Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New With Celiac


Bayson

Recommended Posts

Bayson Newbie

Hello, I found this place in thanks to my boyfriend who has been extremely supportive in my gluten struggle.

It all started a year ago (around December '06), I started getting sick badly but it was so little I didn't think much often. However by July '07 things were getting bad. I was in so much pain I would cry. Wake up feeling so sick. My doctor tried different meds but when nothing worked I was sent to the specialist and was scoped in November '07.

The tests came back in mid December that it was highly believed I had Celiac and needed to go gluten free. I knew little to nothing. Most of my meals were bunless burgers I grilled at home. In 2 weeks I felt great. I was cheerful, hanging out with friends, even dancing again. However on new years I got badly ill once more. Everyday it was worse and I layed off the burger and things got better (my boyfriend was eating the same burgers and was fine so maybe they some how got contaminated?).

I write down all that I eat which generally is gluten free chicken breast from walmart as well as other gluten free items some of the stores carry, just to see if I can find any patterns. However even with that, I still get tummy aches. In the past it felt like a certain area hurt but now its like my stomach as a whole. Its not as sharp either just my stomach over all. I also still suffer nausea often and lets just say my bathroom habits are different each day. I also tend to be very burpy too.

Is this normal? I know it differs for everyone, but truth be known I'm still scared over all this as its still new to me.

I work hard to make sure what I eat is gluten free. Personally while it sucks I can't eat what my friends eat, I dont mind it if it means I feel normal and can have fun with them. I miss being my old self who was carefree, I miss hanging out and going to the mall and stuff. I guess the main reason I post here is I would love to hear back from anyone with the same. I know I'm not alone with this. That small time when I felt normal around Christmas was wonderful. It was a small taste of what I want. I'm just curious if others deal with the same when they first started.

Thanks so much for reading this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



holdthegluten Rising Star

I have been gluten-free for a year and i am still tryingto figure out what foods are bothering me. When you first go gluten free you need to cut out all Dairy. Your Villi normally produce lactase when they arent damged, so you will have a hard time digesting milk until you heal. 2nd, you need to keep it simple. Just eat meat, veggies, fruit and rice until you heal. Give yourself 6 months just eating simple whole foods. Stay away from specialty gluten-free foods for now......give yourself some time. Many of us develop additional food intolerances for some reason, so it may be multiple foods that will cause gluten like reactions. Right now i am on a grain free diet...........all i eat is seafood,beef,chicken, some fruit and veggies......that's it. I am very determined to feel better. I just recently realized that i cant digest nuts well and i cut them out. Go slow and keep it simple.

jewi0008 Contributor
Hello, I found this place in thanks to my boyfriend who has been extremely supportive in my gluten struggle.

It all started a year ago (around December '06), I started getting sick badly but it was so little I didn't think much often. However by July '07 things were getting bad. I was in so much pain I would cry. Wake up feeling so sick. My doctor tried different meds but when nothing worked I was sent to the specialist and was scoped in November '07.

The tests came back in mid December that it was highly believed I had Celiac and needed to go gluten free. I knew little to nothing. Most of my meals were bunless burgers I grilled at home. In 2 weeks I felt great. I was cheerful, hanging out with friends, even dancing again. However on new years I got badly ill once more. Everyday it was worse and I layed off the burger and things got better (my boyfriend was eating the same burgers and was fine so maybe they some how got contaminated?).

I write down all that I eat which generally is gluten free chicken breast from walmart as well as other gluten free items some of the stores carry, just to see if I can find any patterns. However even with that, I still get tummy aches. In the past it felt like a certain area hurt but now its like my stomach as a whole. Its not as sharp either just my stomach over all. I also still suffer nausea often and lets just say my bathroom habits are different each day. I also tend to be very burpy too.

Is this normal? I know it differs for everyone, but truth be known I'm still scared over all this as its still new to me.

I work hard to make sure what I eat is gluten free. Personally while it sucks I can't eat what my friends eat, I dont mind it if it means I feel normal and can have fun with them. I miss being my old self who was carefree, I miss hanging out and going to the mall and stuff. I guess the main reason I post here is I would love to hear back from anyone with the same. I know I'm not alone with this. That small time when I felt normal around Christmas was wonderful. It was a small taste of what I want. I'm just curious if others deal with the same when they first started.

Thanks so much for reading this.

Are your stomach problems your only symptom?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,848
    • Most Online (within 30 mins)
      7,748

    L.Garcia24
    Newest Member
    L.Garcia24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.