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Are Chronic Headaches A Symptom Of Celiac?


Shwem

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Shwem Newbie

I just got my test results back and they were positive for celiac so i guess i have a lot to get used to.. but i have been having these chronic headaches for a couple weeks now and i was wondering if maybe that might be a symtom of celiac. please let me know.. i am very new to this.

Thanks


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JustMe75 Enthusiast

I used to get a headache just about every day and thought it was sinuses, tension, or stress but when I stopped eating gluten they went away. I never even expected them to, I was trying to fix gastro symptoms, curing the headaches was a HUGE bonus.

jerseyangel Proficient

Yes, daily headaches were a symptom for me. Prior to that, I rarely got hedaches.

Mine were mainly in the back of my head at the base of my skull--sometimes the pain would wake me up in the morning (when it was at it's worst).

I will still get this type of headache when glutened.

Barbara A Rookie

i THINK MY HEADACHES WERE FROM BEING ANEMIC AS MY IRON WAS VERY LOW. nOT SURE AS i STARTED IV IRON INFUSIONS AT THE SAME TIME AS I CHANGED MY DIET. I AM SURE THEY HAVE CHECKED YOUR HEMOBLOBIN BUT JUST AN IDEA

BARB

HAK1031 Enthusiast

when I was at my sickest (only a few months, I was lucky) I got migraines once a week and milder headaches a few times a week

jeanbean Newbie

Since I've been gluten free, I have no headaches at all. Previously I was the poster child for migraines -weekly and very nauseous. Mind you I have only been gluten free for one month, after having been misdiagnosed with IBS for several years. On advice from my doctor I was told to have more fibre - little did I know it was making me more sick. I guess everyone is affected differently - are you eating more sugar? Just keep your protein levels equal all day long - have eggs for breakfast for example, protein for lunch and dinner. This will keep your sugar level from fluctuating. That might be why you are getting so many headaches.

psawyer Proficient

My headaches, which were frequent and sometimes debilitating, went away when I went on the gluten-free diet.


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TrillumHunter Enthusiast

I got ocular migraines before before going gluten-free. I was very low in b12 and iron as well. These are gone now.

My husband went gluten-free with me and is no longer having migraines. He'd had them since he was 12 or so. He was tested for celiac and it was negative but he says he'll never eat gluten again.

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      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
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    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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