Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New With Celiac


Bayson

Recommended Posts

Bayson Newbie

Hello, I found this place in thanks to my boyfriend who has been extremely supportive in my gluten struggle.

It all started a year ago (around December '06), I started getting sick badly but it was so little I didn't think much often. However by July '07 things were getting bad. I was in so much pain I would cry. Wake up feeling so sick. My doctor tried different meds but when nothing worked I was sent to the specialist and was scoped in November '07.

The tests came back in mid December that it was highly believed I had Celiac and needed to go gluten free. I knew little to nothing. Most of my meals were bunless burgers I grilled at home. In 2 weeks I felt great. I was cheerful, hanging out with friends, even dancing again. However on new years I got badly ill once more. Everyday it was worse and I layed off the burger and things got better (my boyfriend was eating the same burgers and was fine so maybe they some how got contaminated?).

I write down all that I eat which generally is gluten free chicken breast from walmart as well as other gluten free items some of the stores carry, just to see if I can find any patterns. However even with that, I still get tummy aches. In the past it felt like a certain area hurt but now its like my stomach as a whole. Its not as sharp either just my stomach over all. I also still suffer nausea often and lets just say my bathroom habits are different each day. I also tend to be very burpy too.

Is this normal? I know it differs for everyone, but truth be known I'm still scared over all this as its still new to me.

I work hard to make sure what I eat is gluten free. Personally while it sucks I can't eat what my friends eat, I dont mind it if it means I feel normal and can have fun with them. I miss being my old self who was carefree, I miss hanging out and going to the mall and stuff. I guess the main reason I post here is I would love to hear back from anyone with the same. I know I'm not alone with this. That small time when I felt normal around Christmas was wonderful. It was a small taste of what I want. I'm just curious if others deal with the same when they first started.

Thanks so much for reading this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



holdthegluten Rising Star

I have been gluten-free for a year and i am still tryingto figure out what foods are bothering me. When you first go gluten free you need to cut out all Dairy. Your Villi normally produce lactase when they arent damged, so you will have a hard time digesting milk until you heal. 2nd, you need to keep it simple. Just eat meat, veggies, fruit and rice until you heal. Give yourself 6 months just eating simple whole foods. Stay away from specialty gluten-free foods for now......give yourself some time. Many of us develop additional food intolerances for some reason, so it may be multiple foods that will cause gluten like reactions. Right now i am on a grain free diet...........all i eat is seafood,beef,chicken, some fruit and veggies......that's it. I am very determined to feel better. I just recently realized that i cant digest nuts well and i cut them out. Go slow and keep it simple.

jewi0008 Contributor
Hello, I found this place in thanks to my boyfriend who has been extremely supportive in my gluten struggle.

It all started a year ago (around December '06), I started getting sick badly but it was so little I didn't think much often. However by July '07 things were getting bad. I was in so much pain I would cry. Wake up feeling so sick. My doctor tried different meds but when nothing worked I was sent to the specialist and was scoped in November '07.

The tests came back in mid December that it was highly believed I had Celiac and needed to go gluten free. I knew little to nothing. Most of my meals were bunless burgers I grilled at home. In 2 weeks I felt great. I was cheerful, hanging out with friends, even dancing again. However on new years I got badly ill once more. Everyday it was worse and I layed off the burger and things got better (my boyfriend was eating the same burgers and was fine so maybe they some how got contaminated?).

I write down all that I eat which generally is gluten free chicken breast from walmart as well as other gluten free items some of the stores carry, just to see if I can find any patterns. However even with that, I still get tummy aches. In the past it felt like a certain area hurt but now its like my stomach as a whole. Its not as sharp either just my stomach over all. I also still suffer nausea often and lets just say my bathroom habits are different each day. I also tend to be very burpy too.

Is this normal? I know it differs for everyone, but truth be known I'm still scared over all this as its still new to me.

I work hard to make sure what I eat is gluten free. Personally while it sucks I can't eat what my friends eat, I dont mind it if it means I feel normal and can have fun with them. I miss being my old self who was carefree, I miss hanging out and going to the mall and stuff. I guess the main reason I post here is I would love to hear back from anyone with the same. I know I'm not alone with this. That small time when I felt normal around Christmas was wonderful. It was a small taste of what I want. I'm just curious if others deal with the same when they first started.

Thanks so much for reading this.

Are your stomach problems your only symptom?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,018
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.