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- cristiana replied to KathyR37's topic in Coping with Celiac Disease4
New here
Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana -
- trents replied to KathyR37's topic in Coping with Celiac Disease4
New here
@KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns? -
- Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications2
Probiotics
thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years. -
- KathyR37 replied to KathyR37's topic in Coping with Celiac Disease4
New here
Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem... -
- Scott Adams replied to KathyR37's topic in Coping with Celiac Disease4
New here
What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
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we are getting to a time where on one hand, it is great that people are aware of gluten, but on the other hand, MANY companies will no longer confirm if anything is gluten-free, because they are fearful of lawsuits. You have to sort of make your own decisions when it comes ot thinks like that and use common sense. Also, if i were you, i wouldn't be too depressed about not being able to eat at a jack in the box...
Personally I wouldn't eat at my "local McDonalds" if it was 100% gluten free, the staff are disgusting and they couldn't get an order right if they were paid $1,000,000,000 to do it! I have heard so many complaints from co-workers about the newest owners lack of caring and ability to control the teenage staff to convince me that years ago I made the right choice to stay far far away!
I didn't like to eat at McD's before and it was rare that we did, but in the interest of finding a few options for a quick bite for the kids & I, I figured I'd look into it.
We still eat at McDonald's occasionally. No one else in my family has celiac...so they eat "normally", but I usually get the 99 cent salad and ranch dressing. Sometimes I get the yogurt but don't put the granola on it or the apple dippers. And rarely, I'll get an ice cream sundae.
It's not a terrible lunch for me...but I'm sure your kids wouldn't be too thrilled about a salad and yogurt.
Yeah, well, unfortunately we're casein intolerant as well, so that knocks out most of the gluten-free choices. :-( Dh is the only one in the family who eats "normally" any more.
The kids do, fortunately, like salad, so that's one choice.