Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Middletown, New York


tammy

Recommended Posts

tammy Community Regular

Hi,

Are there any other adults with gluten sensitivity living in or near the radius of Middletown, New York?

If so, I would love to chat with you and possibly meet you.

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest vir

Tammy...

I live in Poughkeepsie, NY and got diagnosed with Celiac 4/2004. I would love to talk with someone as well with Celiac. There use to be a support group out your way is that still happening?

Virginia :lol:

Mya Apprentice

Hey Virginia,

I live in Poughkeepsie too! Have you been to the health food store on Rt. 9 in the Bugaboo Creek Plaza? I actually went there this morning, they have some good stuff in there! Well, I just noticed you were from Pok and wanted to say hello!

darlindeb25 Collaborator
:D wow, a new yorker thread, but i am a "lawn guylander"--i live in e. islip, long island, new york--there is a celiac support group in westchester county but i dont know how close that is to you either--but i would love to talk to any of you--deb :D
  • 4 weeks later...
Guest vetnurse

Hi Deb, Mya, Virginia and Tammy,

I live in Rockland County and have been recently diagnosed with celiac disease too. Would like to talk to any of you. Susan

tammy Community Regular

Wow, I see that we are really spread out. But be that as it may, it is still a great opportunity for us.

I ate at Bugaboo Creek when I was first diagnosed with gluten and the Manager and staff were great at accommodating my dietary needs!

Once in a blue moon we travel out to Poughkeepsie because it is a bit of hike for us. They do have a great comedy club not far from Bugaboo Creek.

I don't know if they still have the monthly celiac support group meetings in Middletown.

I look forward to making a connection with other people with gluten sensitivity and other health related disorders.

LqrMan Newbie

Hey local Celiacs! This is my first post on celiac.com, however, I have been gluten free for 6 yrs. I am 23 and live in New Windsor. I went to one or two of those Middletown support group meetings, but my parents really helped me out and we have learned so much along the way. There is probably THE best health food store off 17K in Newburgh (off exit 6 or 7 on 84 depending where you are coming from). The prices at that store are the lowest and they seem to have a great selection.

If any of you need help with anything, please shoot me an email. I work for a liquor distributor and go out to eat a couple times a week. Basically you just need to explain your food allergy to the staff and have them check for you so you will be fine.

Also, for those Celiacs or wheat sensitive people, I just saw in the paper that a completely Gluten free/Wheat free bakery will be opening in Chester soon. Their number is 845-469-1992. I just signed up on their mailing list by calling them.

Rob

stbactuary@hotmail.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tammy Community Regular

Hey Rob,

Thanks for your input! A gluten-free/WF bakery in Chester, hooray! We are going to check out a gluten free bakery in Pennsylvania soon.

Thanks for your availability!

  • 3 weeks later...
Guest vir

:rolleyes:

Hi NYers I haven't been back to the site in awhile. I would love to chat or meet up with you all. My email address is smorecamping@frontiernet.net. I know the 17k healthfood store your right it is the best for me too...also I drove all the way out to Chester from Poughkeepsie today and found out the gluten-free bakery will not be open until June 23. I think my mouth was watering the whole ride hoping I would find a really good bread or more and then nothing. Well I did get on their mailing list. Do you have their web address I'd love to check that out in the meantime? Take care!

Virginia

LqrMan Newbie

Hey Virginia!

Sorry to hear you went all the way to Chester only to find out the bakery isn't open! Good to know it will open the 23rd though.

Open Original Shared Link is the website...

How old are you and what do you do for a living?

Guest vetnurse

Hey Virginia;

It is funny you mentioned that gluten-free Bakery in Chester, there was just an ad in our Rockland County Paper saying it would open on 6/23 :D

  • 1 month later...
jeany Newbie
Hi,

Are there any other adults with gluten sensitivity living in or near the radius of Middletown, New York?

If so, I would love to chat with you and possibly meet you.

<{POST_SNAPBACK}>

l

  • 2 months later...
WRowland Newbie

I live in Marlboro, New York. That's on 9W, midway between Mid-Hudson and Newburgh-Beacon bridges. About 45 mins from anything in Poughkeepsie.

Haven't seen any info about a meeting yet, but would be interested.

tammy Community Regular

Wow! what a surprise to hear from everyone and see that we are all over! No problem though. I posted another topic regarding getting together for the Christmas Holiday. So I will extend that offer here as well!

I have a few ideas for what might be fun for the whole group. But first, we need to find a central meeting point. I need to know where people are coming from and how far they are willing to drive. Also, I need to know what day and what weekend is better for you.

Remember only 7 weekends before Christmas Eve!!!!!!!!!

Let's have some fun!

  • 3 weeks later...
johnny Rookie

I live in new paltz.

Is there a support group near there?

How about a good doctor or group of doctors near there who are keen to celiac disease and related symptoms?

I have seen too many doctors over the past 11 months and would finally like to feel confident in my doctor(s).

any suggestions?

Johnny

  • 1 year later...
Cougar09 Rookie

FYI that gluten-free bakery in Chester is closed now. :( Apparently they couldn't keep up with the costs. Just wanted to add that in case any of you read this and were planning a trip out there.

hineini Enthusiast

That is sad, Cougar. But there is apparently a baker in Highland that makes gluten-free goodies on Wednesdays (not sure what they do to protect from cross-contamination though) and there is an alternative baker in Kingston that makes gluten-free stuff...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.