Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prilosec Question

BallardWA

By BallardWA
in Coping with Celiac Disease

Recommended Posts

BallardWA Rookie
BallardWA
Posted

Hello All-

Does anyone find that Prilosec hurts more than it helps? My doc thinks I should stay on it until I am feeling completely well, but she is very pro-drug. I ran out of the drug and was off of it for 2 days and felt amazingly better. I started it again, and my stomach cramps returned. She has got me so cowed (sp?) that I don't want to address this with her. She thinks this is all in my head. Anyway, I know I need to get a new doc, and I will as soon as I can find one willing to listen to my litany of symptoms and attempted solutions, but for now - has anyone had a similar experience with Prilosec?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Hello All-

Does anyone find that Prilosec hurts more than it helps? My doc thinks I should stay on it until I am feeling completely well, but she is very pro-drug. I ran out of the drug and was off of it for 2 days and felt amazingly better. I started it again, and my stomach cramps returned. She has got me so cowed (sp?) that I don't want to address this with her. She thinks this is all in my head. Anyway, I know I need to get a new doc, and I will as soon as I can find one willing to listen to my litany of symptoms and attempted solutions, but for now - has anyone had a similar experience with Prilosec?

I have not had a problem. But, I would reduce your dosage. Too much can add to some digestive problems (ie. cramping, nausea and D).

Many of us have had gastritis included in our diagnosis. Prilosec was a help for me. Now I rarely need it.

kbtoyssni Contributor
kbtoyssni
Posted

No experience with this drug, but if it makes you feel sick, I wouldn't take it. Maybe talk to your pharmacist about stopping and if you're supposed to wean yourself off it if you don't want to talk to your doc. I'm also going to echo your statement that if you're scared to tell your doc about this, you need to put finding a new doc at the top of your To Do List. As you go gluten-free your body will be absorbing more drug so often the dosages that you used to take can be decreased as you go gluten-free.

Guest Happynwgal2
Guest Happynwgal2
Posted
Hello All-

Does anyone find that Prilosec hurts more than it helps? My doc thinks I should stay on it until I am feeling completely well, but she is very pro-drug. I ran out of the drug and was off of it for 2 days and felt amazingly better. I started it again, and my stomach cramps returned. She has got me so cowed (sp?) that I don't want to address this with her. She thinks this is all in my head. Anyway, I know I need to get a new doc, and I will as soon as I can find one willing to listen to my litany of symptoms and attempted solutions, but for now - has anyone had a similar experience with Prilosec?

I have never used Prilosec, thus I cannot speak to the effects it may or may not have.

I have, however, had lots of experiences with ignorant doctors. I suggest you do what YOU think is best, and listen to your body. Do not put anything into your body that you think is hurting it. Talk with your doctor asap, and tell her your concerns. Then find a new doctor asap that you feel it will be easier to talk with. Many doctors are too pro-drugs, and some of them you must simply avoid.

Some drugs are a must to take; I am not suggesting anybody just stop taking drugs that actually help cure serious illnesses. We all need to figure out what we can say "NO, but thanks", to, and what we must take. I stay away from drugs as much as possible, but realize that sometimes I must take them to get better.

Good luck in your search for a new doctor; I hope you will find somebody who is more willing to listen to your concerns.

:)

flourgirl Apprentice
flourgirl
Posted

I would be very hesitant to use anything that interferes with natural acid production of the stomache, simply out of fear of causing more imbalance of bacteria. If you have pain and bloating because of high bacteria (I think a lot of us do), then clamping down on acid production in your belly can cause an even higher incidence of bacterial growth. If you have a copy of the book by Dr. Peter Green, he touches on that topic. If it were me, and I felt better without the stuff, why would I want to continue with it? Trust your instincts. My own doctor often suggests different drugs to deal with all of the issues, but listens and accepts when I say NO THANKS. Hope you can find your answers.

ravenwoodglass Mentor
ravenwoodglass
Posted

I was given samples of this and three other drugs by my GI. I decided before I took any to try good ole' Pepto Bismal liquid. One dose took care of the pain. If you don't have any contraindications it might be worth a try.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      Recently launched Daura Non-Alcoholic Named One of the Best in the World by Forbes

    2. Iam
      - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Yes. I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy. Numerous dental visits and several professionally made bite plates did very little to help with symptoms
    3. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    4. Scott Adams
      0

      New Research Reveals Why the Gut May Stay Sensitive Even After a Gluten-Free Diet

    5. bobadigilatis
      - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm. Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748
    Hcon74
    Newest Member
    Hcon74
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Feel like I’m starting over

      By trents · Posted

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By bobadigilatis · Posted

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.