Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New...my First Real Test Is Feb. 14

Beckula

Recommended Posts

Beckula Newbie
Beckula
Posted

Hello,

I am 27 years old and have been diagnosed with IBS and Fibromyalgia for about 10 years. I have never thought anything of it until July. I ended up in the ER twice due to stomach pain, high fever and whatnot. They told me I had a UTI or kidney infection, but could not confirm this. I also have internal and external hemmorhoids, gas (belching and flatulence), bloating and other stuff. I already had a colonoscopy and abdomen ultrasound. Nothing really abnormal except "probable bilaterial renal calculi." I think that is kidney stones? I did not get a referral to see the gastro specialist, but I made an appointment and they will test me for lactose intolerance, Crohn's Disease, Peptic Ulcer Disease and Celiac Disease. I am really leaning towards this Celiac Disease, even though apparently I am within normal range for the blood test.

I am just not sure what what my blood test result means though. My test results read:

"Labs: TISS. TRANSGLUTAM. (82587) Normal, Mayo results."

Any clue what is going on? I did the lactose breath test so far and I was in a lot of pain all day after drinking the liquid. I can share more symptoms if needed. I am sure no one can diagnose me, I just want to know if it's a valid thought that I may have celiac disease.

ETA: I now looked up picky eating...is that connected??? My mom said at 3 years old all the sudden I was SOOooo picky. I have been making my own meals since I was 10 and never grew out of it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mftnchn Explorer
mftnchn
Posted

Welcome, Beckula,

There are five blood tests for celiac that are recommended on this forum, looks like you just had one. If they do more blood tests, just know that you will need to be eating substantial amounts of gluten for those to be positive. That goes for the biopsy as well, if that is planned. Those are the two gold standard ways for diagnosing celiac. Beyond a celiac diagnosis, there are many here who are gluten sensitive and feel much better going gluten free. There seems to be more than one cause for gluten sensitivity.

Looking at your symptoms there could be more than one possibility. If you don't get a clear diagnosis and improvement in your symptoms, I hope you'll post more here. Sometimes it can be quite a journey to wellness. This forum is a great resource.

With IBS and fibromyalgia at such a young age of onset, plus your "picky" eating at a young age I would wonder about food sensitivities or allergies. Also it might be good to read the thread on this forum about lyme disease. There is a long list of symptoms posted there, and joint/muscle pain is so typical of lyme. It also attacks the GI tract in some people.

I hope you find and answer and start to feel much better soon.

Beckula Newbie
Beckula
Posted
  • Author
Welcome, Beckula,

There are five blood tests for celiac that are recommended on this forum, looks like you just had one. If they do more blood tests, just know that you will need to be eating substantial amounts of gluten for those to be positive. That goes for the biopsy as well, if that is planned. Those are the two gold standard ways for diagnosing celiac. Beyond a celiac diagnosis, there are many here who are gluten sensitive and feel much better going gluten free. There seems to be more than one cause for gluten sensitivity.

Looking at your symptoms there could be more than one possibility. If you don't get a clear diagnosis and improvement in your symptoms, I hope you'll post more here. Sometimes it can be quite a journey to wellness. This forum is a great resource.

With IBS and fibromyalgia at such a young age of onset, plus your "picky" eating at a young age I would wonder about food sensitivities or allergies. Also it might be good to read the thread on this forum about lyme disease. There is a long list of symptoms posted there, and joint/muscle pain is so typical of lyme. It also attacks the GI tract in some people.

I hope you find and answer and start to feel much better soon.

Thanks. After my upper endoscopy (that is the test I am having done, and if that is normal, than I am getting some other test), I am planning to try going gluten-free, as I think my body craves it and I need to try and solve it. I have been tested many times for thyroid and lymes among other things, absolutely everything comes out normal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.