Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Hate Er's


ptkds

Recommended Posts

ptkds Community Regular

Sorry, I just have to vent my frustrations somewhere!

Friday night, I wound up in the ER because I had a REALLY BAD headache, and my neck was hurting. I was dizzy, lightheaded, and just felt horrible. So my hubby took me in. First off, the nurse is just acting like I am faking or something. I was obviously crying from the pain, and she asked me if I was congested, then answered herself because I was sniffling. My dh says that I have not been congested at all, I was just crying, she had that look on her face. Then when she asked if I had taken any Tylenol that day, I couldn't remember (I still can't), and she had a hard time believing that I couldn't remember if I had taken some medicine. I was like HELLO! I am in way too much pain to think about whether I took some Tylenol or not. I mean, I had had a headache all week. The days just sort of blend together when you feel so bad.

When they put me in a room (really a curtained area), they put me right next to this old man (we felt so sorry for this man and his wife, though) that kept yelling and moaning with every breath, although there were plenty of empty beds further away. His yelling didn't help my head one bit. I noticed that there was no pillow on the bed, so we ask for one. Of course, they have no pillows! They offer me a few blankets! Like that will help my neck pain. Then we get this horrible dr we have met before. He blows all my symptoms off and tells me I most likely have the flu. We wait forever, they come do some tests. The lady that took my blood really hurt me (I normally don't have a problem with my blood being taken), and then says it isn't her fault that it hurts :unsure:

We overhear the same dr telling the ppl next to us that he probably has the flu, even though he has some rare palsey disease that affects the respiratory tract. So his choking is from the flu, not his disease :unsure: .

So they diagnose me with the flu, give me a dose of Tamiflu (which I didn't even confirm was gluten-free because I couldn't think straight) and three Tylenol 3's, a script that I can't afford, and send me home, even though my pain is still extreme and I can barely walk straight.

Today, I looked at the sheet they gave me, and under the title "Seek Immediate Medical Attention if:", they list "Severe headache; severe neck pain"

If I had been thinking straight that night, I would have looked at that paper, turned around and said "I have a severe headache and severe pain in my neck. Will you help me now??" The meds they gave me didn't touch my head pain at all. I was unable to do anything all weekend. Finally, the headache is gone and I am feeling much better. But I just wanted to die that night cuz the pain was so bad.

Why do ER's treat you like this?? We are told by the media and all these medical experts seek medical help when you have certain symptoms, then they treat you like you are wasting their time! It is just so frustrating!

Thanks for letting me vent!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I understand and I work in a hospital...we dont go near the ER...

Hope you are feeling better.

Rpm999 Contributor

i can't agree more, i've gotten TERRIBLE care at ER's, not to mention how much they lie to you...one nurse did the worst blood work i've ever had...she SLAMMED it in my arm so hard that if it slipped, my nerve would have collapsed...then told me to bend my arm, and when i did, it flew out and she blamed ME then slammed it in again (making ANOTHER hole) and my whole arm was bruised up and swollen....the same day, the doctor yelled at me for wanting a chest x-ray, the FOUR HOURS LATER came in and said OH WE'RE GONNA DO THE X-RAY NOW...i just left

tarnalberry Community Regular

I've been to the ER three times - three different ER's - all fairly minor. Once for stitches on my finger (and the nurse didn't want to believe me at first that she didn't fully numb my finger, but she did eventually), once for what was likely a kidney stone (and everyone was great, even though they were quite busy and there was a fairly long wait), and once for stitches to my face and chin (and again everyone was great, even though it took a while because we had to wait for the plastic surgeon to come down).

I'm not sure why the difference, but I suppose I also don't expect too too much out of them. :) I also count myself lucky if I get in within two hours, and get out in less than six. ;)

Green12 Enthusiast

Sorry you had to experience that.

I had a terrible ER experience myself over the summer. The Dr treated me horribly as well, terrible bed side manner. He didn't believe what I was going through and all but accused me of faking an anaphylactic reaction and severe all-over body swelling to get an Epi pen prescription to get a high off of.

I was there for 5 hours and nothing was accomplished, I only left with a bruised arm from the blood pressure cuff and all the poking and proding and IV line, and a HUGE bill.

confusedks Enthusiast

I'm sorry you had a bad experience too! I HATE ER's! They treat you like your medical problems aren't important. I went to the ER not too long ago because I had really low iron and my Hematologist told me to go, so I could get an iron IV and the Dr. said that anemia wouldn't cause exhaustion! :angry: She was such an idiot! I ended up leaving, after waiting in the waiting room for 6 hours!!! UGH! I hate ER's!

Adelle Enthusiast

So a few years ago I had an allergic reaction, just my lips swelled up. I called my insurance companies nurse line. They said to head to the ER just in case because the swelling was so close to my throat. I agreed. When we got there (at like 4am) the nurse took me seriously (I had my drivers license photo to prove my lips were 3x their normal size and beginning to split open) but the doc didn't. He accused me of drug seeking, said I was lucky to have big lips (after all women pay for lip injections), and then when I protested he gave me the "talk to the hand" gesture. That's when my husband kicked him out of the room. We left and found a dermatologist in the AM. She did a biopsy and found that it was an allergic reaction (I'd called my mom and turns out my dad had the same reaction to something, they never figured out what) and gave me shots in my lips (the only thing that fixes it as it turns out).

And the kicker, the freaking hospital had the nerve to charge me $600 ON TOP of what my insurance paid!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.