Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching Not From Dh Or Psoriasis


mushroom

Recommended Posts

mushroom Proficient

Please help; this itching is getting more than I can bear.

I do have psoriasis (4 years), so know what that does. I do not have, as far as I can ascertain, from the descriptions and pictures, DH. I have no blisters or lesions, nothing that looks like chickenpox which the pictures show. This is a blanket red skin rash which is inflamed and seriously itches. It is worse in bed at night especially when I get overheated (it is summer here), almost like a heat rash).But I also itch in areas that have no redness, and I also have hives develop and disappear at random on various parts of my torso. To the best of my knowledge I have eliminated all gluten from my house and life--pantry, bathroom, cosmetics and cleaners. I have only eaten gluten out once in the last month and there was a little CC but not much. My major gluten symptoms have gone away, only to be replaced by this intolerable itching which is keeping me awake more than the gluten ever used to.

I have been advised by my ND to eat fish (I don't like farmed salmon so have been eating lots of canned tuna and sardines (almost every day), and am wondering if I am getting a metal toxicity reaction -- mostly New Zealand tuna and sardines. Any advice or help would be greatly appreciated. In the meantime these items are off the menu!!

Neroli


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Have you looked into the possibility of a candida infection? I'd try caprylic acid capsules, and at the same time avoid all sugars, yeasts, vinegars, and fruit.

What was the reason that your doctor suggested fish? Is it was for the omega-3s, you could have flax seeds, walnuts, and chia seeds. This might actually supply more O-3s, at the same time as avoiding those heavy metals.

HTH

mushroom Proficient
Have you looked into the possibility of a candida infection? I'd try caprylic acid capsules, and at the same time avoid all sugars, yeasts, vinegars, and fruit.

What was the reason that your doctor suggested fish? Is it was for the omega-3s, you could have flax seeds, walnuts, and chia seeds. This might actually supply more O-3s, at the same time as avoiding those heavy metals.

HTH

Thank you, RiceGuy; I had not considered candida. Will have to look into that.

I was used to getting my O-3's from flaxseed but the ND felt I would be better off with the fish. I find we all have our preferences/prejudices when it comes to O-3 sources. I did not know about chia seeds (like you grow on the pottery ornaments??) Sure hope I don't sprout like that, I've got enough skin problems already!!

  • 1 month later...
mushroom Proficient

Hi all:

Just a quick update on the red itchy rash that was driving me nuts. I decided to do an elimination diet of sorts--soy, dairy (the rest like cheese and yogurt) and corn. I was really careful about the soy part because I had been diagnosed as sensitive to it years before with the skin test, but had never actually been bothered by it (or eaten much of it). I would avoid it if there were a choice but a little bit in a salad dressing, say, I would not worry too much about.

So when I went gluten free I could not give up my cookies so purchased gluten free cookies. Ate some chocolate, occasionally bought gluten free venison sausages, etc. Well, when I really started reading the labels on these products I had substituted in I discovered that when they took out the gluten they added soy!! Lots of it. In everything! So it turns out that the rash and itching were caused by the soy. When the soy went away so did the rash and itching. Now I can't even have chocolate anymore except the Lindt extra dark. I am doing that hard. :angry: Also had to give up even my "fake" ice cream. Seems like they put soya lecithin in almost everything.

I finally have some gluten free cookbooks and a pantry stocked with most things. Have been unable to find any sorghum (juar, jowar) flour down here yet, no Teff, etc.,so a lot of the recipes in Carole's and Bette's cookbooks are not on the menu yet. I think I will be back in Nevada in June so will have to carry an extra empty bag for baking supplies. Will also have to find a new airline to fly because Air New Zealand are limiting us to one 30 kg piece of luggage. Now who except superman can manage that? Certainly not an "older-looking" lady (as one of my docs too kindly put in a report) with rheumatoid arthritis! May have to fly to Sydney and try to pick up something from there as only ANZ and Qantas fly out of Auckland any more. And I hate Qantas as much as the koala bear does.

End of rant.

Cheers to all. Am feeling a bit happier, and am going to see a new rheumatologist next week. I think I will have to find a med. I am not intolerant of because being gluten free is not controlling the arthritis and it is really flaring up again. Pity because my hair is just growing back in at the front.

