Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Myself On Purpose


chgomom

Recommended Posts

chgomom Enthusiast

Hi everyone,

It's been awhile since I have been on. For a while I was doing really well, then in December my mother passed away. The 9th to be exact and her funeral was the 12th. If you don't remember, my father died in 2005 two days after Christmas. I am also working out a marital issue. So there is lots of stress and thats something I am addressing separate to what I just did yesterday.

Yesterday, after a night of long conversation with my husband, and on my way home from work, I stopped at Wendy's got a frosty (which is gluten-free) but then I added fries, and a baconater without the bread but their mayo and ketchup (this was abotu 3 pm)

Last night at about 8, I started having a panic attack where I felt like something was going to happen to me. Then it subsided and I was burping. Then last night I woke up, heart pounding, with a sick stomach and burping. Then this morning the D is coming, I had another one of those doom and gloom panicky things like something bad was going to happen to me, and I feel like I've been beaten with a bat and I know I am going to have D. Because last night it was normal, this morning it was softer and now I can feel another one coming (sorry for being gross). I am even getting these little pings of pain in different spots all over.

I feel like such a loser, I've been gluten free since June 06. Has anyone ever done this, or am I the lone ranger on this. How stupid could I be!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Feel better and start over! Don't beat yourself up. It happened, it's over, tomorrow is a new day! Yes, we have all made mistakes. I usually do not make mistakes with food, sometimes I say things I want to take back, which can hurt someone else worse and I wish I had glutened me instead of hurting them.

If you would like to talk, feel free to email me, my door is always open--ok.

Deb

Tim-n-VA Contributor

I read this originally in the context of weight loss but...

Think about those navigation systems you have in your car. If you miss a turn it doesn't tell you to drive through people's yards and it doesn't say "You missed your turn, drive off of a bridge". It figures a way to get you back on track.

We all make mistakes, some intentional, some not. The key is to get back on track.

ravenwoodglass Mentor

I am so sorry about your Mom and Dad. It sounds like you are under a lot of stress right now. Please don't beat yourself up over this, your body is doing that enough for you. I haven't done this with gluten but I have with my casein issue. Sometimes I just get into this mindset, usually when depressed, that it just isn't fair. So much has been taken away from me and why does this have to go too. Then I get angry and will at times just say 'screw it' and grab some cream cheese or a chocolate bar with milk. As much as I hate to admit it I have been doing just that the last couple of days. And yes I do pay for it also, I woke at 3 am this morning feeling like someone was twisting my intestines and then knifing them. Am I sorry I did it? Yes of course I am. Do I understand why I did it? Yea, I have been under extreme stress lately, nothing compared to what you are going through, but still lots of stress. Will I do it again? I don't know, I will try not to, the cost is too dear. But I also realize I am human, and you are to. You can't change what you did yesterday. Don't punish yourself for it. Please be sure to keep in mind that the intense emotions you are feeling are being intensified by the gluten reaction. Try to pamper yourself if you can and keep in your mind that those intense feelings will fade to a more tolerable level once the gluten effects have passed. Hang in there and big

(((((((((((((HUGS)))))))))))))

chgomom Enthusiast

Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

jerseyangel Proficient

I'm so sorry about your dad and now your mom :( You're under so much stress right now, so please don't be upset with yourself for this one lapse. It really sounds to me like you went right to the point of glutening yourself, but from the choices you made--stopped short. Of course, the CC got you, but you did show restraint ;)

None of us are perfect--I've not ever cheated with gluten--but I do push my other intolerances from time to time. I had some stress last year--major surgery and a move. I can't say that I felt in control at all times, but I did my best. That's really all we can expect of ourselves.

You questioned the panic--I get this, too when accidently glutened. It's like a heightened sense of anxiety. I think, no--I know, I hate that more than the physical symptoms.

It will pass, and you will feel well again :)

Best of luck with everything, you're not alone--come back and post anytime!

ravenwoodglass Mentor
Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

Yes this is normal. It will go away but it may make some situations difficult when it is present. I feel so hopeless and scared when this happens, but telling myself it is the gluten not the world around me helps me to cope. I hope it goes away quickly for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aves Newbie

I just went gluten free in May of 2007. I first knew something was wrong because I became terribly depressed, and then when I began to stop eating gluten (it was a process since I didn't know where it was hidden) the first sign that I had gluten was feeling free floating anxiety and mild paranoia. Sometimes it took me awhile to find where it was hidden, but Voila! it would always be something-- blue cheese, those nice little potato chips, whatever...

The best thing out of all of this is that when I am gluten free I'm so calm! That constant anxiety in my life was definitely a sign of a gluten reaction.

Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

chgomom Enthusiast

Yep....like anxiety but to the next level.

And it reminded me of when I went gluten free. Those first couple of months where you go up and down, and realized just how sick I was then. I guess thats why I am so disappointed with myself.

Each day is a new day, and a new opportunity to start again though.

jerseyangel Proficient
Each day is a new day, and a new opportunity to start again though.

Exactly! :D

chgomom Enthusiast

OMG...still today I feel like I am going to throw up.

I have yellow BM's, and I am nauseaus.

What the heck did I do to myself.

JNBunnie1 Community Regular
OMG...still today I feel like I am going to throw up.

I have yellow BM's, and I am nauseaus.

What the heck did I do to myself.

Hey, when I get bad glutened, it lasts for a month. Don't put any limits on yourself for when you think you're 'supposed' to feel better by. Just pamper yourself for now with mint tea and gentle foods. If your poo continues to be funkified colors, I would consider that there was some other kind of food contamination, as in food-borne illness, and don't allow yourself to get dehydrated. I always had bad nausea with glutening but never threw up, too.

I have some good stress-time treats you can get anywhere. I actually do milkshake therapy sometimes. After my father died, from leukemia, I had lots of sex with my boyfriend. I know that sounds strange, but the whatever chemicals orgasm releases kept me from getting too depressed. (well, you can't get that anywhere) And chocolate. And baking keeps me calm, for some reason. Even when it doesn't come out good, I love baking. I've got a bunch of cakes and cookies in the freezer, even a pie.

loco-ladi Contributor
What the heck did I do to myself.

I believe we shall call this proof positive you are not losing yoru mind ;)

You just got the best (if not most comfortable) proof you need to stay gluten-free

been there done that myself, and if I am not mistaken not a single one of us here can say they havent done the same thing so heck welcome to the club we are a large but friendly group :D

Keep your chin up it will end eventually.

dksart Apprentice

Hi,

I hope you are feeling better.

I got cc'd at Chick fil A right before Christmas and it turned into an ear infection that lasted two weeks and screwed up my equilibrium. That turned into a hell of a sinus infection for another week until I got the flu. That totally kicked my butt until New Years when I got a relapse that was even worse. Not to mention all of the belly issues, headaches and arthritis/swollen joint problems that lingered for weeks after that.

I have been sick for over a month straight, just feeling better as of yesterday. Still struggling with brain fog and a slight depression.

If I ever eat at a fast food restaurant again, it won't be through a drive-thru window. I will go in and speak with a manager and explain the necessity of clean work surfaces, new gloves and no condiments etc. that could have been cc'd. I am still kicking myself for being in too much of a rush to eat good food.

Good Luck,

Debbie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,082
    • Most Online (within 30 mins)
      7,748

    MelanieR
    Newest Member
    MelanieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.