Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take?...


carecare

Recommended Posts

carecare Enthusiast

So my husband who had went about 6 wks without gluten with great results (fatigue went away, indigestion went away, diarrhea got less). He was still having some diarrhea issues and pin pointed that to being peanuts. When all his worst symptoms...with a pattern started is when he started eating and keeping peanuts on his desk at work. When he went gluten free he was eating them more than ever and noticing that by the end of the week (buiding up) he'd have diarrhea and has felt it was the peanuts. So a couple weeks ago he stopped the peanuts and the D ended. He then decided to try gluten products again because maybe all the problems were peanuts. Though, I don't find it a coincidence that his fatigue and indigestion disappeared so quickly going gluten free. It's been 5 days on gluten and he wasn't having any problems. Though, last night he blamed my cooking on his stomach hurting after dinner....however, it was a gluten free lasanga that I've made in the past. My theory is that gluten is starting to make his system act up again and he'll start with the indigestion and fatigue sometime soon...and the D too.

Can gluten problems sort of build up in some people? So that they don't react immediately but react after a period of time?

I'm continueing to cook gluten free because my 13 yr old daughter went gluten free as well and has no joint pain or stiffness anymore. That was going on for 2 yrs and I know it's not a coincidence that this went away. Even when she go through lapses of no pain...she'd still have the stiffness. Gluten free she's pain and stiffness free :)

Any thoughts on my husband?

Carecare


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi,

It is quite possible that it's taken a few days for the gluten to catch up with him. He probably healed enough so that the reactions were delayed.

It's different with everybody, though.

Also, it's likely that he has a peanut (or legume) sensitivity in addition to the gluten intolerance. People sensitive to gluten often have other intolerances. I can not tolerate legumes, either :)

lizard00 Enthusiast

I can eat gluten without any GI problems or getting a headache now... but I'm not sure how long. As Jerseyangel said, he's probably healed enough that it is going to take a few days to catch up with him, which it sounds like its starting to. That's what I think has happened with me. I am healed enough that I don't get those immediate reactions anymore, although if I do get glutened, I get VEEERRRYY lethargic. I don't feel bad though, just wiped out. I don't know how long, at this point, it would take to start back with the headaches and digestive problems. But I'm sure that they would.

I hate to say that he will probably have to learn the hard way, but that's what it sounds like. At least then he'll know for sure.

nora-n Rookie

with me, it tokk 6 weeks for the neuro symptoms to return. and, I read an another board that someone's father went back on gluten and did fine but tested sky-high on antibodies after a year. (he then died of lung cancer after a few months. She thinks the gluten did not help his immune system..)

nora

carecare Enthusiast

Thanks everyone. He's doing ok. Today though he said his constipation is back. So he gets that and then gets D days later. I think he's realizing that some things are starting to appear again. It's a matter of time before the D starts and his fatigue and indigestion. Just waiting...and then he'll realize what he needs to do.

My 13 yr old has been cheating. Her joint pain and stiffness was gone but today she said she's getting stiffness a bit...and she realized on her own that it was from cheating so often the last few days.

Thanks for all the advice.

Carecare

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,079
    • Most Online (within 30 mins)
      7,748

    Terra33
    Newest Member
    Terra33
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.