Confusing Test Result

[ksymonds84]

Hello everyone. This is only my second post, I am mostly reading and learning. This is a great board! Anyway, I was told a couple weeks ago over the phone that my celiac panel came back negative. I was a little bummed because I thought for sure that I found my answer but I have still stayed with the diet except for 1 cheat day. I was feeling very low and doubting if I am gluten intolerant and ate toast and crackers in the morning. Within an hour I had little itchy blisters on my right hand knuckle and index finger and proceeded to have 4 bm's , rumbly stomach, smelly gas (sorry) and just miserable. So I learned a lesson and have been a good girl since.

Anyway, I got my test back in the mail and I was very confused and maybe someone here can clarify?

Here's what it looks like

TRANSGLUTAMINASE IGA AB <3 See Below

gives test ranges

ENDOMYSIAL AB (IGA) /// Negative

reflex testing not required

ENDOMYSIAL AB TITER /// Less than 1:5

reflex testing not required

GLIADIN AB (IGA) /// See Below

gives test ranges then says

test not preformed- duplicate order

IGA SERUM 293 81-463

TISSUE TRANSGLUTAMINASE (IGG) /// See below

reflex testing not required

Am I right to think that this test is not a full test? I've already decided that i have a problem with gluten whether celiac or not so I will keep being gluten free but just wanted others thoughts.

kathy

[YoloGx]

Hello everyone. This is only my second post, I am mostly reading and learning. This is a great board! Anyway, I was told a couple weeks ago over the phone that my celiac panel came back negative. I was a little bummed because I thought for sure that I found my answer but I have still stayed with the diet except for 1 cheat day. I was feeling very low and doubting if I am gluten intolerant and ate toast and crackers in the morning. Within an hour I had little itchy blisters on my right hand knuckle and index finger and proceeded to have 4 bm's , rumbly stomach, smelly gas (sorry) and just miserable. So I learned a lesson and have been a good girl since.

Anyway, I got my test back in the mail and I was very confused and maybe someone here can clarify?

Here's what it looks like

TRANSGLUTAMINASE IGA AB <3 See Below

gives test ranges

ENDOMYSIAL AB (IGA) /// Negative

reflex testing not required

ENDOMYSIAL AB TITER /// Less than 1:5

reflex testing not required

GLIADIN AB (IGA) /// See Below

gives test ranges then says

test not preformed- duplicate order

IGA SERUM 293 81-463

TISSUE TRANSGLUTAMINASE (IGG) /// See below

reflex testing not required

Am I right to think that this test is not a full test? I've already decided that i have a problem with gluten whether celiac or not so I will keep being gluten free but just wanted others thoughts.

kathy

Kathy,

I wouldn't begin to know how to read this (though I am sure others will). Did you ask your doc? Or maybe you could call the agency that did the test.

However I was just reading this book called Dangerous Grains--and it indicates lots of people are gluten sensitive without being clinical celiacs. You could have dermititus herpetiformis or something to do with your lungs or brain or who knows what. Human beings did not have gluten in their diet for most of our existence as a race of beings.

So stick with your gut (ho, ho!) and follow what is true for your body. You know best as the saying goes. In time you will figure out how great or little your sensitivity to gluten is. Am hoping its not as great as mine and many on here, but you never know...

Yolo

[Mom23boys]

How long have you been on the diet?? It is my understanding that you have to be consuming gluten at the time of the blood test to get accurate results/

[ravenwoodglass]

Short and simple, go with what your body is telling you. If your body is saying it doesn't like gluten you should listen.

[ksymonds84]

Thanks to all that replied. I was on a gluten free diet for 5 days prior to test but before that gluten light because I always know if I eat too much bread etc I feel sick. The day before my tests I splurged heavy on gluten but maybe that still wasn't enough. I will go along with Ravenwood and just realize that whatever it is, my body doesn't like gluten! Yolo, I have Dangerous Grains requested from the library.

kathy