Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

College Visits

HAK1031

By HAK1031
in Coping with Celiac Disease

Recommended Posts

HAK1031 Enthusiast
HAK1031
Posted

Yesterday I went to visit Hamilton College and Colgate University in New York. I went to Colgate first and I was talking to the chef who was making my (delicious!) omelette and asked how they accomadate special diets. He said he had other students on the diet, and pulled out Gillian's gluten-free pizza dough!! I knew I would be fine there. Then that afternoon, we went to Hamilton, and stopped by the dining hall on the tour and asked the guide the same question...turns out she has celiac herself!! And Hamilton is good about the diet as well according to her. We stopped for lunch at a little cafe where I got my boring dressing-less salad...then we left, drove a few miles down the road, and passed a pizza place. On their sign they had "Now serving gluten-free pizza!!!" I was so sad that we had already stopped ;) but I would say it was a good omen that eating in college won't be quite as scary as I thought...I may have to worry about the freshman 15 after all :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted
Yesterday I went to visit Hamilton College and Colgate University in New York. I went to Colgate first and I was talking to the chef who was making my (delicious!) omelette and asked how they accomadate special diets. He said he had other students on the diet, and pulled out Gillian's gluten-free pizza dough!! I knew I would be fine there. Then that afternoon, we went to Hamilton, and stopped by the dining hall on the tour and asked the guide the same question...turns out she has celiac herself!! And Hamilton is good about the diet as well according to her. We stopped for lunch at a little cafe where I got my boring dressing-less salad...then we left, drove a few miles down the road, and passed a pizza place. On their sign they had "Now serving gluten-free pizza!!!" I was so sad that we had already stopped ;) but I would say it was a good omen that eating in college won't be quite as scary as I thought...I may have to worry about the freshman 15 after all :lol:

this is fantastic. It gives me hope. Here in the San Jose area it seems very difficult to eat out. Maybe I just need to try harder.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

That's very cool.

dksart Apprentice
dksart
Posted

Yeah! Congratulations.

Guest LittleMissAllergy
Guest LittleMissAllergy
Posted
this is fantastic. It gives me hope. Here in the San Jose area it seems very difficult to eat out. Maybe I just need to try harder.

I live by San Francisco and travel to San Jose all the time. I can't eat out either :( I thought the salad bar at Trader Joes in San Jose might be a good choice, but I even got sick from that! So I feel your pain :(

YoloGx Rookie
YoloGx
Posted
I live by San Francisco and travel to San Jose all the time. I can't eat out either :( I thought the salad bar at Trader Joes in San Jose might be a good choice, but I even got sick from that! So I feel your pain :(

Yes San Jose seems to be tough on all fronts. Everyone seems so selfish and "me first". I have run into the same thing in the arts. However I am going to start asking more and see what happens. I am hopeful that eventually it will help.

Meanwhile my own family of course thinks I am completely neurotic despite their own gastric etc. difficulties. For most of them they feel its not worth it to be vigilant about it--although my eldest sister is. She like me is accused of the being a Hypochondriac with a capital H. However now both of us have stronger joints and more energy and better overall health because of being more vigilant. Unfortunately however she is in southern CA so I have no close mates here on this issue.

Now I am thinking of refusing to go out to eat with my family--and just share gluten free dessert with them afterwards on special occasions and/or make dinner myself. Recently they ordered things at a restaurant willy nilly with gluten in them despite them knowing I have celiac as does my mother and brother with Down's syndrome. I can control the situation at home but not when we go out to eat--which is usually on someone's birthday (as this was--for my mother). I don't want to make a scene but maybe I need to? I am not giving up but it is a struggle.

lizard00 Enthusiast
lizard00
Posted

I am so jealous of anyone that has a pizza place nearby that can get gluten-free pizza. Don't get me wrong, Amy's pesto w/soy cheese isn't bad, BUUTTT... it gets old really quickly. Sounds like a great place to be!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


peanut369 Newbie
peanut369
Posted

I was traveling for the first time in a long, long time and had resigned myself to ordering a pasta plate without the pasta. As I usually do, I simply asked, "Can this be brought without pasta? I can't have the wheat." The waitress replied, "We have gluten free pasta. Would you like some?" I came so close to balling. All I could do was nod my head. Then she did it. She offered the choice of penne or fettucini! I told her my choice, so she would go without seeing my (way too) emotional reaction. I've never even heard of a restaurant offering gluten free choices before.

My friend who travelled with me had an awesome suggestion - suck it up and ask for gluten free products wherever we are out. If enough people keep asking for it, resuaurants will HAVE to get the idea.

The 'in' at this particular restaurant, I found out after, is that the chef has Celiac disease.

The problem with this place? It was a 3.5 hour drive from home, and we just happened to be traveling through. That was in Vermont. :o

dksart Apprentice
dksart
Posted
I was traveling for the first time in a long, long time and had resigned myself to ordering a pasta plate without the pasta. As I usually do, I simply asked, "Can this be brought without pasta? I can't have the wheat." The waitress replied, "We have gluten free pasta. Would you like some?" I came so close to balling. All I could do was nod my head. Then she did it. She offered the choice of penne or fettucini! I told her my choice, so she would go without seeing my (way too) emotional reaction. I've never even heard of a restaurant offering gluten free choices before.

My friend who travelled with me had an awesome suggestion - suck it up and ask for gluten free products wherever we are out. If enough people keep asking for it, resuaurants will HAVE to get the idea.

The 'in' at this particular restaurant, I found out after, is that the chef has Celiac disease.

The problem with this place? It was a 3.5 hour drive from home, and we just happened to be traveling through. That was in Vermont. :o

I know I would cry right there in front of the waitress. I almost cried just reading this!

What restaurant was it for anyone who might be heading that way?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.