Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Or Around Fayetteville, Nc


Jodi Mills

Recommended Posts

Jodi Mills Apprentice

Hey everyone, I know there are celiacs out here, in the raliegh durham area, what I am wondering is if there is any one out in Fayetteville, Srping lake, Hope Mills area. I am leaving soon but would still like to know about restaurants for the time i have left her, also if we could start a group, that would be awesome, at least then there would be some hope for other people wth celiac in the area...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I believe *marinewife* is in the Fayetteville area and is also new to this site.

Here are some support contacts for your area for the Celiac Disease Foundation:

Open Original Shared Link ....Aaron is in your area.

Jodi Mills Apprentice
I believe *marinewife* is in the Fayetteville area and is also new to this site.

Here are some support contacts for your area for the Celiac Disease Foundation:

Open Original Shared Link ....Aaron is in your area.

Thank You so much. I love how friendly and helpful everyone is on this site.

cunningham tandy Newbie
Thank You so much. I love how friendly and helpful everyone is on this site.

Yes, thanks for the link! But about Raleigh/Durham/Chapel Hill groups--I find no active groups online. I am hoping to hook up with a gourmet celiac group, or a group who enjoys eating out together once a month or so.

Thank you,

C.T.

Lisa Mentor
Yes, thanks for the link! But about Raleigh/Durham/Chapel Hill groups--I find no active groups online. I am hoping to hook up with a gourmet celiac group, or a group who enjoys eating out together once a month or so.

Thank you,

C.T.

We have lots of folks from the Raleigh-Cary-Durham area. Maybe you can start a new thread about a gourmet cooking/dinner group. I might even drive the way. :)

Jodi Mills Apprentice

If Ya'll were to get together for a gourmet meetup, within the next 23 days I would totally drive up to raliegh or wherever you have it, as long as its a weekend. anyhow Good luck!!

cunningham tandy Newbie
We have lots of folks from the Raleigh-Cary-Durham area. Maybe you can start a new thread about a gourmet cooking/dinner group. I might even drive the way. :)

I have entertained the idea of starting a group. What would you suggest would be the best way to go about it?

Am open to all suggestions.

C.T.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I have entertained the idea of starting a group. What would you suggest would be the best way to go about it?

Am open to all suggestions.

C.T.

Open Original Shared Link

This is a great please to start. Deborah will help you out any way she can. And, I might add, the Celiac Disease Foundation has one of the best newsletters that I have ever seen.

Jodi Mills Apprentice
I have entertained the idea of starting a group. What would you suggest would be the best way to go about it?

Am open to all suggestions.

C.T.

Where are you located?? I too am trying to find the best way to go about starting some sort of group it just seems like most the NC celiacs on this site are at least an hour or more from me....not that I am not willing to drive that far, but I would rather stay close to home, since I really dont know anything outside of fayetteville, hope mills, sprinklake area. I guess I will run to the apple crate and ask if they know if there is a group already here or not. and if not see if they might be into helping get one started, since last time I was in there they told me there were quite a few celiacs in the area.

  • 2 weeks later...
lm9 Newbie
Where are you located?? I too am trying to find the best way to go about starting some sort of group it just seems like most the NC celiacs on this site are at least an hour or more from me....not that I am not willing to drive that far, but I would rather stay close to home, since I really dont know anything outside of fayetteville, hope mills, sprinklake area. I guess I will run to the apple crate and ask if they know if there is a group already here or not. and if not see if they might be into helping get one started, since last time I was in there they told me there were quite a few celiacs in the area.

Hi,

I use to live in Fayetteville in 2006. I didn't think their were very many celiacs there. I met only one other lady and I met her @ the Apple Crate but she was a military wife and eventually moved. I also moved for one reason or another. I remember the lady @ the Apple Crate saying there were a lot of other celiacs that came in to shop. It didn't occur to me at the time to start a group. I think that would've made life a whole lot easier there. Bless you for starting one. It was hard to be a celiac in Fayetteville when there's only Harris Teeters and Apple Crate to choose from- THATS IT!. Hopefully things have gotten better. I ate out a few times and was glutened all the time. You could try the Outback, they seem to be very celiac concious. I tried the Mash House -was glutened, tried Carrabas -was glutened and other restaurants except the Outback, but I'd call ahead first. Your on the right track to start with the Apple Crate. I hope you find what your looking for. :)

Lotsa Luck,

Larissa

First uncertain diagnosis 2004, Second doctor claimed the first doctor was crazy and pulled me off the diet. To have a Third confirmed Diagnosis 2007.

Gluten Free since Nov. 2007. Was gluten-free on and off again since 2004, Horrible idea.

Feeling Fantabulous now!!

Jodi Mills Apprentice

Thanks for the support, I am going to the apple crate tomorrow, was trying to get down there sooner, but with school, and work, time is just not enough. lol. But even If i could get one meeting set up, just to start it out that would be great, since I am leaving on the 21st of this month. when I went into the apple crate she said that there were alot of celiacs here in fayetteville...so we will see.

Lisa Mentor

Wilmington is not too far. I'm know they have many options for shopping.

Jodi Mills Apprentice

Thanks for the tip..lol I have no idea where wilmington is though? lets see, I am in fayetteville, and I know how to get to work and home, some places around here, and myrtle beach...lol can you tell i love the beach? this move im going to make is going to be hard, wont be around an ocean, we are moving inland, i might go crazy!

Lisa Mentor
Wilmington is not too far. I'm know they have many options for shopping.

Oops, I am wearing too many hats this morning. I was thinking that you both were in the Jacksonville area, not Fayetteville.

Raleigh/Cary areas would be your next big city. If something can't be found in Raleigh, it just can't be found.

Jodi Mills Apprentice
Oops, I am wearing too many hats this morning. I was thinking that you both were in the Jacksonville area, not Fayetteville.

Raleigh/Cary areas would be your next big city. If something can't be found in Raleigh, it just can't be found.

Yeah thats one problem with this state, everything ends in VILLE....

lizard00 Enthusiast
Yeah thats one problem with this state, everything ends in VILLE....

NC is made up of small towns. I consider myself pretty fortunate to be in Raleigh... we do have a lot of stuff. And if we don't have it, you can be sure Cary does.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    5. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.