Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is My Blood Test - Questionable?


chatycady

Recommended Posts

chatycady Explorer

Hi all, I was on a gluten free diet 15 days before I had this blood test done. Can anyone help me interpret this?

Tissue Transglutaminase, IgA 7.7 reference 0.0 to 19.9

endomysial antibodies Ab screen negative

Gliadin Antibody IgG 28.6 equivocable 25.1 to 49.9

Gliadin Antibody IgA 38.3 equivocable 25.1 - 49.9

IgA 257 reference 70-312

Doesn't equivocable mean - not negative and not postitive? Unclear? Deceiving? Maybe, maybe not?

This test was done a year ago, now I'm thinking of having another blood test to see if the IgG and IgA is down and no longer "equivocable" and hopefully negative. Do you agree?

Thanks for your help.

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you still on the diet? Are you feeling better? Retesting is done sometimes to check whether their levels have gone down. Many doctors will retest at 6 months or a year to check.

chatycady Explorer
Are you still on the diet? Are you feeling better? Retesting is done sometimes to check whether their levels have gone down. Many doctors will retest at 6 months or a year to check.

So does my original blood test really mean anything? Is it worth retesting now?

happygirl Collaborator

It depends on if you went gluten free or not, and what the purpose is of testing.

chatycady Explorer
It depends on if you went gluten free or not, and what the purpose is of testing.

Yes, I am gluten free. I want to make sure I'm healing and I'm worried about cancer. My mom died of cancer, my brother has thyroid cancer. I guess I want to know if I'm on the right track.

Will the numbers go down if it was a gluten problem?

maddycat Contributor

Chatycady-

I am in the same boat as you- I had only bloodowork done 1 1/2 years ago and my results came back in the equivocal range too. At the time my GI told me to follow a strict diet for the rest of my life, etc. I did not have a biopsy done as I started eating gluten-free right after the blood test. I also didn't have the TTG test, only anti-giladin IGG and IGA testing (I didn't know there were better tests at the time). Now I too question my results and wonder if I am truely Celiac or not. I am considering doing the gene testing to see if that comes back with any more difinitive results. I don't know if I could do a gluten challenge- I'm scared to. But yet, I do want to know "for sure" if you know what I mean!

Good luck- let me know what you decide to do!

Marcia

chatycady Explorer

I think I wll go back and have the test taken again and see if the blood test comes back "normal". I'm just worried that some day when I'm old and sitting in a nursing home, they will start feeding me "gluten" because I don't have a "real" diagnosis!

From what I've read in a couple books that I have, (dangerous grains and Celiac Disease a hidden epidemic) they say it can take 1 to 5 years of eating gluten to have a positive test. They don't recommend it at all. A gluten challenge should only be for a day or two and only to see if there is a physical reaction.

So, is it the lab that decided my test was "equivocal". Are labs different? And is it in their interpretation of the result? Another lab would call it negative? or positive?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    2. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    3. - Theresa2407 replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    4. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    5. - Aretaeus Cappadocia replied to Anne G's topic in Related Issues & Disorders
      2

      celiac disease and braces

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,705
    • Most Online (within 30 mins)
      7,748

    Gigisboysx2
    Newest Member
    Gigisboysx2
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Have they checked her Adrenal glands.    
    • Heatherisle
      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
    • Aretaeus Cappadocia
      Your concerns are reasonable about the celiac risk aspect, and getting additional medical input is a good idea. Obviously I don't know the extent of your child's misalignment, but please don't think of it as just a cosmetic issue. Braces improve bite alignment and typically provide long term health benefits.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.