Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is My Blood Test - Questionable?


chatycady

Recommended Posts

chatycady Explorer

Hi all, I was on a gluten free diet 15 days before I had this blood test done. Can anyone help me interpret this?

Tissue Transglutaminase, IgA 7.7 reference 0.0 to 19.9

endomysial antibodies Ab screen negative

Gliadin Antibody IgG 28.6 equivocable 25.1 to 49.9

Gliadin Antibody IgA 38.3 equivocable 25.1 - 49.9

IgA 257 reference 70-312

Doesn't equivocable mean - not negative and not postitive? Unclear? Deceiving? Maybe, maybe not?

This test was done a year ago, now I'm thinking of having another blood test to see if the IgG and IgA is down and no longer "equivocable" and hopefully negative. Do you agree?

Thanks for your help.

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you still on the diet? Are you feeling better? Retesting is done sometimes to check whether their levels have gone down. Many doctors will retest at 6 months or a year to check.

chatycady Explorer
Are you still on the diet? Are you feeling better? Retesting is done sometimes to check whether their levels have gone down. Many doctors will retest at 6 months or a year to check.

So does my original blood test really mean anything? Is it worth retesting now?

happygirl Collaborator

It depends on if you went gluten free or not, and what the purpose is of testing.

chatycady Explorer
It depends on if you went gluten free or not, and what the purpose is of testing.

Yes, I am gluten free. I want to make sure I'm healing and I'm worried about cancer. My mom died of cancer, my brother has thyroid cancer. I guess I want to know if I'm on the right track.

Will the numbers go down if it was a gluten problem?

maddycat Contributor

Chatycady-

I am in the same boat as you- I had only bloodowork done 1 1/2 years ago and my results came back in the equivocal range too. At the time my GI told me to follow a strict diet for the rest of my life, etc. I did not have a biopsy done as I started eating gluten-free right after the blood test. I also didn't have the TTG test, only anti-giladin IGG and IGA testing (I didn't know there were better tests at the time). Now I too question my results and wonder if I am truely Celiac or not. I am considering doing the gene testing to see if that comes back with any more difinitive results. I don't know if I could do a gluten challenge- I'm scared to. But yet, I do want to know "for sure" if you know what I mean!

Good luck- let me know what you decide to do!

Marcia

chatycady Explorer

I think I wll go back and have the test taken again and see if the blood test comes back "normal". I'm just worried that some day when I'm old and sitting in a nursing home, they will start feeding me "gluten" because I don't have a "real" diagnosis!

From what I've read in a couple books that I have, (dangerous grains and Celiac Disease a hidden epidemic) they say it can take 1 to 5 years of eating gluten to have a positive test. They don't recommend it at all. A gluten challenge should only be for a day or two and only to see if there is a physical reaction.

So, is it the lab that decided my test was "equivocal". Are labs different? And is it in their interpretation of the result? Another lab would call it negative? or positive?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,518
    • Most Online (within 30 mins)
      7,748

    Jon D
    Newest Member
    Jon D
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.