Neroli

BRUMI1968 Collaborator

Look for coconut bliss ice cream. And check out Enjoy Life brand for soy-free stuff. Coconut blissssssssssssss.

  • 2 weeks later...
Graceanna Newbie
Look for coconut bliss ice cream. And check out Enjoy Life brand for soy-free stuff. Coconut blissssssssssssss.

I have psoriasis, psoriatic arthritis and coeliac. I recently cut out dairy and took soya milk instead. No problems. I read about soya lecithin as a supplement good for psoriasis as source of omega 3. Took this supplement and my feet are burning and toes inflamed. Could I be soy intollerant? Maybe I should be on rice milk. Interested in your thoughts. I never thought that soy could be a problem.

BRUMI1968 Collaborator

Soy is one of the highest allergen foods (soy, wheat, corn, dairy, eggs). I'm unaware if soy lecithin is a problem for most folks with soy problems.

I tested as positive to antibody response to soy in a stool analysis (meaning, my body creates antibodies to soy - acting as though it is the enemy) though I've never attributed any symptoms specifically to it. I don't touch it. There is also a decent bit of evidence that soy has other problems associated with it (blocks absorption of minerals, is estrogenic, etc.)

So I'm not sure what to say, other than that soy is a high allergen food, so it is certainly possible that the supplement bugged your system.

I wish I could be more help with the itching.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator
Thank you, RiceGuy; I had not considered candida. Will have to look into that.

I was used to getting my O-3's from flaxseed but the ND felt I would be better off with the fish. I find we all have our preferences/prejudices when it comes to O-3 sources. I did not know about chia seeds (like you grow on the pottery ornaments??) Sure hope I don't sprout like that, I've got enough skin problems already!!

You can get the omegas from fish oil. Carlson's is a very reputable brand that has good practices to be sure you're not getting the heavy metals. It doen't taste bad either. Some have a slight lemon flavor. I gave it to my son and figured I'd better try it too to make sure I wasn't torturing him. He never complained.

RiceGuy Collaborator

Another possible cause of skin problems is foods which are high in iodine, such as sea vegetables. So it is probably a good idea to avoid kelp and other things derived from seaweed. Iodine is known to have a tendency to make DH worse, because the immune system uses iodine to help heal the skin.

Guest Talia
Another possible cause of skin problems is foods which are high in iodine, such as sea vegetables. So it is probably a good idea to avoid kelp and other things derived from seaweed. Iodine is known to have a tendency to make DH worse, because the immune system uses iodine to help heal the skin.

I am also struggling with the skin problemsand celeiac I have had psoriasis, since birth,

scalp, bottom, . it moves around on my scalp. I itch so much,. I know it is food related.. i just have to be dilegent and write down everything I put in my mouth. reading this site is so amazing, the things I think are ok, end up beign disasters... like dream rice milk(had gluten) , which i didn't know unitl I read this.

I am tryint to stick with iodine free salt, I think I will just make up a little spice bottle to carry with me when we eat out.

Also has anyone had reactions to apples? Pectin maybe is an issue, I started eating an apple last night,, and alomost as soon as i started eating it , i was inflamed.

Good luck to you

talia

dally099 Contributor
I am also struggling with the skin problemsand celeiac I have had psoriasis, since birth,

scalp, bottom, . it moves around on my scalp. I itch so much,. I know it is food related.. i just have to be dilegent and write down everything I put in my mouth. reading this site is so amazing, the things I think are ok, end up beign disasters... like dream rice milk(had gluten) , which i didn't know unitl I read this.

I am tryint to stick with iodine free salt, I think I will just make up a little spice bottle to carry with me when we eat out.

Also has anyone had reactions to apples? Pectin maybe is an issue, I started eating an apple last night,, and alomost as soon as i started eating it , i was inflamed.

Good luck to you

talia

hi, i can totally sympathise, last year i had this on my feet and my hands, i wanted to take the cheese grater to them. i found out it was the soy in my diet, as well i now take a hantihystamine daily, and have special creams, get in to see an allergist again, as well as a skin docter, its probably something you are in injesting, take care!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

    2. - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

    3. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    5. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,245
    • Most Online (within 30 mins)
      7,748

    Christine Ranalli
    Newest Member
    Christine Ranalli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
    • McKinleyWY
      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.