb most of the time. Has anyone had that?

I also need a sleeping pill each night, or I don't sleep very long.

So how long have you been on the diet before you started feeling "normal" again??

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Lisa Mentor
Lisa
Posted
Being as I'm new to this disease, I've been on the no gluten diet for a month now and feel the same as before <_< . The wierd thing for me is, besides the "foggyness" and being dizzy and light headed is, my face and mostly my lips are numb most of the time. Has anyone had that?

I also need a sleeping pill each night, or I don't sleep very long.

So how long have you been on the diet before you started feeling "normal" again??

Hey Mr. Cool:

Welcome to this site. You will find some great information here.

No...It seems to me that something is going on because you should be feeling some improvement after a months time.

Do you have a dedicated toaster, cutting boards, new wooded spoons and check your scratched pots and pans. Gluten can hide everywhere. Have you check your toiletries and medicines or vitamins? Every thing that gets near or in your mouth is suspect for gluten. I have found that it is nearly impossible to be 100% gluten free in the beginning. The learning curve is way too steep. With time and a crash course, you can achieve 100% (or darn close).

It is also recommended that newbies to the diet eliminate dairy for a time until healing can begin. Then you can re-introduce it.

I hope you begin feeling better soon.

rumbles Newbie
rumbles
Posted
Being as I'm new to this disease, I've been on the no gluten diet for a month now and feel the same as before <_< . The wierd thing for me is, besides the "foggyness" and being dizzy and light headed is, my face and mostly my lips are numb most of the time. Has anyone had that?

I also need a sleeping pill each night, or I don't sleep very long.

So how long have you been on the diet before you started feeling "normal" again??

Hi, Johnny Cool,

I didn't have foggyness, dizziness, light headed or numbness when going gluten free, but did

have problems sleeping for more than a few hours in the beginning, - that lasted a couple of

months.

If you haven't already, you might want to verify with the manufacturer that the sleeping pills

are gluten free. Unfortunately, medications (prescription, over-the-counter and herbals) are not

required to disclose fillers in their ingredients, - it's not unusual for the filler to contain gluten.

If it's over-the-counter, the manufacturer's web site may list whether or not the product has

gluten in it, - otherwise you'd need to either call them or email them; if it's prescription, ask

your pharmacist to verify with the manufacturer whether or not it contains gluten.

Pat

Guest j_mommy
Guest j_mommy
Posted

I would have to agree with the other posters...you should be seeing some imporvment after a month...something atleast.

Definetly check meds, toothpastes, the things momma goose mentioned. Also are you in a gluten-free house or do you share the kitchen with gluten eaters????

Cath4k Apprentice
Cath4k
Posted

Are you eating many foods with food additives like artificial colorings, artificial flavorings, BHT, BHA, TBHQ, aspartame, MSG, etc? These chemicals are very bad for everyone, but they are especially bad for people with damaged intestines/immune systems. All of us in my family react to these chemicals, but two of my dc REALLY react. It was actually what we eliminated first before we figured out the gluten connection. After my 16 yo dd had been gluten free for awhile, she had to take a medication that had yellow dye in it. About 6 days into the med, she was up all night because she couldn't sleep. These chemicals wreak havoc on my dc and sleeplessness is high on that list. Be aware that even if you read labels, these are often hidden in processed foods (the packaging is sprayed or they don't have to list ingredients within other ingredients - like TBHQ within the oil used.)

It is highly likely that your sleep med has some of these chemicals.

It could also be a B12 deficiency.

Although you need to figure out what is CAUSING the problem, you may want to soak with Epsom Salts every night before bed. The sulfates will help your body detoxify and the magnesium is good for you and will help you relax. You can soak in a tub or just do a warm foot soak.

I hope you figure it out.

Disclaimer: we are still pretty new to gluten free (3 1/2 mths), but we have learned a lot very quickly and there are six of us I am learning from! :) We have been chemical free for 2 1/2 years (mostly so for most of that time when I thought reading labels was enough and strictly so when I learned about hidden ingredients.)

Cathy

Johnny Cool Rookie
Johnny Cool
Posted
  • Author

Thanks, good info evrybody :) I'll check these out. One question tho, what does cutting dairy out do? as it's non-gluten and my Dr. did a bone scan and said I was borderline osteoporosis and put me on calcium and vitamin D, I'm thinking the more calcium I get the better. Being from Wisconsin I eat a lot of cheese and drink gallons of milk... I don't own a cheese head tho :-)

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