Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New With Celiac


Bayson

Recommended Posts

Bayson Newbie

Hello, I found this place in thanks to my boyfriend who has been extremely supportive in my gluten struggle.

It all started a year ago (around December '06), I started getting sick badly but it was so little I didn't think much often. However by July '07 things were getting bad. I was in so much pain I would cry. Wake up feeling so sick. My doctor tried different meds but when nothing worked I was sent to the specialist and was scoped in November '07.

The tests came back in mid December that it was highly believed I had Celiac and needed to go gluten free. I knew little to nothing. Most of my meals were bunless burgers I grilled at home. In 2 weeks I felt great. I was cheerful, hanging out with friends, even dancing again. However on new years I got badly ill once more. Everyday it was worse and I layed off the burger and things got better (my boyfriend was eating the same burgers and was fine so maybe they some how got contaminated?).

I write down all that I eat which generally is gluten free chicken breast from walmart as well as other gluten free items some of the stores carry, just to see if I can find any patterns. However even with that, I still get tummy aches. In the past it felt like a certain area hurt but now its like my stomach as a whole. Its not as sharp either just my stomach over all. I also still suffer nausea often and lets just say my bathroom habits are different each day. I also tend to be very burpy too.

Is this normal? I know it differs for everyone, but truth be known I'm still scared over all this as its still new to me.

I work hard to make sure what I eat is gluten free. Personally while it sucks I can't eat what my friends eat, I dont mind it if it means I feel normal and can have fun with them. I miss being my old self who was carefree, I miss hanging out and going to the mall and stuff. I guess the main reason I post here is I would love to hear back from anyone with the same. I know I'm not alone with this. That small time when I felt normal around Christmas was wonderful. It was a small taste of what I want. I'm just curious if others deal with the same when they first started.

Thanks so much for reading this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



holdthegluten Rising Star

I have been gluten-free for a year and i am still tryingto figure out what foods are bothering me. When you first go gluten free you need to cut out all Dairy. Your Villi normally produce lactase when they arent damged, so you will have a hard time digesting milk until you heal. 2nd, you need to keep it simple. Just eat meat, veggies, fruit and rice until you heal. Give yourself 6 months just eating simple whole foods. Stay away from specialty gluten-free foods for now......give yourself some time. Many of us develop additional food intolerances for some reason, so it may be multiple foods that will cause gluten like reactions. Right now i am on a grain free diet...........all i eat is seafood,beef,chicken, some fruit and veggies......that's it. I am very determined to feel better. I just recently realized that i cant digest nuts well and i cut them out. Go slow and keep it simple.

jewi0008 Contributor
Hello, I found this place in thanks to my boyfriend who has been extremely supportive in my gluten struggle.

It all started a year ago (around December '06), I started getting sick badly but it was so little I didn't think much often. However by July '07 things were getting bad. I was in so much pain I would cry. Wake up feeling so sick. My doctor tried different meds but when nothing worked I was sent to the specialist and was scoped in November '07.

The tests came back in mid December that it was highly believed I had Celiac and needed to go gluten free. I knew little to nothing. Most of my meals were bunless burgers I grilled at home. In 2 weeks I felt great. I was cheerful, hanging out with friends, even dancing again. However on new years I got badly ill once more. Everyday it was worse and I layed off the burger and things got better (my boyfriend was eating the same burgers and was fine so maybe they some how got contaminated?).

I write down all that I eat which generally is gluten free chicken breast from walmart as well as other gluten free items some of the stores carry, just to see if I can find any patterns. However even with that, I still get tummy aches. In the past it felt like a certain area hurt but now its like my stomach as a whole. Its not as sharp either just my stomach over all. I also still suffer nausea often and lets just say my bathroom habits are different each day. I also tend to be very burpy too.

Is this normal? I know it differs for everyone, but truth be known I'm still scared over all this as its still new to me.

I work hard to make sure what I eat is gluten free. Personally while it sucks I can't eat what my friends eat, I dont mind it if it means I feel normal and can have fun with them. I miss being my old self who was carefree, I miss hanging out and going to the mall and stuff. I guess the main reason I post here is I would love to hear back from anyone with the same. I know I'm not alone with this. That small time when I felt normal around Christmas was wonderful. It was a small taste of what I want. I'm just curious if others deal with the same when they first started.

Thanks so much for reading this.

Are your stomach problems your only symptom?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      15

      Related issues

    2. - knitty kitty replied to science enthusiast Christi's topic in Coping with Celiac Disease
      4

      Sugar intolerance 10 years into gluten-free diet

    3. - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Great Value Veggies cannot be trusted.

    4. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      8

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    5. - Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      25

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,483
    • Most Online (within 30 mins)
      7,748

    AntiWheatBabe
    Newest Member
    AntiWheatBabe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because its going to be same thing around here.i just feel lost and in tbe medical file they are writing what ever and its really not ok. In fact i dont want to go unless they record the conversation. Yes its that bad.im only having  care and concern for my ms whose Not part of the same health association that pcp and gi are with.I will have to look into changing to another. Mayo clinic is great but its the celiac, sibo, ect and all related issues that need addressed but current " careteam says call when needed. No plans of scheduled dates
    • knitty kitty
      @science enthusiast Christi, It could be Small Intestinal Bacterial Overgrowth (SIBO).  Lots of people with Celiac develop it, especially if they eat a high carbohydrate diet.   Colonic bacteria crawl into the small intestine and ferment the excess carbohydrates and prebiotic fibers which causes lots of gas.   I changed my diet to the Autoimmune Protocol Diet (AIP), a Paleo diet, and supplemented with a B Complex and Benfotiamine, a form of Thiamine that helps heal the intestines and has antibacterial properties.  I had improvement within a few days.  The AIP diet starves out the carbohydrate loving SIBO bacteria and allows more beneficial bacteria a chance to repopulate. Hope this helps.
    • Yaya
      Yes, a rule I usually follow. Pict Sweet was always known to be gluten-free and after many years of use with no problems, it's easy to forget to look.    
    • trents
      "I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset." cristiana, are you saying this is your actual experience or are you speculating here?
    • Peggy M
      I have tried many Vit D. Solgad is one that did not cause any problems. I take 5000IU. Most of their vitamins are gluten-free certified but this is not.  They can be purchased direct from Solgar or Amazon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.