Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep Problems - Bad


Joni63

Recommended Posts

Joni63 Collaborator
You can be optimistic and happy and still have depression, and anxiety. Most people would describe me as happy, and definitely optimistic, but I also have been dx'ed with something between dysthymia and mild-moderate depression concommittant with fibro. These things can come in a big tangled bundle that is difficult to untangle.

But, I don't mean to press it on you, of course, just wanted to clarify that you don't have to "feel all depressed" to have an impact in your life due to depression. :)

Oh, I honestly never realized that. I figured if I was depressed I would feel sad or bad all the time. How does someone know they are depressed?

I know I have anxiety and have had for years, but it is undiagnosed and I never mentioned it to the doctors.

I'm glad you brought it up, thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
Oh, I honestly never realized that. I figured if I was depressed I would feel sad or bad all the time. How does someone know they are depressed?

I know I have anxiety and have had for years, but it is undiagnosed and I never mentioned it to the doctors.

I'm glad you brought it up, thank you.

The best way to know, is to do an eval with a psychologist. Mine took three hours, and I swear the only people who would guess that outcome are myself and my husband (we live together *and* work together, so we're around each other all the time).

Here's the diagnostic criteria from the ICD-10. I'm using that, rather than the DSM-IV, because the latter doesn't separate severity clearly, focusing only on major depressive disorder (and generally, an eval with a psychologist would flesh out the specifics, but all we have at hand is the internet and written words... :) )

Depressed mood, loss of interest and enjoyment, and reduced energy leading to increased fatigability and diminished activity in typical depressive episodes; other common symptoms are:

(1) Reduced concentration and attention

(2) Reduced self-esteem and self-confidence

(3) ideas of guilt and unworthiness (even in mild type of episode)

(4) Bleak and pessimistic views of the future

(5) Ideas or acts of self-harm or suicide

(6) Disturbed sleep

(7) Diminished appetite

Typical examples of “somatic” symptoms are: loss of interest or pleasure in activities that are normally enjoyable; lack of emotional reactivity to normally pleasurable surroundings and events; waking in the morning 2 h or more before the usual time; depression worse in the morning; objective evidence of definite psychomotor retardation or agitation; marked loss of appetite; weight loss; marked loss of libido.

For mild depressive episode, two of most typical symptoms of depression and two of the other symptoms are required. If four or more of the somatic symptoms are present, the episode is diagnosed: With somatic symptoms.

For moderate depressive episode, two of three of most typical symptoms of depression and at least three of the other symptoms are required. If four or more of the somatic symptoms are present, the episode is diagnosed: With somatic symptoms.

For severe depressive episode, all three of the typical symptoms noted for mild and moderate depressive episodes are present and at least four other symptoms of severe intensity are required.

It's odd to try to explain how I can come across and usually feel fairly happy and confident, while at the same time not be as interested in things as I used to be, not have much attention for things, and not as happy. I suppose that's it - it's a comparitive thing. Best as I can tell, these criteria are written do dx major depressive disorder, so they're written more for the extremes, so, for "a bleak view of the future", you don't have to be thinking horror-stricked "human kind is dooooomed!!!!", but rather, head-hanging, low-voiced "man, life's tough, and we're just getting by, and we're always going to be getting by, and it's always going to be this hard, and there's no way that it' going to be easier to ever get by". (I hope that comes across in writing... I wish I could find an actor and make a video of it...)

And - of course - I still in no way mean to say that your sleep troubles are necessarily indicative of depression. There are plenty of other things that interfere with sleep - apnea, restless leg, teeth clenching, circadian rhythm issues, etc. - that are totally unrelated. (insert other disclaimers here... :):D:) )

Joni63 Collaborator
The best way to know, is to do an eval with a psychologist. Mine took three hours, and I swear the only people who would guess that outcome are myself and my husband (we live together *and* work together, so we're around each other all the time).

Here's the diagnostic criteria from the ICD-10. I'm using that, rather than the DSM-IV, because the latter doesn't separate severity clearly, focusing only on major depressive disorder (and generally, an eval with a psychologist would flesh out the specifics, but all we have at hand is the internet and written words... :) )

Depressed mood, loss of interest and enjoyment, and reduced energy leading to increased fatigability and diminished activity in typical depressive episodes; other common symptoms are:

(1) Reduced concentration and attention

(2) Reduced self-esteem and self-confidence

(3) ideas of guilt and unworthiness (even in mild type of episode)

(4) Bleak and pessimistic views of the future

(5) Ideas or acts of self-harm or suicide

(6) Disturbed sleep

(7) Diminished appetite

Typical examples of

  • 2 months later...
tfarah Newbie
Hey Joni,

I have a lot of issues with insomnia as well and have for years. My neurotransmitters (melatonin, seritonin, ephinephrine, noriphinephrine, etc.) are all off. Not sure exactly why (I have several health issues that can cause it), but we're supplementing specifically for that, and my sleep patterns have improved a little. I wake up at 1:00, 2:00, 3:00 and if I wake up at 4:00 I don't go back to sleep, but recently have been going back to sleep if I wake up before 3. My adrenal levels are also off (measured by saliva).

Up until a couple of weeks ago, I was taking about 200 mg of 5-HTP and about 12 mg of melatonin every night, and that still didn't help much. I even got some AmbienCR...that didn't help me at all, lol. Over-the-counter stuff like benedryl, sleep aids, tylenol PM etc, actually work the opposite on me...they tend to rev me up worse.

I don't have an answer for you, but gee I can sure emphathize!

Donna,

Hi! I just wanted to comment. My sleep is like your sleep. I was diagnosed with ADHD-I'm 37! I take Ambien every night and get about 3 uninterupted hours of sleep. Then I start the hour or 2 hour waking up constantly routine. And when I do sleep for that hour or hour and 1/2, I don't sleep well, so I end up sleeping during the day too. I have found though-without the ambien-whether its from taking it for a while or not-I cannot fall asleep without it. The doctor said it was because of my ADHD that I wake as often as I do-so I just wanted to pass that on to you. I am on the road to be tested for celiac-which would explain it all anyway. Thanks!

dlp252 Apprentice

Thanks for the info!

My sleep has improved slightly since I've started the neurotransmitter support supplements. I still wake up, but I tend to go back to sleep quickly...now if we can just find the issue that's causing the neurotransmitters to be out of balance I'll be happy, lol.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.