Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here With A Few Questions


myallergicboys

Recommended Posts

myallergicboys Newbie

Hi,

I am a Mom to 3 kids. I have a daughter who is 10 1/2 , a son who is 8 1/2 and a son who is 2 1/2. My boys both have severe life threatening allergies to milk, egg, peanuts, tree nuts, and milder allergies to soy. My 2 year old has an allergy to wheat as well. We haven't had him tested for other grains. Right now the allergist thinks his symptoms are due to wheat allergy rather than celiac disease.

I suspect that my daughter has an issue with gluten as well. I've suspected it for a long time. She's been constipated since birth. She has eczema and always has, but it's not terrible. She has literally been on some type of constipation medicine since 2 months of age. It might not be related, but she lives on gluten and dairy. Of interest, she has a history of IgA deficiency. She also failed miserably at introducing all grains as an infant. Responded with gut pain and rash.

My 8yo has a an immune deficiency. He has been IgA def, but that has since resolved. Now he is IgG deficient. He has had the blood test for celiac and it came back negative.

My 2yo has had loose stools or diarrhea since he was 17 months old. Prior to that he was constipated. The stools changed after an anaphylactic reaction to dairy and have never gone back. He has always shown symptoms with wheat (even through breastmilk), but not life threatening like his other allergies. He has never been a good sleeper, he is constantly whiney. His eating is pretty hit or miss. The latest symptom is that he has gone from 80th% on the chart for height to 25%. This is over the past 8 months.

I suspect that I also have a problem with gluten. I get horribly sleepy right after I eat it. I've had reflux that does not respond to drugs for over 12 years. I'm tired, my whole body hurts most of the time. I've also had an itchy rash on the inside of both elbows for a few years.

So, we are all about to go gluten free. My biggest issue is finding products that are not only gluten free, but also dairy, egg, nut and soy free. Plus, it would be nice if they actually taste good. :lol: I bought some Tinkyada pasta as my friend swears by it. We are going to try it soon. I've done some gluten-free baking with sorghum, potato starch and tapioca flour mix.

My 2yo's next doctor appt isn't for 3 months. I'm planning to go gluten-free now, but I realize that if we wanted to do the blood test that this would make it useless. Is it even worth doing the test or should I just do the diet and see what happens?

How long before we see results if this is the issue?

Thanks in advance. Sorry I have so many questions, it's just a bit overwhelming right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,896
    • Most Online (within 30 mins)
      7,748

    Judy M
    Newest Member
    Judy M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.