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Enterolab Questions


ItchyMeredith

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ItchyMeredith Contributor

I am a diagnosed celiac. My almost 3 y/o son is a big question mark. His blood panel was negative at 2.5 years- but I have learned online that this is almost to be expected. His symptoms are multiple food allergies, 5% for weight, and eczema. I have made him gluten free with me but I really want to figure out if this is warranted.

Should I try enterolab and see if he tests positive for gluten sensitivity? Do I do the gene test too?

I have heard people say that some doctors think the test is bunk- why? What is so controversial about it? I understand that it cannot diagnose celiac but it can point me toward if he is gluten sensitive which could or could not be celiac. Is this true?

Any advice would be greatly appreciated.

Thanks

Mere

****Oh- and is this the test I would order for him?:

Gluten Sensitivity Stool and Gene Panel Complete ($369)

Gluten sensitivity stool test, tissue transglutaminase stool test (test for the autoimmune reaction caused by gluten sensitivity), intestinal malabsorption test, gluten sensitivity gene test, and for a limited time, free milk sensitivity stool test (Best Test Panel for Gluten Sensitivity). The combination of tests when ordered in this panel saves you greatly over ordering the tests individually.


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Mom23boys Contributor

After getting our tests back, we think we are going to have all 3 of ours tested (4,6,8). I KNOW we will at least do the basic tests. We are still discussing the full test but think we probably will do it.

Nancym Enthusiast

Dr. Fine hasn't published his results in a peer reviewed format so that's why few accept his tests. I've heard him say for a couple of years in a row that he's going to publish. So I think I've pretty much given up on that happening now. He's got a very impressive CV and certainly has helped a lot of people. Sometimes you gotta just evaluate the information yourself and decide. I sure think it helped me figure things out.

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    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
    • Scott Adams
      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
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