Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Upper Endoscopy Is Today

Beckula

Recommended Posts

Beckula Newbie
Beckula
Posted

I wrote this post a few days ago: Open Original Shared Link

Well, now there has been a change in plans. I have been feeling SO sick all weekend--ever since I took this lactose intolerance test. Then yesterday I had intense pain when I came home from work around 5 p.m. ...I stayed home sick and fortunately was able to move my upper endoscopy to 3:30 p.m. today.

I will find out soon if I have an ulcer, Crohn's Disease or Celiac Disease...it's kind of nerve wracking! Even if I don't have Celiac Disease, should I continue the gluten-free diet? I have fibromyalgia, supposedly. I have only been on the diet for a day or two.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

YES do continue the diet after the endo, don't wait for the results. There are times when even the endo can miss us, the best way to know for sure is to do the diet for a couple of months. I hope everything goes well today.

Beckula Newbie
Beckula
Posted
  • Author
YES do continue the diet after the endo, don't wait for the results. There are times when even the endo can miss us, the best way to know for sure is to do the diet for a couple of months. I hope everything goes well today.

Well, I won't get the results about the Crohn's and Celiac Disease until next week. My gastro specialist says I need to complain to the state and my general doc for not getting a referral....

He evaluated me and told me I have a hiatal hernia and Gastritis and Reflux Disease (GERD). I have a "distal esphagus" and further tests will be need to be done (this particular thing could indicate Barett's Esophagus). The gastritis could be Peptic Ulcer Disease (maybe from my long term use of NSAIDS?).

So I know some stuff, but there is a lot I don't know.

ravenwoodglass Mentor
ravenwoodglass
Posted
Well, I won't get the results about the Crohn's and Celiac Disease until next week. My gastro specialist says I need to complain to the state and my general doc for not getting a referral....

He evaluated me and told me I have a hiatal hernia and Gastritis and Reflux Disease (GERD). I have a "distal esphagus" and further tests will be need to be done (this particular thing could indicate Barett's Esophagus). The gastritis could be Peptic Ulcer Disease (maybe from my long term use of NSAIDS?).

So I know some stuff, but there is a lot I don't know.

I am glad you made it through everything well. Be aware that the findings he has already had can be celiac related and if they are they will clear up on the diet. If the doctor handed you some scripts make real sure when you take them that they are gluten free. Ask the pharmacist to give you the info sheet when you fill the scripts and then call the phone number on the sheet and ask yourself. Unfortunately pharms sometimes assume everything is alright when it isn't. Generic drugs are the biggest risk but even OTC stuff can get us. Good luck and I hope you feel bettter soon.

Hopefully you are starting the diet, like yesterday. You may know already when you get to the office for your results.

Beckula Newbie
Beckula
Posted
  • Author
I am glad you made it through everything well. Be aware that the findings he has already had can be celiac related and if they are they will clear up on the diet. If the doctor handed you some scripts make real sure when you take them that they are gluten free. Ask the pharmacist to give you the info sheet when you fill the scripts and then call the phone number on the sheet and ask yourself. Unfortunately pharms sometimes assume everything is alright when it isn't. Generic drugs are the biggest risk but even OTC stuff can get us. Good luck and I hope you feel bettter soon.

Hopefully you are starting the diet, like yesterday. You may know already when you get to the office for your results.

Yep, I am continuing the gluten-free diet and trying to avoid most dairy products.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748
    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.