Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Must Vent My Frustrations


radgirl

Recommended Posts

radgirl Enthusiast

Every time I think I've finally made it fully gluten free - BAM - I get hit with some more. It's bad enough that I must inspect every ounce of my food before it hits my mouth. I must look at my shampoo, conditioner, soaps, and lotions. Now, to make matters worse, there is barely in my deodorant and wheat amino acids in my hair color!!! Does this madness ever stop?! Since when is barley an essential ingredient in wetness and odor protection in a deodorant? What is the purpose of wheat amino acids in hair color?! I'm absolutely fed up!!! I cannot stand this anymore. I must check every single, solitary label so this stuff doesn't kill me. Every time I think I'm doing well and have my food under control, NOPE!!! It's something else. I want to scream!!!! Thank you for hearing me out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pixiegirl Enthusiast

Well yep you're frustrated all right! The only saving grace is that over time you get it figured out...which things have gluten and which don't. I don't even much think about it any more.

Also each person has to make their own decisions on products. For example, I don't use a shampoo that has wheat in it because I think the transfer from hair to mouth could happen. But I personally would use a hair color that had it. It would get washed out when you shampoo after the hair color.

I've never even checked my anti perspirant and I don't think it would much matter to me. I can tell you that I never put my hands under my arm pits during the day. (I rarely even put my hands on my face once I'm out of the bathroom, I've convinced myself this is one of the major keys to NOT getting a cold or flu).

I am very sensitive to any gluten that I accidently ingest but I've not had any problem at all with products. So we all must decide how far we will go.

Susan

RiceGuy Collaborator

It seems to me that armpits are a tender area of skin, and prone to infections, rashes, irritation, etc. Heck, I already know I react to even the smell of scented soaps, detergents, dryer sheets, perfumes, dyes...the list goes on and on.

I saw a demonstration once where a guy put his finger in a cup of liquid, and in seconds he had a strong garlic taste in his mouth! I've heard you can get a similar effect from rubbing garlic on the bottom of your foot. So yes, the skin does absorb stuff. I suppose the best example though, is that allergists often put small amounts of things on your skin to test for allergies. So it doesn't have to actually reach one's mouth to cause a reaction.

blueeyedmanda Community Regular
I saw a demonstration once where a guy put his finger in a cup of liquid, and in seconds he had a strong garlic taste in his mouth! I've heard you can get a similar effect from rubbing garlic on the bottom of your foot. So yes, the skin does absorb stuff. I suppose the best example though, is that allergists often put small amounts of things on your skin to test for allergies. So it doesn't have to actually reach one's mouth to cause a reaction.

Very interesting...I never knew that.

radgirl Enthusiast
It seems to me that armpits are a tender area of skin, and prone to infections, rashes, irritation, etc. Heck, I already know I react to even the smell of scented soaps, detergents, dryer sheets, perfumes, dyes...the list goes on and on.

I saw a demonstration once where a guy put his finger in a cup of liquid, and in seconds he had a strong garlic taste in his mouth! I've heard you can get a similar effect from rubbing garlic on the bottom of your foot. So yes, the skin does absorb stuff. I suppose the best example though, is that allergists often put small amounts of things on your skin to test for allergies. So it doesn't have to actually reach one's mouth to cause a reaction.

This is exactly why I'm so very frustrated because of my skin reactions. Now keep in mind that I've only been using this stuff for a week or so (I've used it before, but only yesterday found out that it had barely in it). I'm just frustrated and appreciate you all listening to me. This isn't something I'm new to, but it never ceases to amaze me the odd places gluten can be found.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,599
    • Most Online (within 30 mins)
      7,748

    Jose Mojena
    Newest Member
    Jose Mojena
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Alibu
      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
    • Scott Adams
      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...